2024
“WOOP is my safe haven”: A qualitative feasibility and acceptability study of the Wish Outcome Obstacle Plan (WOOP) intervention for spouses of people living with early‐stage dementia
Mroz E, Schwartz A, Valeika S, Oettingen G, Marottoli R, David D, Hagaman A, Fedus D, Monin J. “WOOP is my safe haven”: A qualitative feasibility and acceptability study of the Wish Outcome Obstacle Plan (WOOP) intervention for spouses of people living with early‐stage dementia. International Journal Of Geriatric Psychiatry 2024, 39: e6092. PMID: 38687142, PMCID: PMC11448666, DOI: 10.1002/gps.6092.Peer-Reviewed Original ResearchConceptsSpouses of peopleLongitudinal semi-structured interviewsEarly-stage dementiaCodebook thematic analysisSemi-structured interviewsCare partnersIntervention deliveryBaseline strengthThematic analysisMeta-themesQualitative studyBehavioral interventionsAreas of improvementDementiaQualitative feasibilityMental exerciseInterventionSpousesWell-beingEmotional stressorsIntervention mechanismsParticipantsAcceptability studyWishesPeople‘If I don’t take care of me, then I can’t be there for others:’ a qualitative study of caregiving relationships among older women living with HIV
Vu T, Quinn M, Womack J, Monin J. ‘If I don’t take care of me, then I can’t be there for others:’ a qualitative study of caregiving relationships among older women living with HIV. Aging & Mental Health 2024, 28: 1304-1315. PMID: 38327025, DOI: 10.1080/13607863.2024.2313729.Peer-Reviewed Original ResearchCare networkHIV managementOlder womenPublic health programsCommunity-based organizationsPopulation of womenCare recipientsHealthcare discussionsOWLHHealth programsThematic analysisParticipants 1Qualitative studyCaregiversSemi-structuredCareEducational effortsHIVSources of meaningWomenParticipantsPerformance contentHealthcareYearsHealth
2023
PREPARING “EXPERIENCED” CAREGIVERS FOR FUTURE CARE: PERSPECTIVES FROM FORMER CAREGIVERS OF PARENTS WITH DEMENTIA
Mroz E, Piechota A, Ali T, Matta-Singh T, Abboud A, Sharma S, Fried T, Monin J. PREPARING “EXPERIENCED” CAREGIVERS FOR FUTURE CARE: PERSPECTIVES FROM FORMER CAREGIVERS OF PARENTS WITH DEMENTIA. Innovation In Aging 2023, 7: 414-415. PMCID: PMC10735791, DOI: 10.1093/geroni/igad104.1370.Peer-Reviewed Original ResearchFormer caregiversCaregiving roleNegative psychological consequencesPast experienceConsensual qualitative researchAdult child caregiversCare partnersPsychological consequencesDiminished senseDiminished confidencePositive senseNegative consequencesPersonal narrativesCaregiversParentsQualitative studyCumulative advantageConfidenceDementiaExperienceQualitative researchSkillsCare rolesTheory techniquesAdulthoodEMPOWERING AND ADDRESSING AGE-RELATED CONCERNS AMONG OLDER WOMEN LIVING WITH HIV
Vu T, Quinn M, Valeika S, Monin J. EMPOWERING AND ADDRESSING AGE-RELATED CONCERNS AMONG OLDER WOMEN LIVING WITH HIV. Innovation In Aging 2023, 7: 136-136. PMCID: PMC10736168, DOI: 10.1093/geroni/igad104.0446.Peer-Reviewed Original ResearchSelf-careOlder womenCommunity support groupsUnique psychosocial challengesGrounded theory approachOne-on-oneIn-depth phone interviewsCare journeyHIV stigmaInternalized stigmaTranscribed verbatimCaregiver networkOWLHPsychosocial challengesCaregiving responsibilitiesHIV preventionSupport groupsLong-term effects of treatmentHIV clinicPhone interviewsPhysical burdenQualitative studyPsychosocial stressorsThematic codingStructural interventionsPersonal Health Planning in Adult-Child Former Caregivers of Parents Living With Dementia
Mroz E, Ali T, Piechota A, Matta-Singh T, Abboud A, Sharma S, Monin J, Fried T. Personal Health Planning in Adult-Child Former Caregivers of Parents Living With Dementia. American Journal Of Health Promotion 2023, 38: 402-411. PMID: 37770019, PMCID: PMC10922991, DOI: 10.1177/08901171231204670.Peer-Reviewed Original ResearchFormer caregiversPersonal health planningDiverse teamsSemi-structured interviewsPrimary caregiversHealthy agingHealth planningInterview recordingsDementia engageCaregiversParentsInterview promptsPessimistic viewQualitative studyResearch domainHealth planning activitiesDementia 3DementiaAnxietyFeelingsParticipantsPromptsHealthEngageInterventionNavigating the COVID‐19 pandemic together: Discussions between persons with early‐stage dementia and their adult children
Ali T, Mroz E, Valeika S, Mendez E, Cohen A, Monin J. Navigating the COVID‐19 pandemic together: Discussions between persons with early‐stage dementia and their adult children. International Journal Of Geriatric Psychiatry 2023, 38: e5905. PMID: 36929513, PMCID: PMC10590087, DOI: 10.1002/gps.5905.Peer-Reviewed Original Research
2022
263 Emergency Department Care Transition Barriers: A Qualitative Study of Care Partners of Older Adults With Cognitive Impairment
Gettel C, Serina P, Uzamere I, Hernandez-Bigos K, Cohen A, Venkatesh A, Monin J, Feder S, Fried T, Hwang U. 263 Emergency Department Care Transition Barriers: A Qualitative Study of Care Partners of Older Adults With Cognitive Impairment. Annals Of Emergency Medicine 2022, 80: s115. DOI: 10.1016/j.annemergmed.2022.08.290.Peer-Reviewed Original Research