2020
The Data Tags Suite (DATS) model for discovering data access and use requirements
Alter G, Gonzalez-Beltran A, Ohno-Machado L, Rocca-Serra P. The Data Tags Suite (DATS) model for discovering data access and use requirements. GigaScience 2020, 9: giz165. PMID: 32031623, PMCID: PMC7006671, DOI: 10.1093/gigascience/giz165.Peer-Reviewed Original ResearchConceptsData accessData discovery toolsPrivacy of subjectsData use agreementsConfidential dataMetadata itemsData reuseMetadata schemaAutomated systemDiscovery toolTechnical systemsStandard wayUse agreementsAccessPrivacyMetadataSchemaUse requirementsReuseResearchersResearch dataSystemRequirementsInformationData
2015
Preserving Genome Privacy in Research Studies
Wang S, Jiang X, Fox D, Ohno-Machado L. Preserving Genome Privacy in Research Studies. 2015, 425-441. DOI: 10.1007/978-3-319-23633-9_16.Peer-Reviewed Original ResearchGenome privacyPrivacy researchBetter privacy protectionObfuscation of dataSecure data repositoryLoss of privacyData use agreementsPrivacy challengesPrivacy problemsPrivacy protectionAttack modelIndividual privacyData sharingMassive collectionPrivacyData repositoryTraditional clinical informationScientific discoveryGenomic dataData analysis methodsBig challengeUse agreementsBiomedical communityTechnical aspects
2013
Development of a Privacy and Security Policy Framework for a Multistate Comparative Effectiveness Research Network
Kim K, McGraw D, Mamo L, Ohno-Machado L. Development of a Privacy and Security Policy Framework for a Multistate Comparative Effectiveness Research Network. Medical Care 2013, 51: s66-s72. PMID: 23774516, DOI: 10.1097/mlr.0b013e31829b1d9f.Peer-Reviewed Original Research