2024
Health Care for Youth With Neurodevelopmental Disabilities: A Consensus Statement.
Weitzman C, Nadler C, Blum N, Augustyn M. Health Care for Youth With Neurodevelopmental Disabilities: A Consensus Statement. 2024, 153 PMID: 38596852, DOI: 10.1542/peds.2023-063809.Peer-Reviewed Original ResearchConceptsHealth careConsensus statementSafe care deliveryCaregivers of individualsHealth care experiencesHealth care barriersNominal group techniqueConsensus panel membersPediatric research networkHealth care billCare barriersSafe careCare deliveryCare experiencesHealth outcomesNeurodevelopmental disabilitiesEvidence-informedImprove equitySupport accessCommunity advocatesCare billCareSteering CommitteeConsensus panelHealthEmotion Regulation, Coping Strategies, and Hazardous Drinking Among Family Caregivers of People With Alzheimer's Disease and Related Dementias.
Hernandez Chilatra J, Browning W, Yildiz M, Sullivan T, Pickering C. Emotion Regulation, Coping Strategies, and Hazardous Drinking Among Family Caregivers of People With Alzheimer's Disease and Related Dementias. Research In Gerontological Nursing 2024, 17: 81-90. PMID: 38507290, DOI: 10.3928/19404921-20240229-02.Peer-Reviewed Original ResearchConceptsHazardous drinkingADRD caregiversFamily caregiversCoping strategiesFamily caregivers of peopleFamily caregivers of individualsAlcohol Use Disorders Identification Test-ConsumptionCaregivers of peopleCaregivers of individualsPrevalence of hazardous drinkingEmotion regulationBinary logistic regression modelLogistic regression modelsReducing avoidant copingCaregiving experiencePotential risk factorsTest-ConsumptionTargeted interventionsADRDAlcohol use disorderCaregiversImprove emotion regulationAvoidant copingAlzheimer's diseaseCoping
2019
Enfeeblement in Elders with Essential Tremor: Characterizing the Phenomenon and Its Role in Caregiver Burden
Cersonsky T, Diaz D, Kellner S, Hickman R, Zdrodowska M, Monin J, Louis E. Enfeeblement in Elders with Essential Tremor: Characterizing the Phenomenon and Its Role in Caregiver Burden. Tremor And Other Hyperkinetic Movements 2019, 9 DOI: 10.5334/tohm.461.Peer-Reviewed Original ResearchCaregiver burdenEssential tremorAssessment of patientsCommon movement disorderGreater tremor severityMore depressive symptomsCaregivers of individualsClinical correlatesFunctional impairmentMovement disordersGait disabilityCaregiver needsDepressive symptomsOverall healthTremor severityOlder ageGreater burdenCaregiversTremorBurdenCognitive difficultiesDisabilityScoresEldersIndividuals
2018
The Scientific Study of Parents and Caregivers of Children with ASD: A Flourishing Field but Still Work to be Done
Nordahl-Hansen A, Hart L, Øien R. The Scientific Study of Parents and Caregivers of Children with ASD: A Flourishing Field but Still Work to be Done. Journal Of Autism And Developmental Disorders 2018, 48: 976-979. PMID: 29502150, DOI: 10.1007/s10803-018-3526-9.Peer-Reviewed Original ResearchConceptsCaregivers of childrenCaregivers of individualsMental health issuesStudy of parentsLife of personsPrimary caregiversFuture caregiversCaregiversHealth issuesFamily stressParental supportPeer relationshipsParentsLong historyLong history of researchArticleInterventionIssuesASDThemesHistory of researchChildrenCentral areaTrainingFlourishing field
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