2024
Talking About Suffering in the Intensive Care Unit
Kious B, Vick J, Ubel P, Sutton O, Blumenthal-Barby J, Cox C, Ashana D. Talking About Suffering in the Intensive Care Unit. AJOB Empirical Bioethics 2024, ahead-of-print: 1-8. PMID: 39250770, DOI: 10.1080/23294515.2024.2399534.Peer-Reviewed Original ResearchSecondary qualitative content analysisIntensive care unitInductive approach to data analysisEnd of lifeSuffering of personsAdult intensive care unitQualitative content analysisCare unitFamily meetingsReviewed transcriptsEmotional distressPatient's familyCritically ill patientsApproach to data analysisLimited treatmentCoding guideStudy authorsResearch teamContent analysisMulticenter trialPoor prognosisCliniciansLow qualityIll patientsSuffering
2018
Does Caregiving Strain Increase as Patients With and Without Dementia Approach the End of Life?
Vick J, Ornstein K, Szanton S, Dy S, Wolff J. Does Caregiving Strain Increase as Patients With and Without Dementia Approach the End of Life? Journal Of Pain And Symptom Management 2018, 57: 199-208.e2. PMID: 30453054, PMCID: PMC6348024, DOI: 10.1016/j.jpainsymman.2018.11.004.Peer-Reviewed Original ResearchConceptsEnd of lifeDementia caregiversOlder adultsNondementia caregiversCaregivers of older adultsCommunity-living older adultsEnd-of-life statusHigher caregiver strainOlder adult deathsPrevalence of dementiaProportion of caregiversCare of personsMedicare enrollment filesEnd-of-lifeNationally representative sampleMultivariate logistic regressionFamily caregiversCaregiving strainCaregiver strainCaregiver factorsProviding careSelf-careEnrollment filesPrimary caregiversCaregivers
2015
Development of the Serious Illness Care Program: a randomised controlled trial of a palliative care communication intervention
Bernacki R, Hutchings M, Vick J, Smith G, Paladino J, Lipsitz S, Gawande A, Block S. Development of the Serious Illness Care Program: a randomised controlled trial of a palliative care communication intervention. BMJ Open 2015, 5: e009032. PMID: 26443662, PMCID: PMC4606432, DOI: 10.1136/bmjopen-2015-009032.Peer-Reviewed Original ResearchConceptsSerious Illness Care ProgramRandomised controlled trialsCommunication interventionsCare programReceipt of goal-concordant careAdvance care planning discussionsCluster randomised controlled trialCare planning discussionsGoal-concordant careControlled trialsHigh-quality careEnd of lifePatients receive careMedical recordsElectronic medical recordsQuality of lifePeer-reviewed publicationsSelf-reported dataPatients' medical recordsUsual careClinician satisfactionPatient receiptQuality of communicationPlanning discussionsInstitute Institutional Review Board