2019
Caregiver Decision-Making for Terminally Ill Children: A Qualitative Study
Taylor E, Doolittle B. Caregiver Decision-Making for Terminally Ill Children: A Qualitative Study. Journal Of Palliative Care 2019, 35: 161-166. PMID: 31722609, DOI: 10.1177/0825859719885947.Peer-Reviewed Original ResearchConceptsIll childrenMedical providersLife-limiting illnessSignificant psychosocial distressHealth care providersInstitutional review boardMedical team membersChild's illnessPsychosocial distressMedical careMedical teamReview boardMedical staffThematic saturationCaregiversIllnessLongitudinal relationshipChildrenPatientsCareTrusting relationshipQualitative studyProvidersDistressCritical role
2018
Barriers to Advance Care Planning in End-Stage Renal Disease: Who is to Blame, and What Can be Done?
Kelley AT, Turner J, Doolittle B. Barriers to Advance Care Planning in End-Stage Renal Disease: Who is to Blame, and What Can be Done? The New Bioethics 2018, 24: 150-157. PMID: 29513084, DOI: 10.1080/20502877.2018.1438772.Peer-Reviewed Case Reports and Technical NotesConceptsAdvance care planningCare planningEnd-stage renal diseaseChronic kidney diseaseCourse of diseaseRenal diseaseKidney diseaseIntensive treatmentAdvance carePatient valuesCognitive declinePatientsSignificant mortalityClinical literatureDecision-making capacityDaily practiceDiseaseYears of supportPhysiciansConvincing evidenceMore trainingMorbidityHospitalClinicMortality