2021
A scoping review of person and family engagement in the context of multiple chronic conditions
Vick J, Wolff J. A scoping review of person and family engagement in the context of multiple chronic conditions. Health Services Research 2021, 56: 990-1005. PMID: 34363217, PMCID: PMC8515220, DOI: 10.1111/1475-6773.13857.Peer-Reviewed Original ResearchConceptsMultiple chronic conditionsConceptual model of engagementFamily engagementModel of engagementElements of self-managementChanges to care deliveryReview of reviewsBarriers to engagementInvolvement of familiesArticles meeting criteriaIndividual-level strategiesCare deliveryEngagement interventionsChronic conditionsSelf-managementFull-text considerationVulnerable populationsMeeting criteriaReview typesAreas of emphasisReview definitionsPersonsEngagementFamilyDecision making
2018
Does Caregiving Strain Increase as Patients With and Without Dementia Approach the End of Life?
Vick J, Ornstein K, Szanton S, Dy S, Wolff J. Does Caregiving Strain Increase as Patients With and Without Dementia Approach the End of Life? Journal Of Pain And Symptom Management 2018, 57: 199-208.e2. PMID: 30453054, PMCID: PMC6348024, DOI: 10.1016/j.jpainsymman.2018.11.004.Peer-Reviewed Original ResearchConceptsEnd of lifeDementia caregiversOlder adultsNondementia caregiversCaregivers of older adultsCommunity-living older adultsEnd-of-life statusHigher caregiver strainOlder adult deathsPrevalence of dementiaProportion of caregiversCare of personsMedicare enrollment filesEnd-of-lifeNationally representative sampleMultivariate logistic regressionFamily caregiversCaregiving strainCaregiver strainCaregiver factorsProviding careSelf-careEnrollment filesPrimary caregiversCaregivers
2017
“Let him speak:” a descriptive qualitative study of the roles and behaviors of family companions in primary care visits among older adults with cognitive impairment
Vick J, Amjad H, Smith K, Boyd C, Gitlin L, Roth D, Roter D, Wolff J. “Let him speak:” a descriptive qualitative study of the roles and behaviors of family companions in primary care visits among older adults with cognitive impairment. International Journal Of Geriatric Psychiatry 2017, 33: e103-e112. PMID: 28585721, PMCID: PMC5862540, DOI: 10.1002/gps.4732.Peer-Reviewed Original ResearchConceptsPrimary care visitsOlder adultsFamily companionsCare visitsCognitive impairmentFocus groupsAttend primary care visitsEnglish-speaking adults agePrimary care patientsPrimary care cliniciansInterviews of older adultsCommunication challengesSevere cognitive impairmentAccurate source of informationVisit communicationCompanion involvementPrimary careCare cliniciansVisit agendaCare patientsClinician confusionInhibit effective communicationQualitative studyImprove communicationQualitative interviews
2016
Examining the context and helpfulness of family companion contributions to older adults’ primary care visits
Wolff J, Guan Y, Boyd C, Vick J, Amjad H, Roth D, Gitlin L, Roter D. Examining the context and helpfulness of family companion contributions to older adults’ primary care visits. Patient Education And Counseling 2016, 100: 487-494. PMID: 27817986, PMCID: PMC5350029, DOI: 10.1016/j.pec.2016.10.022.Peer-Reviewed Original ResearchConceptsPrimary care visitsMedical decision-makingCare visitsFamily companionsVisits of patientsOlder adultsAdult primary care visitsActive involvement of familiesPrimary care communicationPatient information exchangeInvolvement of familiesPatient-centerednessCare communicationPatient surveySelf-managementCompanion participationDoctors' understandingDecision-makingImproving doctors' understandingPatient preferencesMedical communicationHealthVisitsOlder patientsActive involvement