2019
Implementation of an educational intervention to optimize self‐management and transition readiness in young adults with sickle cell disease
Calhoun CL, Abel RA, Pham HA, Thompson S, King AA. Implementation of an educational intervention to optimize self‐management and transition readiness in young adults with sickle cell disease. Pediatric Blood & Cancer 2019, 66: e27722. PMID: 30907500, PMCID: PMC6529244, DOI: 10.1002/pbc.27722.Peer-Reviewed Original ResearchConceptsSickle cell diseaseTransition readinessEducational handoutAdult careCell diseaseYoung adultsSingle-center studyPeriod of morbiditySelf-management skillsType of interventionPediatric settingStudy coordinatorsHealthcare skillsEducational interventionMultidisciplinary approachBaselineCarePatientsInterventionPostinterventionAreas of deficitDiseaseAdolescentsRegression modelsMost improvement
2016
Implementation of an Educational Intervention to Optimize Self-Management and Transition Readiness in Adolescents with Sickle Cell Disease
Calhoun C, Abel R, Pham H, Thompson S, King A. Implementation of an Educational Intervention to Optimize Self-Management and Transition Readiness in Adolescents with Sickle Cell Disease. Blood 2016, 128: 3536. DOI: 10.1182/blood.v128.22.3536.3536.Peer-Reviewed Original ResearchSickle cell diseaseEducational handoutAdult careCell diseaseTransition readinessSilent cerebral infarctsEnd-organ damageSubsequent clinic visitsEducational interventionHistory of strokeMajority of patientsPediatric hematology clinicYear oldsFormal transition programAge group 13Institutional review boardUniversity Institutional Review BoardCerebral infarctsChart abstractionClinic visitsStandard careIndependent livingHematology clinicMedical managementOrgan damage