2023
Transgender People’s Experiences Sharing Information With Clinicians: A Focus Group–Based Qualitative Study
Alpert A, Mehringer J, Orta S, Hernandez T, Redwood E, Rivers L, Manzano C, Ruddick R, Adams S, Sevelius J, Belanger E, Operario D, Griggs J. Transgender People’s Experiences Sharing Information With Clinicians: A Focus Group–Based Qualitative Study. The Annals Of Family Medicine 2023, 21: 408-415. PMID: 37748898, PMCID: PMC10519763, DOI: 10.1370/afm.3010.Peer-Reviewed Original ResearchConceptsCommunity-based participatory research approachFocus groupsSafety of clinical careTransgender peopleFamily medicine cliniciansInterpretive description methodologyParticipatory research approachQualitative focus groupsData collection toolSuboptimal careTransgender people's experiencesSubstandard careHealth informationClinical encountersDescriptive methodologyPeer debriefingClinical careClinicians' questionsQualitative studyPurposive samplingMedical cultureCareCommunity membersTransgender adultsMedical systemPartnering With Patients and Caregivers in Cancer Care: Lessons From Experiences With Transgender, Hispanic, and Pediatric Populations.
Katz N, Alpert A, Aristizabal M, McDaniels-Davidson C, Sacks B, Sanft T, Chou C, Martinez M. Partnering With Patients and Caregivers in Cancer Care: Lessons From Experiences With Transgender, Hispanic, and Pediatric Populations. American Society Of Clinical Oncology Educational Book 2023, 43: e397264. PMID: 37200592, DOI: 10.1200/edbk_397264.Peer-Reviewed Original ResearchConceptsPediatric populationOncology careFamily-centered careQuality of carePatient populationCancer careCancer morbidityOncology cliniciansClinical trialsEffective patientPatientsCare provisionCancer diagnosisCareHealth careCaregiversCertain populationsUnequal burdenResearch participationCliniciansInequitable accessIndividual needsPopulationMorbidityMortalityThe Value and Process of Inclusion: Using Sensitive, Respectful, and Inclusive Language and Images in NCCN Content.
Freedman-Cass D, Fischer T, Alpert A, Obedin-Maliver J, Kunz P, Koh W, Carlson R. The Value and Process of Inclusion: Using Sensitive, Respectful, and Inclusive Language and Images in NCCN Content. Journal Of The National Comprehensive Cancer Network 2023, 21: 434-441. PMID: 37156485, DOI: 10.6004/jnccn.2023.7025.Peer-Reviewed Original ResearchConceptsCancer careEquitable cancer careEffective cancer careNCCN Clinical Practice GuidelinesClinical practice guidelinesOptimal oncology careRepresentation of diverse populationsCancer informationOncology careAnti-fat biasPractice guidelinesCareDiverse populationsNCCN GuidelinesGoals of equityNCCNHigh-qualityGuidelinesInclusionSexual orientationInclusive languagePatientsNonstigmatizingIndividualsProfessional content
2021
Trainings needs of allied health professionals caring for sexual and gender minority adolescents and young adults with cancer: A qualitative analysis.
Alpert A, Gampa V, Vadaparampil S, Quinn G. Trainings needs of allied health professionals caring for sexual and gender minority adolescents and young adults with cancer: A qualitative analysis. Journal Of Clinical Oncology 2021, 39: e18532-e18532. DOI: 10.1200/jco.2021.39.15_suppl.e18532.Peer-Reviewed Original ResearchAllied health professionalsHealth professionalsOpen-ended questionsAYA cancer careQuality of careInterpretive description methodologyReproductive health needsYoung adultsReproductive health counselingDecrease stigmaCancer careThematic saturationQualitative survey responsesHealth needsEducational interventionPatient interactionsHealth counselingDescriptive methodologyInterrater reliabilityElectronic surveyQualitative itemsRelevant educationTraining needsCareSurvey responsesI’m not putting on that floral gown: Enforcement and resistance of gender expectations for transgender people with cancer
Alpert A, Gampa V, Lytle M, Manzano C, Ruddick R, Poteat T, Quinn G, Kamen C. I’m not putting on that floral gown: Enforcement and resistance of gender expectations for transgender people with cancer. Patient Education And Counseling 2021, 104: 2552-2558. PMID: 33745786, PMCID: PMC9320277, DOI: 10.1016/j.pec.2021.03.007.Peer-Reviewed Original ResearchConceptsOncology careGroup interviewsTransgender peopleInterpretive description approachAnalyzed verbatim transcriptsExperiences of transgender peopleCancer careAssess barriersCare accessVerbatim transcriptsCancer objectivesDecrease barriersPeer debriefingMember checkingPatient autonomyImpact transgender peopleGender expectationsCareOncology spaceTreating peopleDescriptive approachPhysiciansThemesCliniciansInterviews