2016
Populations and Interventions for Palliative and End-of-Life Care: A Systematic Review
Singer A, Goebel J, Kim Y, Dy S, Ahluwalia S, Clifford M, Dzeng E, O'Hanlon C, Motala A, Walling A, Goldberg J, Meeker D, Ochotorena C, Shanman R, Cui M, Lorenz K. Populations and Interventions for Palliative and End-of-Life Care: A Systematic Review. Journal Of Palliative Medicine 2016, 19: 995-1008. PMID: 27533892, PMCID: PMC5011630, DOI: 10.1089/jpm.2015.0367.Peer-Reviewed Original ResearchConceptsCongestive heart failurePalliative careCaregivers' experiencesChronic obstructive pulmonary diseasePalliative care effectivenessObstructive pulmonary diseasePalliative care teamHealth service interventionsSystematic Reviews databasesLower healthcare costsHome-based approachHome-based componentWeb of ScienceHeart failurePulmonary diseaseAdvanced illnessCochrane DatabasePrognostic criteriaCaregiver outcomesCare teamDementia outcomesInclusion criteriaSignificant patientCare planningLife care
2015
Symptom trends in the last year of life from 1998 to 2010: a cohort study.
Singer A, Meeker D, Teno J, Lynn J, Lunney J, Lorenz K. Symptom trends in the last year of life from 1998 to 2010: a cohort study. Annals Of Internal Medicine 2015, 162: 175-83. PMID: 25643305, PMCID: PMC4346253, DOI: 10.7326/m13-1609.Peer-Reviewed Original ResearchConceptsProxy reportsPain intensitySymptom prevalenceLife careProxy-reported painChronic lung diseaseCongestive heart failureManagement of painPrevalence of depressionEnd of lifeCohort studySevere painHeart failureLung diseaseObservational studyTroubling symptomsSudden deathIndividual symptomsAlarming symptomsPainFamily respondentsHRS participantsSymptom trendsPrevalenceRepresentative longitudinal survey
2014
pSCANNER: patient-centered Scalable National Network for Effectiveness Research
Ohno-Machado L, Agha Z, Bell D, Dahm L, Day M, Doctor J, Gabriel D, Kahlon M, Kim K, Hogarth M, Matheny M, Meeker D, Nebeker J, team T, Resnic F, Khodyakov D, Armstead L, Nagler T, Morley S, Anderson N, Cooper D, Phillips D, Heber D, Li Z, Ong M, Patel A, Zachariah M, Burns J, Daniels L, Doan S, Farcas C, Germann-Kurtz R, Jiang X, Kim H, Paul P, Taras H, Tremoulet A, Wang S, Zhu W, Berman D, Rizk-Jackson A, D’Arcy M, Kesselman C, Knight T, Pearlman L, Heidenreich P, Rifkin D, Stepnowsky C, Zamora T, DuVall S, Frey L, Scehnet J, Sauer B, Facelli J, Gouripeddi R, Denton J, FitzHenry F, Fly J, Messina V, Minter F, Nookala L, Sullivan H, Speroff T, Westerman D. pSCANNER: patient-centered Scalable National Network for Effectiveness Research. Journal Of The American Medical Informatics Association 2014, 21: 621-626. PMID: 24780722, PMCID: PMC4078293, DOI: 10.1136/amiajnl-2014-002751.Peer-Reviewed Original ResearchConceptsInitial use caseCommon data modelPatient Centered Outcomes Research InstituteHealth information exchange dataComputing infrastructuresFederated networkUse casesDistributed systemData modelComputation modelExchange dataPatient-powered research networksCommunity-based outpatient clinicsNetworkCongestive heart failureOutcomes Research InstituteEffectiveness researchAsynchronous modeHealth services researchersKawasaki diseaseHeart failureOutpatient clinicVA InformaticsAmbulatory careNational network