2024
Sickle Pain-Related Impact (SPiRIt): A Prospective Study of Impact of Chronic Pain in Sickle Cell Disease
Jagtiani A, Sinha C, Hawk A, Gillespie S, Mirbeyk M, El Rassi F, Smith W, Krishnamurti L, Sil S, Bakshi N. Sickle Pain-Related Impact (SPiRIt): A Prospective Study of Impact of Chronic Pain in Sickle Cell Disease. Blood 2024, 144: 3899-3899. DOI: 10.1182/blood-2024-210575.Peer-Reviewed Original ResearchHigh-impact chronic painPain-related patient-reported outcomesChronic pain acceptanceSickle cell diseaseChronic painAssociated with lower oddsPain acceptancePain catastrophizingPain intensitySelf-EfficacyCell diseaseManaging symptomsImpact of chronic painLower oddsHigher oddsHigher pain impactPain quality scoresDissemination strategiesHigher pain interferenceFactors associated with higher oddsFear of movementMultivariate logistic regression modelSickle cell disease clinicYoung adultsAssociated with higher oddsHTLV-1 associated myelopathy/tropical spastic paraparesis (HAM/TSP): Case based discussion of risk factors, clinical, and therapeutic considerations
Saab L, DiCapua D, Zubair A. HTLV-1 associated myelopathy/tropical spastic paraparesis (HAM/TSP): Case based discussion of risk factors, clinical, and therapeutic considerations. Journal Of The Neurological Sciences 2024, 459: 122973. PMID: 38520941, DOI: 10.1016/j.jns.2024.122973.Peer-Reviewed Original ResearchHTLV-1-associated myelopathy/tropical spastic paraparesisMyelopathy/tropical spastic paraparesisHTLV-1Discussion of risk factorsInfected CD4+ T cellsCD4+ T cellsAdult T-cell leukemia/lymphomaSpastic paraparesisT-cell leukemia/lymphomaQuality of lifeOptimal patient outcomesHTLV-1 infectionSymptoms of weaknessManaging symptomsDuration of infectionLoss of bladder controlNonspecific symptomsT cellsLower extremitiesSensory disturbancePatient outcomesTherapeutic considerationsHAM/TSPProviral loadRisk factors
2021
Integrated Hemophilia Patient Care via a National Network of Care Centers in the United States: A Model for Rare Coagulation Disorders
Valentino L, Baker J, Butler R, Escobar M, Frick N, Karp S, Koulianos K, Lattimore S, Nugent D, Pugliese J, Recht M, Reding M, Rice M, Thibodeaux C, Skinner M. Integrated Hemophilia Patient Care via a National Network of Care Centers in the United States: A Model for Rare Coagulation Disorders. Journal Of Blood Medicine 2021, 12: 897-911. PMID: 34707421, PMCID: PMC8544265, DOI: 10.2147/jbm.s325031.Peer-Reviewed Original ResearchHemophilia treatment centersAvoidable emergency room visitsCoordinated delivery of servicesTeam-based careHealth-care purchasersHealth-care centersTeam-based approachEmergency room visitsIntegrated careDelivery of servicesGeneral medical communityManaging symptomsRare coagulation disorderPatient careNational networkChronic diseasesImprove patientTreatment servicesRoom visitsCoagulation disordersUnited StatesEmotional needsCare centerCareMedical community
2020
Evidence-Based Risk Mitigation and Stratification During COVID-19 for Return to Interventional Pain Practice: American Society of Interventional Pain Physicians (ASIPP) Guidelines.
Shah S, Diwan S, Soin A, Rajput K, Mahajan A, Manchikanti L, Kaye A, Hirsch J, Gharibo C. Evidence-Based Risk Mitigation and Stratification During COVID-19 for Return to Interventional Pain Practice: American Society of Interventional Pain Physicians (ASIPP) Guidelines. Pain Physician Journal 2020, 23: s161-s182. PMID: 32942784, DOI: 10.36076/ppj.2020/23/s161.Peer-Reviewed Original ResearchConceptsAmerican Society of Interventional Pain PhysiciansContinuity of careChronic pain patientsPain specialistsInterventional Pain PhysiciansPain patientsInterventional pain specialistsPain carePain physiciansRisk of COVID-19 morbidityEvidence-informed guidanceCOVID-19 pandemicRisk factorsCOVID-related morbidityEvaluate risk-benefitCare recommendationsNumerous risk factorsManaging symptomsEvidence synthesisDisclosure of conflictsInterventional Pain PracticePain practiceTelemedicine encountersRisk stratification toolGuideline preparation
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