2024
MM-416 Impact of Social Needs and Identity Experiences on the Burden of Illness for Patients with Multiple Myeloma: A Mixed-Methods Study
Neparidze N, Godara A, Godara D, Le H, Fixler K, Shea L, Everson S, Brittle C, Brunisholz K. MM-416 Impact of Social Needs and Identity Experiences on the Burden of Illness for Patients with Multiple Myeloma: A Mixed-Methods Study. Clinical Lymphoma Myeloma & Leukemia 2024, 24: s555-s556. DOI: 10.1016/s2152-2650(24)01678-1.Peer-Reviewed Original ResearchImpact of social needsMixed-methods studyPatient experienceSocial needsImprove patient experienceChronic health conditionsMental health burdenAssess sociodemographic characteristicsSemi-structured group discussionsFocus group participantsMental health concernsLack of insuranceBurden of illnessFear of relapseGroup of US patientsCare journeyMultiple myelomaHealth outcomesMental healthSocial supportSociodemographic characteristicsFocus groupsHealth conditionsGroup participantsMixed-methodsImpact of Social Needs and Identity Experiences on the Burden of Illness in Patients with Multiple Myeloma: A Mixed-Methods Study
Neparidze N, Godara A, Lin D, Le H, Fixler K, Shea L, Everson S, Brittle C, Brunisholz K. Impact of Social Needs and Identity Experiences on the Burden of Illness in Patients with Multiple Myeloma: A Mixed-Methods Study. Healthcare 2024, 12: 1660. PMID: 39201218, PMCID: PMC11353550, DOI: 10.3390/healthcare12161660.Peer-Reviewed Original ResearchMixed-methods studyImpact of social needsHealth burdenChronic health conditionsMental health burdenPhysical health burdenFocus group participantsMental health concernsLack of insuranceBurden of illnessSocial needsCare journeyHealth outcomesDisease journeySocial supportFocus groupsHealth conditionsGroup participantsLack of knowledgeMultiple myelomaUnmet needsMixed-methodsFinancial concernsHigher anxietyHealth concern
2023
EMPOWERING AND ADDRESSING AGE-RELATED CONCERNS AMONG OLDER WOMEN LIVING WITH HIV
Vu T, Quinn M, Valeika S, Monin J. EMPOWERING AND ADDRESSING AGE-RELATED CONCERNS AMONG OLDER WOMEN LIVING WITH HIV. Innovation In Aging 2023, 7: 136-136. PMCID: PMC10736168, DOI: 10.1093/geroni/igad104.0446.Peer-Reviewed Original ResearchSelf-CareOlder womenCommunity support groupsUnique psychosocial challengesGrounded theory approachOne-on-oneIn-depth phone interviewsCare journeyHIV stigmaInternalized stigmaTranscribed verbatimCaregiver networkOWLHPsychosocial challengesCaregiving responsibilitiesHIV preventionSupport groupsLong-term effects of treatmentHIV clinicPhone interviewsPhysical burdenQualitative studyPsychosocial stressorsThematic codingStructural interventions
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