2022
Advancing Interoperability of Patient-level Social Determinants of Health Data to Support COVID-19 Research.
Phuong J, Hong S, Palchuk M, Espinoza J, Meeker D, Dorr D, Lozinski G, Madlock-Brown C, Adams W. Advancing Interoperability of Patient-level Social Determinants of Health Data to Support COVID-19 Research. AMIA Joint Summits On Translational Science Proceedings 2022, 2022: 396-405. PMID: 35854720, PMCID: PMC9285174.Peer-Reviewed Original Research
2018
A Novel Stakeholder Engagement Approach for Patient-centered Outcomes Research
Kim K, Khodyakov D, Marie K, Taras H, Meeker D, Campos H, Ohno-Machado L. A Novel Stakeholder Engagement Approach for Patient-centered Outcomes Research. Medical Care 2018, 56: s41-s47. PMID: 30074950, PMCID: PMC6143220, DOI: 10.1097/mlr.0000000000000790.Peer-Reviewed Original ResearchConceptsClinical Data Research NetworkPatient-centered outcomes researchEngagement of patientsOutcomes research studiesConditions of focusStakeholder advisory boardPatient-centered outcomes research studiesKawasaki diseaseHeart failurePatient advocatesPatientsClinical sitesOutcomes researchSignificant differencesHealth researchCliniciansResearch NetworkResearch prioritiesSetting of prioritiesEngagement strategiesAdvisory BoardFavorable opinionObesityEngagement principlesDisease