2024
Building a community-academic partnership to expand services for childhood cancer survivors in a rural, low-income region in California.
Smith S, Boynton H, Smith M, Schapira L. Building a community-academic partnership to expand services for childhood cancer survivors in a rural, low-income region in California. Journal Of Clinical Oncology 2024, 20: 360-360. DOI: 10.1200/op.2024.20.10_suppl.360.Peer-Reviewed Original ResearchChildhood cancer survivorsCommunity-academic partnershipCancer survivorsCommunity-engaged researchLow-income regionsHealth disparitiesHealth outcomesYoung adult childhood cancer survivorsGoal of improving health outcomesCommunity-based participatory researchAdult childhood cancer survivorsCancer support servicesChildhood cancer survivorshipReduce health disparitiesCommunity advisory boardQualitative needs assessmentCommunity-engaged studyPublic health domainResearch portfolioCancer survivorshipCollaborative program developmentHealth domainsPractice changeNeeds assessmentParticipatory researchSocial support dynamics within parent-AYA cancer survivor dyads in a rural, socioeconomically disadvantaged, majority Hispanic/Latino region.
Lewinsohn R, Benedict C, Smith M, Boynton H, Schapira L, Smith S. Social support dynamics within parent-AYA cancer survivor dyads in a rural, socioeconomically disadvantaged, majority Hispanic/Latino region. Journal Of Clinical Oncology 2024, 42: 10071-10071. DOI: 10.1200/jco.2024.42.16_suppl.10071.Peer-Reviewed Original ResearchSource of emotional supportChildhood cancer survivorsCommunity-based organizationsSources of informal supportSocial supportAdolescent/young adultCancer survivorsSocial support dynamicsEmotional supportAYA childhood cancer survivorsFear of recurrenceReducing psychological distressInstrumental social supportYears post-diagnosisPost-traumatic growthInformation supportUnmet emotional needsPopulation of familiesSurvivorship careAYA survivorsSocioeconomic disparitiesPediatric carePsychological distressAdult carePost-diagnosis
2023
A qualitative study of childhood cancer families’ post‐treatment needs and the impact of a community‐based organization in a rural, socioeconomically disadvantaged, majority Hispanic/Latino region
Smith S, Teer A, Ariceaga E, Billman E, Benedict C, Goyal A, Pang E, Pecos‐Duarte C, Lewinsohn R, Smith M, Boynton H, Montes S, Rivera E, Ramirez D, Schapira L. A qualitative study of childhood cancer families’ post‐treatment needs and the impact of a community‐based organization in a rural, socioeconomically disadvantaged, majority Hispanic/Latino region. Pediatric Blood & Cancer 2023, 71: e30798. PMID: 38053230, DOI: 10.1002/pbc.30798.Peer-Reviewed Original ResearchConceptsPost-treatment needsNon-English language preferenceChildhood cancer survivorsChildhood cancerCancer survivorsCBO staffYoung adult childhood cancer survivorsCommunity-based organizationsAdult childhood cancer survivorsHealth disparitiesMedian age 20Year post diagnosisHispanic/Latino residentsLow socioeconomic statusCommunity-based supportFamilies of childrenPost diagnosisAge 48Age 20Language preferenceCancerMental healthChild's diagnosisSocioeconomic disadvantageSocioeconomic status