2024
Communication Technology Improves Staff, Resident, and Family Interactions in Skilled Nursing Homes Post COVID-19 Restrictions
Vu T, Frye N, Wallhagen M, Marottoli R, Monin J. Communication Technology Improves Staff, Resident, and Family Interactions in Skilled Nursing Homes Post COVID-19 Restrictions. Journal Of The American Medical Directors Association 2024, 25: 105260. PMID: 39276798, DOI: 10.1016/j.jamda.2024.105260.Peer-Reviewed Original ResearchAssociations Between Attachment and Depressive Symptoms Among Older Adults Living With Early-Stage Cognitive Impairment and Their Adult Children
Monin J, Shah M, Chang W, Feeney B, Birditt K, Gaugler J, Vranceanu A, Marottoli R. Associations Between Attachment and Depressive Symptoms Among Older Adults Living With Early-Stage Cognitive Impairment and Their Adult Children. The Journals Of Gerontology Series B 2024, 79: gbae137. PMID: 39129484, PMCID: PMC11407828, DOI: 10.1093/geronb/gbae137.Peer-Reviewed Original ResearchAssociated with greater depressive symptomsGreater depressive symptomsDepressive symptomsAttachment anxietyActor effectsActor Partner Interdependence ModelRomantic attachment anxietyOlder adultsParent-child dyadsEarly-stage cognitive impairmentRomantic avoidanceAttachment schemasEarly-stage dementiaAttachment variablesAttachment theoryRomantic anxietyInterdependence modelPsychosocial interventionsGeneral avoidanceDyad membersAnxietyCognitive impairmentAdult ChildrenSelf-reportParent-childDaily care hours among caregivers of older emergency department patients with dementia and undiagnosed cognitive impairment
Galske J, Chera T, Hwang U, Monin J, Venkatesh A, Lam K, Leggett A, Gettel C. Daily care hours among caregivers of older emergency department patients with dementia and undiagnosed cognitive impairment. Journal Of The American Geriatrics Society 2024, 72: 3261-3264. PMID: 38970304, PMCID: PMC11461120, DOI: 10.1111/jgs.19062.Peer-Reviewed Original ResearchEmotion regulation in people living with dementia and their spouses: the role of neuropsychiatric symptoms
Lou Y, Vu T, Piechota A, Monin J. Emotion regulation in people living with dementia and their spouses: the role of neuropsychiatric symptoms. Aging & Mental Health 2024, 28: 1733-1740. PMID: 38940472, PMCID: PMC11560677, DOI: 10.1080/13607863.2024.2367038.Peer-Reviewed Original ResearchPwD neuropsychiatric symptomsCare partnersNeuropsychiatric symptomsSeverity of neuropsychiatric symptomsEarly stages of dementiaEmotion regulationSelf-reported difficultyStages of dementiaMultivariate linear regression modelProxy-reportSevere neuropsychiatric symptomsNeuropsychiatric subsyndromesHealth factorsSelf-reports of emotion regulationLinear regression modelsPWDSelf-reportEmotion regulation capabilitiesEmotion regulation strategiesGoal-directed behaviorDementiaRegression modelsDomains of difficultyInterpersonal effectsEmotional awarenessTrajectories of Purpose in Life Across Diagnosis of Alzheimer's Disease or Related Dementias in Older Adulthood.
Mroz E, Collette T, Keefe K, Gil H, Monin J, Sharma S. Trajectories of Purpose in Life Across Diagnosis of Alzheimer's Disease or Related Dementias in Older Adulthood. Journal Of Aging And Health 2024, 8982643241257559. PMID: 38816276, DOI: 10.1177/08982643241257559.Peer-Reviewed Original ResearchADRD diagnosisNational Health and Aging Trends StudyDiagnosis of Alzheimer's diseaseSense of purposeDiagnosis groupsChronic illness diagnosisLate-life healthPurpose in lifeTrends StudyIllness diagnosisADRDOlder adultsRelated dementiaLimited researchDecreased senseAlzheimer's diseaseComparison groupClinical antecedentsPsychological resourcesDementiaOlder-adulthoodDiagnosis experimentsHeart disease diagnosisLongitudinal decreaseDiagnosisPositive affect expression during a play interaction and psychological health among older adults living with cognitive impairment and their adult children
Gad D, Wells J, Piechota A, Feeney B, Birditt K, Marottoli R, Gaugler J, Vranceanu A, Monin J. Positive affect expression during a play interaction and psychological health among older adults living with cognitive impairment and their adult children. Aging & Mental Health 2024, ahead-of-print: 1-9. PMID: 38795364, DOI: 10.1080/13607863.2024.2358096.Peer-Reviewed Original ResearchMental health difficultiesPositive affective expressionPositive affectDepressive symptomsHealth difficultiesCognitive impairmentDyad membersActor Partner Interdependence ModelAssociated with lower depressive symptomsPsychological healthIndicators of psychological healthAssociated with women's mental healthMental healthAffecting expressionLower depressive symptomsParent-child relationshipMen's mental healthAdult childrenWomen's mental healthActor effectsInterdependence modelPsychosocial interventionsTrained codersSelf-reportAffectClinicians' perceptions of care partner involvement in health priorities identification for people living with dementia
Monin J, Mroz E, Johnson K, Samper‐Ternent R, Vu T, Tinetti M. Clinicians' perceptions of care partner involvement in health priorities identification for people living with dementia. Journal Of The American Geriatrics Society 2024, 72: 2604-2606. PMID: 38709115, PMCID: PMC11323148, DOI: 10.1111/jgs.18937.Peer-Reviewed Original Research“WOOP is my safe haven”: A qualitative feasibility and acceptability study of the Wish Outcome Obstacle Plan (WOOP) intervention for spouses of people living with early‐stage dementia
Mroz E, Schwartz A, Valeika S, Oettingen G, Marottoli R, David D, Hagaman A, Fedus D, Monin J. “WOOP is my safe haven”: A qualitative feasibility and acceptability study of the Wish Outcome Obstacle Plan (WOOP) intervention for spouses of people living with early‐stage dementia. International Journal Of Geriatric Psychiatry 2024, 39: e6092. PMID: 38687142, PMCID: PMC11448666, DOI: 10.1002/gps.6092.Peer-Reviewed Original ResearchConceptsSpouses of peopleLongitudinal semi-structured interviewsEarly-stage dementiaCodebook thematic analysisSemi-structured interviewsCare partnersIntervention deliveryBaseline strengthThematic analysisMeta-themesQualitative studyBehavioral interventionsAreas of improvementDementiaQualitative feasibilityMental exerciseInterventionSpousesWell-beingEmotional stressorsIntervention mechanismsParticipantsAcceptability studyWishesPeopleGender-based stigma and the prevention and treatment of HIV/AIDS among older women: A scoping review protocol
Vu T, Manalel J, Nyhan K, Wang K, Monin J. Gender-based stigma and the prevention and treatment of HIV/AIDS among older women: A scoping review protocol. PLOS ONE 2024, 19: e0298024. PMID: 38330082, PMCID: PMC10852273, DOI: 10.1371/journal.pone.0298024.Peer-Reviewed Original ResearchConceptsGender-based stigmaFull-text articlesOlder womenHIV preventionHIV care engagementStandardized data collection formPreferred Reporting ItemsImprove quality of lifeData collection formManagement of HIVPopulation of womenQuality of lifePeer-reviewed publicationsCare engagementCare experiencesWeb of ScienceTreatment of HIV/AIDSHealthcare providersNarrative summaryPRISMA-ScRSupplementary screeningSynthesize evidenceReporting ItemsCitation chainingCollection form‘If I don’t take care of me, then I can’t be there for others:’ a qualitative study of caregiving relationships among older women living with HIV
Vu T, Quinn M, Womack J, Monin J. ‘If I don’t take care of me, then I can’t be there for others:’ a qualitative study of caregiving relationships among older women living with HIV. Aging & Mental Health 2024, 28: 1304-1315. PMID: 38327025, DOI: 10.1080/13607863.2024.2313729.Peer-Reviewed Original ResearchCare networkHIV managementOlder womenPublic health programsCommunity-based organizationsPopulation of womenCare recipientsHealthcare discussionsOWLHHealth programsThematic analysisParticipants 1Qualitative studyCaregiversSemi-structuredCareEducational effortsHIVSources of meaningWomenParticipantsPerformance contentHealthcareYearsHealth“How can I be a caregiver for a second time?” A call to action to acknowledge and support experienced family caregivers
Mroz E, Fried T, Monin J. “How can I be a caregiver for a second time?” A call to action to acknowledge and support experienced family caregivers. Journal Of The American Geriatrics Society 2024, 72: 971-975. PMID: 38206857, PMCID: PMC10947907, DOI: 10.1111/jgs.18740.Peer-Reviewed Original Research
2023
Development of the COMET tool: Caregiver‐reported Outcome Measure for Emergency care Transitions
Gettel C, Galske J, Uzamere I, Serina P, Hernandez‐Bigos K, Mane S, Chen K, Ottilie‐Kovelman S, Sandoval J, Venkatesh A, Cohen A, Monin J, Fried T, Hwang U. Development of the COMET tool: Caregiver‐reported Outcome Measure for Emergency care Transitions. Alzheimer's & Dementia 2023, 19 DOI: 10.1002/alz.074213.Peer-Reviewed Original ResearchCare transitionsOutcome measuresCare partnersED discharge processPhase 3Results Phase 1Phase 2Health care systemPhase 1Candidate itemsAcute illnessED encountersEmergency departmentCare considerationsPhase 4Outcome assessmentConclusion DevelopmentScreening toolCare systemResearch team membersContent validityPoor communicationEDMultidisciplinary stakeholdersDelphi approachPREPARING “EXPERIENCED” CAREGIVERS FOR FUTURE CARE: PERSPECTIVES FROM FORMER CAREGIVERS OF PARENTS WITH DEMENTIA
Mroz E, Piechota A, Ali T, Matta-Singh T, Abboud A, Sharma S, Fried T, Monin J. PREPARING “EXPERIENCED” CAREGIVERS FOR FUTURE CARE: PERSPECTIVES FROM FORMER CAREGIVERS OF PARENTS WITH DEMENTIA. Innovation In Aging 2023, 7: 414-415. PMCID: PMC10735791, DOI: 10.1093/geroni/igad104.1370.Peer-Reviewed Original ResearchFormer caregiversCaregiving roleNegative psychological consequencesPast experienceConsensual qualitative researchAdult child caregiversCare partnersPsychological consequencesDiminished senseDiminished confidencePositive senseNegative consequencesPersonal narrativesCaregiversParentsQualitative studyCumulative advantageConfidenceDementiaExperienceQualitative researchSkillsCare rolesTheory techniquesAdulthoodHOW DO FORMER DEMENTIA CAREGIVERS STRUCTURE HIGH- AND LOW-POINT NARRATIVES?
Matta-Singh T, Sharma S, Ali T, Piechota A, Abboud A, Fried T, Monin J, Mroz E. HOW DO FORMER DEMENTIA CAREGIVERS STRUCTURE HIGH- AND LOW-POINT NARRATIVES? Innovation In Aging 2023, 7: 342-342. PMCID: PMC10735917, DOI: 10.1093/geroni/igad104.1140.Peer-Reviewed Original ResearchPERSONS LIVING WITH DEMENTIA AND MULTIPLE CHRONIC CONDITIONS IDENTIFYING HEALTH PRIORITIES WITH CARE PARTNERS
Vu T, Mroz E, Hernandez-Bigos K, Chow D, Samper-Ternent R, Johnson K, Tinetti M, Monin J. PERSONS LIVING WITH DEMENTIA AND MULTIPLE CHRONIC CONDITIONS IDENTIFYING HEALTH PRIORITIES WITH CARE PARTNERS. Innovation In Aging 2023, 7: 416-416. PMCID: PMC10736172, DOI: 10.1093/geroni/igad104.1374.Peer-Reviewed Original ResearchMultiple chronic conditionsHealth care prioritiesCare partnersChronic conditionsHealth priorityCare prioritiesPilot studyYears of ageEvidence-based toolsPatient prioritiesOlder personsPLWDCare decisionsHealth goalsCare recipientsHealthcare goalsOlder adultsDementiaOpen-ended questionsAgeThematic analysisPERSONS LIVINGEarly stagesYearsRecipientsDEMENTIA STAGING, NEUROPSYCHIATRIC SYMPTOMS, AND DIVORCE OR SEPARATION IN LATE LIFE: A CASE CONTROL STUDY
Monin J, McAvay G, Zang E, Vander Wyck B, Carrión C, Allore H. DEMENTIA STAGING, NEUROPSYCHIATRIC SYMPTOMS, AND DIVORCE OR SEPARATION IN LATE LIFE: A CASE CONTROL STUDY. Innovation In Aging 2023, 7: 94-95. PMCID: PMC10735856, DOI: 10.1093/geroni/igad104.0307.Peer-Reviewed Original ResearchAlzheimer's Disease Research CenterCase-control studyNational Alzheimer's Coordinating CenterDisease Research CenterNPI symptomsDivorce/separationCoordinating CenterAgitation/aggressionDepression/dysphoriaAdjusted odds ratioDementia stagingConditional logistic regressionStages of dementiaCase/control statusInitial visitNeuropsychiatric symptomsOdds ratioNPI scoresMarried casesStandardized clinical informationClinical informationGreater oddsBehavioral symptomsControl studyControl statusSELF- AND PROXY-REPORTED MET NEEDS IN PERSONS WITH DEMENTIA ARE ASSOCIATIED WITH A LOWER HEALTH-RELATED QUALITY OF LIFE
Wammes J, Laws H, van Hout H, Vroomen J, Monin J. SELF- AND PROXY-REPORTED MET NEEDS IN PERSONS WITH DEMENTIA ARE ASSOCIATIED WITH A LOWER HEALTH-RELATED QUALITY OF LIFE. Innovation In Aging 2023, 7: 792-792. PMCID: PMC10739274, DOI: 10.1093/geroni/igad104.2557.Peer-Reviewed Original ResearchEMPOWERING AND ADDRESSING AGE-RELATED CONCERNS AMONG OLDER WOMEN LIVING WITH HIV
Vu T, Quinn M, Valeika S, Monin J. EMPOWERING AND ADDRESSING AGE-RELATED CONCERNS AMONG OLDER WOMEN LIVING WITH HIV. Innovation In Aging 2023, 7: 136-136. PMCID: PMC10736168, DOI: 10.1093/geroni/igad104.0446.Peer-Reviewed Original ResearchSelf-careOlder womenCommunity support groupsUnique psychosocial challengesGrounded theory approachOne-on-oneIn-depth phone interviewsCare journeyHIV stigmaInternalized stigmaTranscribed verbatimCaregiver networkOWLHPsychosocial challengesCaregiving responsibilitiesHIV preventionSupport groupsLong-term effects of treatmentHIV clinicPhone interviewsPhysical burdenQualitative studyPsychosocial stressorsThematic codingStructural interventionsRELATIONSHIP-TYPE DIFFERENCES IN SUPPORT SEEKING AND MENTAL HEALTH FOR ADULT CHILDREN OF PARENTS WITH MEMORY LOSS
Gad D, Monin J. RELATIONSHIP-TYPE DIFFERENCES IN SUPPORT SEEKING AND MENTAL HEALTH FOR ADULT CHILDREN OF PARENTS WITH MEMORY LOSS. Innovation In Aging 2023, 7: 791-791. PMCID: PMC10738518, DOI: 10.1093/geroni/igad104.2554.Peer-Reviewed Original ResearchRelationship‐typeMemory lossMental healthAdult childrenTangible supportCut-off scoreEarly stages of dementiaZarit Burden InventoryNegative affectStages of dementiaSelf-report surveyDepressive symptomsSupport seekingBurden InventoryCaregiving journeyDyadic interventionsYears of ageDyadsPANASGroup meetingsChildrenAbstract ResearchParentsDementiaDaughter-motherPersonal Health Planning in Adult-Child Former Caregivers of Parents Living With Dementia
Mroz E, Ali T, Piechota A, Matta-Singh T, Abboud A, Sharma S, Monin J, Fried T. Personal Health Planning in Adult-Child Former Caregivers of Parents Living With Dementia. American Journal Of Health Promotion 2023, 38: 402-411. PMID: 37770019, PMCID: PMC10922991, DOI: 10.1177/08901171231204670.Peer-Reviewed Original ResearchFormer caregiversPersonal health planningDiverse teamsSemi-structured interviewsPrimary caregiversHealthy agingHealth planningInterview recordingsDementia engageCaregiversParentsInterview promptsPessimistic viewQualitative studyResearch domainHealth planning activitiesDementia 3DementiaAnxietyFeelingsParticipantsPromptsHealthEngageIntervention