2025
Talking with adolescent and young adult cancer survivors about health after cancer: A review and communication guide for clinicians
Smith S, Heathcote L, John J, Zimmerman J, Benedict C, Rosenberg A, Schapira L. Talking with adolescent and young adult cancer survivors about health after cancer: A review and communication guide for clinicians. CA A Cancer Journal For Clinicians 2025 PMID: 40901765, DOI: 10.3322/caac.70030.Peer-Reviewed Original ResearchHealth care transitionCare transitionsAYA survivorsCancer careClinician communicationFear of cancer recurrenceYoung adult cancer survivorsCancer survivors' needsPediatric to adult careAdult cancer survivorsSurvivorship careAYA engagementCancer survivorsSurvivors' needsAYA yearsCommunication guideSelf-ManagementAdult careAYACareVulnerable populationsAdult settingHealthSurvivorsYoung adults
2024
Adoption as an Alternative Family-Building Strategy: Perceptions of Female, Young Adult Cancer Survivors Receiving Gonadotoxic Treatments
Dorfman C, Stalls J, Arrato N, Shelby R, Woodward J, Acharya K, Davidson B, Wagner L, Corbett C, Greenup R. Adoption as an Alternative Family-Building Strategy: Perceptions of Female, Young Adult Cancer Survivors Receiving Gonadotoxic Treatments. Journal Of Adolescent And Young Adult Oncology 2024, 13: 708-713. PMID: 38588577, PMCID: PMC11322616, DOI: 10.1089/jayao.2023.0143.Peer-Reviewed Original ResearchFamily-building optionsFertility-related distressPerception of femalesCancer survivorsYoung adult cancer survivorsSurvivors' viewsFemale survivorsFertility impactFertility preservationAdult cancer survivorsUnique barriersSurvivors' perspectivesGonadotoxic treatmentYoung adultsSemistructured interviewsYA survivorsDecision-makingAdoptionSurvivors
2023
Neuropsychiatric complications and associated management in adolescent and young adult cancer survivors: An All of Us study
Agapito I, Ng D, Milam J, Ziogas A, Anton‐Culver H, Chan A. Neuropsychiatric complications and associated management in adolescent and young adult cancer survivors: An All of Us study. Cancer Medicine 2023, 12: 20953-20963. PMID: 37902258, PMCID: PMC10709746, DOI: 10.1002/cam4.6641.Peer-Reviewed Original ResearchConceptsFollow-up careUs (AoU) Research ProgramYoung adult cancer survivorsRates of follow-up careCancer diagnosisAdult cancer survivorsChronic fatigueYoung adult cancerElectronic health recordsTreatment utilizationNon-cancer individualsCancer survivorsManagement of neuropathyHealth recordsUnited StatesMemory lossAYACCancer casesNeuropsychiatric complicationsCareFrequent follow-up careAdult cancersSurvivorsDiagnosis of neuropathyYoung adultsFemale reproductive health in pediatric, adolescent, and young adult cancer survivors
Hoefgen H, Benoit J, Chan S, Jayasinghe Y, Lustberg M, Pohl V, Saraf A, Schmidt D, Appiah L. Female reproductive health in pediatric, adolescent, and young adult cancer survivors. Pediatric Blood & Cancer 2023, 70: e29170. PMID: 37381166, DOI: 10.1002/pbc.29170.Peer-Reviewed Original ResearchConceptsQuality of lifeGenital graftHost diseaseCancer survivorsLate effectsReproductive healthHematopoietic stem cell transplantCancer treatmentYoung adult cancer survivorsHormone replacement therapyCervical cancer screeningStem cell transplantFemale reproductive healthAdult cancer survivorsLarge cohort studyLikelihood of pregnancyYoung Adult Cancer SurvivorshipAdult cancer survivorshipGynecologic outcomesVaginal injuryCohort studyCell transplantReplacement therapyCancer careCancer screeningLong-term survival and second malignant tumor prediction in pediatric, adolescent, and young adult cancer survivors using Random Survival Forests: a SEER analysis
Zhang I, Hart G, Qin B, Deng J. Long-term survival and second malignant tumor prediction in pediatric, adolescent, and young adult cancer survivors using Random Survival Forests: a SEER analysis. Scientific Reports 2023, 13: 1911. PMID: 36732358, PMCID: PMC9894907, DOI: 10.1038/s41598-023-29167-x.Peer-Reviewed Original ResearchConceptsYoung adult cancer survivorsAdult cancer survivorsRandom survival forestCancer survivorsFirst diagnosisFirst tumor diagnosisHigh-risk individualsProportional hazards modelAverage C-indexU.S. Surveillance EpidemiologyLong-term survivalTime-dependent areaTime-dependent AUCPotential clinical valueSurvival analysis studyMalignancy prediction modelSurvival forestsSEER analysisSecond malignanciesSurveillance EpidemiologySecond tumorC-indexConcordance indexClinical valuePhysician burden
2022
Effect of chemotherapy on the uterus of young adult cancer survivors
Garg D, Hodgman M, Reil S, Lomo L, Aston K, Hill J, Johnstone E, Jenkins T, Letourneau J. Effect of chemotherapy on the uterus of young adult cancer survivors. F&S Reports 2022, 3: 198-203. PMID: 36212573, PMCID: PMC9532891, DOI: 10.1016/j.xfre.2022.05.008.Peer-Reviewed Original ResearchEndometrial thicknessChemotherapy exposureEndometrial biopsyUterine volumeCancer survivorsHodgkin's lymphomaMenstrual cycleDeoxyribonucleic acid (DNA) methylation patternsCross-sectional pilot studyYoung adult cancer survivorsImpact of chemotherapyRibonucleic acid expression levelsEffect of chemotherapyAdult cancer survivorsGeneral population controlsLate proliferative phaseMedian uterine volumeUniversity fertility clinicPelvic radiationEndometrial histologyPelvic ultrasoundCervical cancerFalse-positive resultsMenstruating womenStudy visit
2021
Perspectives of adolescent and young adult cancer survivors: review of community-based discussion boards
Smith A, Fogarasi M, Lustberg MB, Nekhlyudov L. Perspectives of adolescent and young adult cancer survivors: review of community-based discussion boards. Journal Of Cancer Survivorship 2021, 16: 1079-1089. PMID: 34471949, DOI: 10.1007/s11764-021-01098-4.Peer-Reviewed Original ResearchConceptsYoung adult cancer survivorsAYA cancer survivorsAdult cancer survivorsAYA survivorsCancer survivorsFamily/friendsPatient populationMethodsUsing qualitative methodsYoung cancer survivorsNon-family relationshipsPsychological challengesHealthcare delivery domainsAmerican Cancer Society Cancer Survivors NetworkSurvivors' concernsPsychosocial concernsPsychosocial effectsCancer survivorsInterventionsMultiple domainsCancer Survivors NetworkPsychosocial issuesInterpersonal topicsSurvivors NetworkMajority of postsNew cancersCare coordination
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