2020
A systematic literature review of Native American and Pacific Islanders’ perspectives on health data privacy in the United States
Taitingfong R, Bloss C, Triplett C, Cakici J, Garrison N, Cole S, Stoner J, Ohno-Machado L. A systematic literature review of Native American and Pacific Islanders’ perspectives on health data privacy in the United States. Journal Of The American Medical Informatics Association 2020, 27: 1987-1998. PMID: 33063114, PMCID: PMC7727344, DOI: 10.1093/jamia/ocaa235.Peer-Reviewed Reviews, Practice Guidelines, Standards, and Consensus StatementsEngaging heart failure patients from a clinical data research network: A survey on willingness to participate in different types of research.
Choi Y, López J, Meeker D, Ohno-Machado L, Kim K. Engaging heart failure patients from a clinical data research network: A survey on willingness to participate in different types of research. AMIA Annual Symposium Proceedings 2020, 2019: 305-312. PMID: 32308823, PMCID: PMC7153117.Peer-Reviewed Original ResearchConceptsClinical Data Research NetworkHeart failure patientsLarge cohort studyResearch participationResearch NetworkCohort studyFailure patientsOne-time surveyPatient cohortObservational studyPatient motivationWeight controlSignificant associationClinical researchPatientsPrecision medicineHealth dataRecruitment effortsNational effortsActivity interestsSurgeryCohort
2018
Perfectly Secure and Efficient Two-Party Electronic-Health-Record Linkage
Chen F, Jiang X, Wang S, Schilling L, Meeker D, Ong T, Matheny M, Doctor J, Ohno-Machado L, Vaidya J. Perfectly Secure and Efficient Two-Party Electronic-Health-Record Linkage. IEEE Internet Computing 2018, 22: 32-41. PMID: 29867290, PMCID: PMC5983039, DOI: 10.1109/mic.2018.112102542.Peer-Reviewed Original ResearchPrivacy-preserving record linkagePrivacy/security concernsRecord linkage solutionsApproximate matching mechanismsPatient health dataSecurity concernsMatching mechanismLinkage solutionsHealth recordsHealth dataRecord linkageSecureSharingFirst stepPersonalized careEfficientPortable methodHealth record linkageAccessPrecision medicineData
2017
Feasibility of Representing Data from Published Nursing Research Using the OMOP Common Data Model.
Kim H, Choi J, Jang I, Quach J, Ohno-Machado L. Feasibility of Representing Data from Published Nursing Research Using the OMOP Common Data Model. AMIA Annual Symposium Proceedings 2017, 2016: 715-723. PMID: 28269868, PMCID: PMC5333244.Peer-Reviewed Original ResearchConceptsOMOP Common Data ModelNursing intervention protocolPatient reported outcomesCommon data modelReported outcomesDrug treatmentIntervention protocolUnique data itemsNursing articlesData modelNursing researchHealth dataPotential information lossData discoveryUse casesData itemsRepresenting DataFollowInformation lossDisease
2014
Sharing my health data: a survey of data sharing preferences of healthy individuals.
Bell E, Ohno-Machado L, Grando M. Sharing my health data: a survey of data sharing preferences of healthy individuals. AMIA Annual Symposium Proceedings 2014, 2014: 1699-708. PMID: 25954442, PMCID: PMC4419941.Peer-Reviewed Original Research
2013
DELPHI: Data E-platform for Personalized Population Health
Katsis Y, Baru C, Chan T, Dasgupta S, Farcas C, Griswold W, Huang J, Ohno-Machado L, Papakonstantinou Y, Raab F, Patrick K. DELPHI: Data E-platform for Personalized Population Health. 2013, 115-119. DOI: 10.1109/healthcom.2013.6720650.Peer-Reviewed Original Research
2012
Privacy-preserving heterogeneous health data sharing
Mohammed N, Jiang X, Chen R, Fung B, Ohno-Machado L. Privacy-preserving heterogeneous health data sharing. Journal Of The American Medical Informatics Association 2012, 20: 462-469. PMID: 23242630, PMCID: PMC3628047, DOI: 10.1136/amiajnl-2012-001027.Peer-Reviewed Original ResearchConceptsSet-valued dataDifferential privacyNoise additionPrivacy-preserving mannerAdversary's background knowledgeStrong privacy guaranteesBackground knowledgeHealth data sharingPrivacy modelPrivacy guaranteesSensitive dataData sharingHealthcare dataPrivate mannerAlgorithm designPrivacyRaw dataSynthetic dataAlgorithmHealth dataProbabilistic wayDiscriminative analysisExperimental resultsUseful informationClassification analysis