2012
Development of and Field Test Results for the CAHPS PCMH Survey
Scholle SH, Vuong O, Ding L, Fry S, Gallagher P, Brown JA, Hays RD, Cleary PD. Development of and Field Test Results for the CAHPS PCMH Survey. Medical Care 2012, 50: s2-s10. PMID: 23064272, PMCID: PMC5388834, DOI: 10.1097/mlr.0b013e3182610aba.Peer-Reviewed Original ResearchMeSH KeywordsAdolescentAdultAgedChildChild, PreschoolCommunity Health CentersConsumer BehaviorFactor Analysis, StatisticalFemaleFocus GroupsHealth Care SurveysHealth PersonnelHumansInfantInterviews as TopicMaleMiddle AgedPatient SatisfactionPatient-Centered CarePrimary Health CarePrivate PracticeReproducibility of ResultsSurveys and QuestionnairesUnited StatesYoung AdultConceptsEffective care practicesProcess of careMulti-item compositesPrimary careMedical homePediatric practiceSystems ClinicianCare practicesHealthcare providersConsumer AssessmentExpert panelSupplemental itemsPCMHCareChild versionCognitive interviewsExploratory factor analysisSurvey questionsPatientsBroad public inputClinicians
2011
Parents' Roles in Decision Making for Children With Cancer in the First Year of Cancer Treatment
Mack JW, Wolfe J, Cook EF, Grier HE, Cleary PD, Weeks JC. Parents' Roles in Decision Making for Children With Cancer in the First Year of Cancer Treatment. Journal Of Clinical Oncology 2011, 29: 2085-2090. PMID: 21464400, DOI: 10.1200/jco.2010.32.0507.Peer-Reviewed Original ResearchConceptsParents' preferred roleParents of childrenChild's physicianPhysician communicationPreferred roleMost parentsDana-Farber Cancer InstituteCancer treatmentFirst yearCross-sectional surveyChildren's HospitalPhysician judgmentPhysicians' perceptionsCancer InstitutePhysiciansCancerChildrenHospitalTreatmentPassive roleYearsActual roleMore passive rolesParentsRole
2009
Development of a New Patient-Based Measure of Pediatric Ambulatory Care
Gallagher P, Ding L, Ham HP, Schor EL, Hays RD, Cleary PD. Development of a New Patient-Based Measure of Pediatric Ambulatory Care. Pediatrics 2009, 124: 1348-1354. PMID: 19822587, PMCID: PMC5443558, DOI: 10.1542/peds.2009-0495.Peer-Reviewed Original ResearchConceptsPediatric ambulatory carePreventive careAmbulatory carePediatric careCAHPS surveyAmbulatory pediatric careHospital care experiencesHealth care policyPediatric instrumentsPediatric expertsNew patientsGood internal consistencyDevelopmental monitoringHealthcare providersCare experiencesConsumer AssessmentCareHealth careCare policyCliniciansInternal consistencyFocus groupsValid assessmentCognitive interviewsGroupPeace of Mind and Sense of Purpose as Core Existential Issues Among Parents of Children With Cancer
Mack JW, Wolfe J, Cook EF, Grier HE, Cleary PD, Weeks JC. Peace of Mind and Sense of Purpose as Core Existential Issues Among Parents of Children With Cancer. JAMA Pediatrics 2009, 163: 519-524. PMID: 19487607, DOI: 10.1001/archpediatrics.2009.57.Peer-Reviewed Original ResearchMeSH KeywordsAdaptation, PsychologicalAdolescentBostonChildChild, PreschoolCommunicationCross-Sectional StudiesCultureData CollectionExistentialismHospitals, PediatricHumansInfantMotivationNeoplasmsParentsPersonality InventoryProfessional-Family RelationsPrognosisPsychometricsQuality of LifeSpiritualityTrustConceptsChronic Illness Therapy-Spiritual WellParents of childrenPrognostic informationFunctional assessmentDana-Farber Cancer InstituteMultivariable logistic regression modelCross-sectional surveyDetailed prognostic informationLogistic regression modelsOncologist judgmentChildren's HospitalMAIN OUTCOMECancer InstituteCancerCancer treatmentPeace of mindOncologistsHospitalScoresChildrenFirst yearHigh peaceRegression modelsMedical informationSubscale responses
2007
Hope and Prognostic Disclosure
Mack JW, Wolfe J, Cook EF, Grier HE, Cleary PD, Weeks JC. Hope and Prognostic Disclosure. Journal Of Clinical Oncology 2007, 25: 5636-5642. PMID: 18065734, DOI: 10.1200/jco.2007.12.6110.Peer-Reviewed Original ResearchConceptsPrognostic disclosurePrognostic informationPhysician communicationDana-Farber Cancer InstituteDisclosure of prognosisHalf of parentsChildren's HospitalParents of childrenChild's physicianMultivariable modelMAIN OUTCOMEParental recallCancer InstituteChild's oncologistChildren's CancerPatients' hopePhysiciansCancerEmotional distressPrognosisOncologistsHospitalChildren's likelihoodFirst yearCureQuality of Health Care for Children: Role of Health and Chronic Illness in Inpatient Care Experiences
Mack JW, Co JP, Goldmann DA, Weeks JC, Cleary PD. Quality of Health Care for Children: Role of Health and Chronic Illness in Inpatient Care Experiences. JAMA Pediatrics 2007, 161: 828-834. PMID: 17768281, DOI: 10.1001/archpedi.161.9.828.Peer-Reviewed Original ResearchConceptsChronic conditionsParents of childrenInpatient careHealth statusPoor healthHealth careQuality of careInpatient care experiencePercent of parentsCare-related problemsHealth care interactionsCare ratingsChronic illnessMultivariable modelRole of healthInpatient SurveyCare problemsCare experiencesLow qualityCare interactionsWorse healthGood healthCareSuch childrenChildrenUnderstanding of Prognosis Among Parents of Children With Cancer: Parental Optimism and the Parent-Physician Interaction
Mack JW, Cook EF, Wolfe J, Grier HE, Cleary PD, Weeks JC. Understanding of Prognosis Among Parents of Children With Cancer: Parental Optimism and the Parent-Physician Interaction. Journal Of Clinical Oncology 2007, 25: 1357-1362. PMID: 17416854, DOI: 10.1200/jco.2006.08.3170.Peer-Reviewed Original ResearchConceptsChance of cureLikelihood of cureParents of childrenFunctional outcomeDana-Farber Cancer InstituteKnowledge of prognosisUnderstanding of prognosisCross-sectional surveyChildren's HospitalMajority of parentsChild's physicianPhysicians' beliefsCancer InstitutePhysician expectationsPrognosisCancerPhysiciansCancer treatmentCureCancer therapyOutcomesPatientsParents' preferencesPlace parentsUnrealistic expectations
2006
Communication About Prognosis Between Parents and Physicians of Children With Cancer: Parent Preferences and the Impact of Prognostic Information
Mack JW, Wolfe J, Grier HE, Cleary PD, Weeks JC. Communication About Prognosis Between Parents and Physicians of Children With Cancer: Parent Preferences and the Impact of Prognostic Information. Journal Of Clinical Oncology 2006, 24: 5265-5270. PMID: 17114660, DOI: 10.1200/jco.2006.06.5326.Peer-Reviewed Original ResearchConceptsPrognostic informationDana-Farber Cancer InstitutePhysicians of childrenMain outcome measuresParents' preferencesChildren's HospitalMajority of parentsParents of childrenChild's physicianOutcome measuresCancer InstitutePrognosisPhysiciansLoss of hopeCancerChildrenHospitalParents' senseParent ratingsParents' desireParentsPatients
2005
Adjusting Pediatric Consumer Assessment of Health Plans Study (CAHPS) Scores to Ensure Fair Comparison of Health Plan Performances.
Kim M, Zaslavsky AM, Cleary PD. Adjusting Pediatric Consumer Assessment of Health Plans Study (CAHPS) Scores to Ensure Fair Comparison of Health Plan Performances. Medical Care 2005, 43: 44-52. PMID: 15626933.Peer-Reviewed Original ResearchConceptsPrivate health insuranceCasemix modelChild health statusCAHPS surveyPatient characteristicsHealth plansHealth Plans Study (CAHPS) surveyHealth insurancePlan ratingsHealth plan performanceHealth statusCAHPS scoresPlan differencesConsumer AssessmentCommercial plansParents' agePlan performanceAdjustment variablesMedicaidSeparate modelsSubstantial impactStudy surveyMedicaid beneficiariesMedicaid plansSuch models
2001
Detecting Suicide Risk in a Pediatric Emergency Department: Development of a Brief Screening Tool
Horowitz L, Wang P, Koocher G, Burr B, Smith M, Klavon S, Cleary P. Detecting Suicide Risk in a Pediatric Emergency Department: Development of a Brief Screening Tool. Pediatrics 2001, 107: 1133-1137. PMID: 11331698, DOI: 10.1542/peds.107.5.1133.Peer-Reviewed Original ResearchConceptsNegative predictive valueBrief screening toolScreening toolC-statisticHealth cliniciansPredictive valuePediatric mental health patientsSuicide riskCriterion standard assessmentPediatric emergency departmentCurrent suicidal behaviorMental health patientsEmergency department staffMental health cliniciansQuality improvement initiativesPositive predictive valueCross-sectional surveyMental health concernsClinical characteristicsPediatric EDEmergency departmentPsychiatric reasonsAdolescent patientsHealth patientsTriage nurses
2000
Impact of Sociodemographic Case Mix on the HEDIS Measures of Health Plan Quality
Zaslavsky A, Hochheimer J, Schneider E, Cleary P, Seidman J, McGlynn E, Thompson J, Sennett C, Epstein A. Impact of Sociodemographic Case Mix on the HEDIS Measures of Health Plan Quality. Medical Care 2000, 38: 981-992. PMID: 11021671, DOI: 10.1097/00005650-200010000-00002.Peer-Reviewed Original ResearchMeSH KeywordsAdolescentAdultAgedChildChild, PreschoolDiagnosis-Related GroupsFemaleHealth Benefit Plans, EmployeeHealth Maintenance OrganizationsHumansInfantInfant, NewbornLogistic ModelsMaleMiddle AgedMultivariate AnalysisPregnancyPreventive Health ServicesQuality Assurance, Health CareQuality Indicators, Health CareSocioeconomic FactorsUnited StatesConceptsHEDIS measuresSociodemographic characteristicsHealth Plan Employer DataPatients' sociodemographic characteristicsHealth plan membersImmunization of adolescentsHealth plan qualityInformation Set (HEDIS) measuresMeasures of screeningRetinal examPreventive servicesHEDIS dataEmployer DataCase mixPlan membersLogistic regressionMost plansPercent collegeResidential area characteristicsPercentage pointsPercent AsianPlan qualityPublic assistanceSet measuresArea characteristics
1999
Quality of Care at a Children's Hospital: The Parents' Perspective
Homer C, Marino B, Cleary P, Alpert H, Smith B, Crowley Ganser C, Brustowicz R, Goldmann D. Quality of Care at a Children's Hospital: The Parents' Perspective. JAMA Pediatrics 1999, 153: 1123-1129. PMID: 10555712, DOI: 10.1001/archpedi.153.11.1123.Peer-Reviewed Original ResearchConceptsTertiary care pediatric hospitalHospital discharge planningProcess of carePerceptions of careQuality of careInpatient care experienceSpecific clinical experienceQuality improvement activitiesPain managementChildren's HospitalParents of childrenPediatric hospitalDischarge planningPatient dischargeInpatient carePediatric careSpecific reportsInpatient qualityClinical experienceHospitalCare experiencesCare restsCareTelephone interviewersOverall assessmentThe Consumer Assessment of Health Plan Study (CAHPS) Survey of Children’s Health Care
Homer C, Fowler F, Gallagher P, Shaul J, Uyeda M, Zaslavsky A, Wilson V, Cleary P. The Consumer Assessment of Health Plan Study (CAHPS) Survey of Children’s Health Care. The Joint Commission Journal On Quality And Patient Safety 1999, 25: 369-377. PMID: 10412084, DOI: 10.1016/s1070-3241(16)30452-7.Peer-Reviewed Original ResearchConceptsChild health careOverall carePersonal doctorHealth careHealth Plans Study (CAHPS) surveyConsumer AssessmentHealth care servicesHealth care plansMedical care qualityQuality improvement effortsSpecialty carePediatric careCare plansCare servicesAspects of accessCare qualityInterpersonal careCognitive testingCareImprovement initiativesCore surveyChildrenStrongest correlateNeeds of childrenDoctorsThe Impact of Having Parents Report About Both Their Own and Their Children's Experiences With Health Insurance Plans
Shaul J, Fowler F, Zaslavsky A, Homer C, Gallagher P, Cleary P. The Impact of Having Parents Report About Both Their Own and Their Children's Experiences With Health Insurance Plans. Medical Care 1999, 37: ms59-ms68. PMID: 10098560, DOI: 10.1097/00005650-199903001-00007.Peer-Reviewed Original ResearchMeSH KeywordsAdultChildChild Health ServicesConsumer BehaviorCost-Benefit AnalysisData CollectionFemaleFollow-Up StudiesHealth Benefit Plans, EmployeeHealth Care SurveysHumansMaleParentsPilot ProjectsQuality of Health CareReproducibility of ResultsSurveys and QuestionnairesTime FactorsUnited StatesUnited States Agency for Healthcare Research and QualityWashingtonConceptsHealth care experiencesLow response rateOwn careResponse rateChild health careChildren surveyHealth insurance plansStudy groupCare experiencesPattern of responseHealth plansTelephone interviewsCareHealth careLatter groupInsurance plansAdultsSurvey questionsWeak associationParent reportPositive responseSurvey administrationChildrenAssociationChild carePsychometric Properties of the CAHPS™ 1.0 Survey Measures
Hays R, Shaul J, Williams V, Lubalin J, Harris-Kojetin L, Sweeny S, Cleary P. Psychometric Properties of the CAHPS™ 1.0 Survey Measures. Medical Care 1999, 37: ms22-ms31. PMID: 10098556, DOI: 10.1097/00005650-199903001-00003.Peer-Reviewed Original ResearchConceptsPrivate health insuranceHealth insurancePrivate health insurance coverageHealth plan ratingHealth plansHealth insurance coverageCAHPS global ratingConsumers' willingnessHealth Plans StudyPlan ratingsConsumer surveyInsurance coverageWillingnessHealth plan performanceSurvey measuresInsurancePlan performanceConsumersSample of individualsMedicaidCAHPS measuresHealth plan levelQuality of carePsychometric propertiesExcellent psychometric properties
1994
The effects of rG-CSF on health-related quality of life in children with congenital agranulocytosis
Cleary P, Morrissey G, Yver A, Oster G. The effects of rG-CSF on health-related quality of life in children with congenital agranulocytosis. Quality Of Life Research 1994, 3: 307-315. PMID: 7841964, DOI: 10.1007/bf00451722.Peer-Reviewed Original ResearchConceptsHealth-related qualityGeneral health perceptionStudy patientsCongenital agranulocytosisHealth perceptionMulticentre phase II clinical trialPhase II clinical trialRecombinant human granulocyte colony-stimulating factorRG-CSF therapyAspects of HRQOLInitiation of treatmentGranulocyte colony-stimulating factorHuman granulocyte colony-stimulating factorValue of treatmentColony-stimulating factorPatient populationFunctional statusOne-half monthsSuch therapyClinical trialsActivity limitationsTherapyStudy centersHRQoLAgranulocytosisHistories of childhood trauma in adult hypochondriacal patients
Barsky A, Wool C, Barnett M, Cleary P. Histories of childhood trauma in adult hypochondriacal patients. American Journal Of Psychiatry 1994, 151: 397-401. PMID: 8109648, DOI: 10.1176/ajp.151.3.397.Peer-Reviewed Original ResearchConceptsChildhood illnessesMedical morbidityHypochondriacal patientsNonhypochondriacal patientsSociodemographic differencesAggregate medical morbidityMedical record auditGeneral medical clinicChildhood traumaMultivariate regression analysisDegree of traumaMore childhood traumaChildhood Traumatic Events ScaleEight-item questionnaireRecord auditPhysical illnessPatientsParental attitudesTraumatic Events ScaleMedical clinicsIllnessSexual contactTraumaHealth reasonsMorbidity
1993
Hypochondriacal patients' beliefs about good health
Barsky A, Coeytaux R, Sarnie M, Cleary P. Hypochondriacal patients' beliefs about good health. American Journal Of Psychiatry 1993, 150: 1085-1089. PMID: 8317581, DOI: 10.1176/ajp.150.7.1085.Peer-Reviewed Original ResearchConceptsMore symptomsHypochondriacal patientsGood healthNonhypochondriacal patientsAggregate medical morbiditySymptom-free stateGeneral medicine clinicMedical care utilizationGood test-retest reliabilityNumerous somatic symptomsMedical morbidityCare utilizationClinical featuresTest-retest reliabilityMedicine clinicHypochondriacal symptomsPatients' beliefsBodily preoccupationPatientsMedical careSociodemographic characteristicsSomatic symptomsSymptomsAmbiguous symptomsComparison group