2024
Daily care hours among caregivers of older emergency department patients with dementia and undiagnosed cognitive impairment
Galske J, Chera T, Hwang U, Monin J, Venkatesh A, Lam K, Leggett A, Gettel C. Daily care hours among caregivers of older emergency department patients with dementia and undiagnosed cognitive impairment. Journal Of The American Geriatrics Society 2024, 72: 3261-3264. PMID: 38970304, PMCID: PMC11461120, DOI: 10.1111/jgs.19062.Peer-Reviewed Original ResearchEmotion regulation in people living with dementia and their spouses: the role of neuropsychiatric symptoms
Lou Y, Vu T, Piechota A, Monin J. Emotion regulation in people living with dementia and their spouses: the role of neuropsychiatric symptoms. Aging & Mental Health 2024, 28: 1733-1740. PMID: 38940472, PMCID: PMC11560677, DOI: 10.1080/13607863.2024.2367038.Peer-Reviewed Original ResearchPwD neuropsychiatric symptomsCare partnersNeuropsychiatric symptomsSeverity of neuropsychiatric symptomsEarly stages of dementiaEmotion regulationSelf-reported difficultyStages of dementiaMultivariate linear regression modelProxy-reportSevere neuropsychiatric symptomsNeuropsychiatric subsyndromesHealth factorsSelf-reports of emotion regulationLinear regression modelsPWDSelf-reportEmotion regulation capabilitiesEmotion regulation strategiesGoal-directed behaviorDementiaRegression modelsDomains of difficultyInterpersonal effectsEmotional awarenessTrajectories of Purpose in Life Across Diagnosis of Alzheimer's Disease or Related Dementias in Older Adulthood.
Mroz E, Collette T, Keefe K, Gil H, Monin J, Sharma S. Trajectories of Purpose in Life Across Diagnosis of Alzheimer's Disease or Related Dementias in Older Adulthood. Journal Of Aging And Health 2024, 8982643241257559. PMID: 38816276, DOI: 10.1177/08982643241257559.Peer-Reviewed Original ResearchADRD diagnosisNational Health and Aging Trends StudyDiagnosis of Alzheimer's diseaseSense of purposeDiagnosis groupsChronic illness diagnosisLate-life healthPurpose in lifeTrends StudyIllness diagnosisADRDOlder adultsRelated dementiaLimited researchDecreased senseAlzheimer's diseaseComparison groupClinical antecedentsPsychological resourcesDementiaOlder-adulthoodDiagnosis experimentsHeart disease diagnosisLongitudinal decreaseDiagnosisClinicians' perceptions of care partner involvement in health priorities identification for people living with dementia
Monin J, Mroz E, Johnson K, Samper‐Ternent R, Vu T, Tinetti M. Clinicians' perceptions of care partner involvement in health priorities identification for people living with dementia. Journal Of The American Geriatrics Society 2024, 72: 2604-2606. PMID: 38709115, PMCID: PMC11323148, DOI: 10.1111/jgs.18937.Peer-Reviewed Original Research“WOOP is my safe haven”: A qualitative feasibility and acceptability study of the Wish Outcome Obstacle Plan (WOOP) intervention for spouses of people living with early‐stage dementia
Mroz E, Schwartz A, Valeika S, Oettingen G, Marottoli R, David D, Hagaman A, Fedus D, Monin J. “WOOP is my safe haven”: A qualitative feasibility and acceptability study of the Wish Outcome Obstacle Plan (WOOP) intervention for spouses of people living with early‐stage dementia. International Journal Of Geriatric Psychiatry 2024, 39: e6092. PMID: 38687142, PMCID: PMC11448666, DOI: 10.1002/gps.6092.Peer-Reviewed Original ResearchConceptsSpouses of peopleLongitudinal semi-structured interviewsEarly-stage dementiaCodebook thematic analysisSemi-structured interviewsCare partnersIntervention deliveryBaseline strengthThematic analysisMeta-themesQualitative studyBehavioral interventionsAreas of improvementDementiaQualitative feasibilityMental exerciseInterventionSpousesWell-beingEmotional stressorsIntervention mechanismsParticipantsAcceptability studyWishesPeople
2023
PREPARING “EXPERIENCED” CAREGIVERS FOR FUTURE CARE: PERSPECTIVES FROM FORMER CAREGIVERS OF PARENTS WITH DEMENTIA
Mroz E, Piechota A, Ali T, Matta-Singh T, Abboud A, Sharma S, Fried T, Monin J. PREPARING “EXPERIENCED” CAREGIVERS FOR FUTURE CARE: PERSPECTIVES FROM FORMER CAREGIVERS OF PARENTS WITH DEMENTIA. Innovation In Aging 2023, 7: 414-415. PMCID: PMC10735791, DOI: 10.1093/geroni/igad104.1370.Peer-Reviewed Original ResearchFormer caregiversCaregiving roleNegative psychological consequencesPast experienceConsensual qualitative researchAdult child caregiversCare partnersPsychological consequencesDiminished senseDiminished confidencePositive senseNegative consequencesPersonal narrativesCaregiversParentsQualitative studyCumulative advantageConfidenceDementiaExperienceQualitative researchSkillsCare rolesTheory techniquesAdulthoodPERSONS LIVING WITH DEMENTIA AND MULTIPLE CHRONIC CONDITIONS IDENTIFYING HEALTH PRIORITIES WITH CARE PARTNERS
Vu T, Mroz E, Hernandez-Bigos K, Chow D, Samper-Ternent R, Johnson K, Tinetti M, Monin J. PERSONS LIVING WITH DEMENTIA AND MULTIPLE CHRONIC CONDITIONS IDENTIFYING HEALTH PRIORITIES WITH CARE PARTNERS. Innovation In Aging 2023, 7: 416-416. PMCID: PMC10736172, DOI: 10.1093/geroni/igad104.1374.Peer-Reviewed Original ResearchMultiple chronic conditionsHealth care prioritiesCare partnersChronic conditionsHealth priorityCare prioritiesPilot studyYears of ageEvidence-based toolsPatient prioritiesOlder personsPLWDCare decisionsHealth goalsCare recipientsHealthcare goalsOlder adultsDementiaOpen-ended questionsAgeThematic analysisPERSONS LIVINGEarly stagesYearsRecipientsSELF- AND PROXY-REPORTED MET NEEDS IN PERSONS WITH DEMENTIA ARE ASSOCIATIED WITH A LOWER HEALTH-RELATED QUALITY OF LIFE
Wammes J, Laws H, van Hout H, Vroomen J, Monin J. SELF- AND PROXY-REPORTED MET NEEDS IN PERSONS WITH DEMENTIA ARE ASSOCIATIED WITH A LOWER HEALTH-RELATED QUALITY OF LIFE. Innovation In Aging 2023, 7: 792-792. PMCID: PMC10739274, DOI: 10.1093/geroni/igad104.2557.Peer-Reviewed Original ResearchRELATIONSHIP-TYPE DIFFERENCES IN SUPPORT SEEKING AND MENTAL HEALTH FOR ADULT CHILDREN OF PARENTS WITH MEMORY LOSS
Gad D, Monin J. RELATIONSHIP-TYPE DIFFERENCES IN SUPPORT SEEKING AND MENTAL HEALTH FOR ADULT CHILDREN OF PARENTS WITH MEMORY LOSS. Innovation In Aging 2023, 7: 791-791. PMCID: PMC10738518, DOI: 10.1093/geroni/igad104.2554.Peer-Reviewed Original ResearchRelationship‐typeMemory lossMental healthAdult childrenTangible supportCut-off scoreEarly stages of dementiaZarit Burden InventoryNegative affectStages of dementiaSelf-report surveyDepressive symptomsSupport seekingBurden InventoryCaregiving journeyDyadic interventionsYears of ageDyadsPANASGroup meetingsChildrenAbstract ResearchParentsDementiaDaughter-motherPersonal Health Planning in Adult-Child Former Caregivers of Parents Living With Dementia
Mroz E, Ali T, Piechota A, Matta-Singh T, Abboud A, Sharma S, Monin J, Fried T. Personal Health Planning in Adult-Child Former Caregivers of Parents Living With Dementia. American Journal Of Health Promotion 2023, 38: 402-411. PMID: 37770019, PMCID: PMC10922991, DOI: 10.1177/08901171231204670.Peer-Reviewed Original ResearchFormer caregiversPersonal health planningDiverse teamsSemi-structured interviewsPrimary caregiversHealthy agingHealth planningInterview recordingsDementia engageCaregiversParentsInterview promptsPessimistic viewQualitative studyResearch domainHealth planning activitiesDementia 3DementiaAnxietyFeelingsParticipantsPromptsHealthEngageInterventionFormer dementia caregivers’ high and low point narratives: what is remembered, and how is it shared?
Matta-Singh T, Sharma S, Ali T, Piechota A, Abboud A, Fried T, Monin J, Mroz E. Former dementia caregivers’ high and low point narratives: what is remembered, and how is it shared? Aging & Mental Health 2023, 28: 427-435. PMID: 37712688, PMCID: PMC10922763, DOI: 10.1080/13607863.2023.2256252.Peer-Reviewed Original ResearchSelf- reported and informal caregiver proxy-reported met needs in persons living with dementia are associated with lower health-related quality of life: a dyadic, cross-sectional study
Wammes J, Laws H, van Hout H, Vroomen J, Monin J. Self- reported and informal caregiver proxy-reported met needs in persons living with dementia are associated with lower health-related quality of life: a dyadic, cross-sectional study. Aging & Mental Health 2023, 28: 422-426. PMID: 37622184, DOI: 10.1080/13607863.2023.2248047.Peer-Reviewed Original ResearchNavigating the COVID‐19 pandemic together: Discussions between persons with early‐stage dementia and their adult children
Ali T, Mroz E, Valeika S, Mendez E, Cohen A, Monin J. Navigating the COVID‐19 pandemic together: Discussions between persons with early‐stage dementia and their adult children. International Journal Of Geriatric Psychiatry 2023, 38: e5905. PMID: 36929513, PMCID: PMC10590087, DOI: 10.1002/gps.5905.Peer-Reviewed Original ResearchPersons living with dementia and multiple chronic conditions identifying health priorities with care partners
Vu T, Mroz E, Hernandez‐Bigos K, Chow D, Ternent R, Johnson K, Tinetti M, Monin J. Persons living with dementia and multiple chronic conditions identifying health priorities with care partners. Journal Of The American Geriatrics Society 2023, 71: 2005-2008. PMID: 36705432, PMCID: PMC10836201, DOI: 10.1111/jgs.18257.Peer-Reviewed Original Research
2022
REFLECTION AND INTENTION: END-OF-LIFE PLANNING IN FORMER CAREGIVERS OF PARENTS LIVING WITH DEMENTIA
Mroz E, Matta T, Ali T, Piechota A, Abboud A, Sharma S, Monin J, Fried T. REFLECTION AND INTENTION: END-OF-LIFE PLANNING IN FORMER CAREGIVERS OF PARENTS LIVING WITH DEMENTIA. Innovation In Aging 2022, 6: 210-211. PMCID: PMC9765643, DOI: 10.1093/geroni/igac059.840.Peer-Reviewed Original ResearchDetermining best‐in‐practice dyadic discrete choice experiments to enable persons with dementia and informal caregivers to participate in health care decision‐making: a feasibility study
Wammes J, Swait J, Labrie N, Monin J, de Bekker Grob E, Vroomen J. Determining best‐in‐practice dyadic discrete choice experiments to enable persons with dementia and informal caregivers to participate in health care decision‐making: a feasibility study. Alzheimer's & Dementia 2022, 18 DOI: 10.1002/alz.064279.Peer-Reviewed Original ResearchChoice taskTask complexityChoice task complexityIndividual cognitive limitationsInformal caregiversJoint decision-making processCognitive limitationsElicitation taskCognitive screeningCognitive burdenSevere cognitive impairmentCognitive statusHeuristic decisionCognitive impairmentTaskChoice motivationsCaregiversDecision-making processJoint decisionDementiaPersonsGreater empowermentMajority of personsASSOCIATIONS BETWEEN HEALTH AND POSITIVE AFFECT IN SPOUSAL DEMENTIA CARE DYADS
Monin J, Johnson K. ASSOCIATIONS BETWEEN HEALTH AND POSITIVE AFFECT IN SPOUSAL DEMENTIA CARE DYADS. Innovation In Aging 2022, 6: 400-400. PMCID: PMC9770728, DOI: 10.1093/geroni/igac059.1574.Peer-Reviewed Original ResearchDementia care dyadsQuality of lifeCare dyadsActivities of daily living needsHealth indicatorsMultiple indicators of healthPositive affectEarly stages of dementiaDaily living needsStress reduction interventionsStages of dementiaIndicators of healthMultiple health indicatorsRandomized controlled trialsReduction interventionsPredictor of positive affectDaily lifeBaseline dataDementiaLiving needsBehavioral symptomsActor effectsPartner effectsAffectMultiple indicators
2021
Caregiving Patterns and Their Association with Caregiving Burden and Gains
Ali T, McAvay G, Monin J, Gill T. Caregiving Patterns and Their Association with Caregiving Burden and Gains. Innovation In Aging 2021, 5: 1004-1004. PMCID: PMC8969481, DOI: 10.1093/geroni/igab046.3567.Peer-Reviewed Original ResearchDementia careHealth equityAfrican AmericansCosts associated with dementiaAssociated with caregiver burdenImpact of dementiaPrevalence of dementiaHealth services researchNon-Hispanic whitesLong-term careCommunity-based organizationsEthnically diverse communitiesCaregiver burdenDementia preventionReduce disparitiesHealth systemServices researchAbstract DementiaCaregiving patternsDementiaHealth-careLong-standing inequitiesCareInequitable impactsHealth