2024
Pain and Health-Related Quality of Life in Autosomal Dominant Polycystic Kidney Disease: Results from a National Patient-Powered Registry
Hoover E, Holliday V, Merullo N, Oberdhan D, Perrone R, Rusconi C, Park M, Phadnis M, Thewarapperuma N, Dahl N. Pain and Health-Related Quality of Life in Autosomal Dominant Polycystic Kidney Disease: Results from a National Patient-Powered Registry. Kidney Medicine 2024, 6: 100813. PMID: 38689835, PMCID: PMC11059322, DOI: 10.1016/j.xkme.2024.100813.Peer-Reviewed Original ResearchHealth-related quality of lifeQuality of lifeHRQoL toolsOutcomes health-related quality of lifeDisease-specific assessment toolsHealth care accessCore outcome domainsDisease-specific patientHealth-related qualityBurden of painCross-sectional assessmentHRQoL modulePositive HRQoLPain interferenceCare accessHealthcare accessPatient experienceConsenting participantsCore questionnaireOutcome domainsImpact ScalePain severityEmotional distressHRQoLPatient reports
2023
Dialysis Patient Experiences During the COVID-19 Pandemic: A Survey Study
Noce E, Brereton L, Zorzanello M, Aklilu A, Anders E, Bernal M, Sundararajan A, Dahl N, Kodali R, Patel D. Dialysis Patient Experiences During the COVID-19 Pandemic: A Survey Study. Kidney Medicine 2023, 5: 100673. PMID: 37305377, PMCID: PMC10186967, DOI: 10.1016/j.xkme.2023.100673.Peer-Reviewed Original ResearchCoronavirus disease 2019 (COVID-19) pandemicMental health conditionsDisease 2019 pandemicCare teamPatient experienceCare experiencesMost patientsCenter hemodialysisKidney failureDialysis treatmentDialysis careCOVID-19 pandemicHealth conditionsDialysis care teamNon-white patientsSubpopulation of patientsCare of patientsPercent of participantsPatient care experiencesNephrology practicePatient's perspectiveDerive themesPatientsAbstractTextPractice settings