Qualitative evaluation of meaningful change in Dravet syndrome as measured by the Vineland-3: Caregiver and clinician perspectives
Condon C, Parkerson K, Dandurand A, Wang F, Howse C, Mayhew M, Whyman S, Ventola P, Anne Meskis M, Sullivan J, Knupp K, Gater A, Mahon-Smith A. Qualitative evaluation of meaningful change in Dravet syndrome as measured by the Vineland-3: Caregiver and clinician perspectives. Epilepsy & Behavior 2025, 167: 110381. PMID: 40188607, DOI: 10.1016/j.yebeh.2025.110381.Peer-Reviewed Original ResearchConceptsVineland-3Presence of autism spectrum disorderVineland Adaptive Behavior ScalesAdaptive Behavior ScalesAutism spectrum disorderDravet syndromeCaregivers of children/adolescentsDisruptive behaviorSpectrum disorderBehavior ScaleClinical expertsClinically meaningful changeAdaptive behaviorReceptive communicationImpaired communicationThird editionAnchor-based methodsSemi-structured interviewsTreatment-related benefitsCaregiver feedbackClinician perspectivesMeaningful changePatient independenceCaregiversQualitative study
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