2022
Codesigning a community-based participatory research project to assess tribal perspectives on privacy and health data sharing: A report from the Strong Heart Study
Triplett C, Fletcher B, Taitingfong R, Zhang Y, Ali T, Ohno-Machado L, Bloss C. Codesigning a community-based participatory research project to assess tribal perspectives on privacy and health data sharing: A report from the Strong Heart Study. Journal Of The American Medical Informatics Association 2022, 29: 1120-1127. PMID: 35349678, PMCID: PMC9093024, DOI: 10.1093/jamia/ocac038.Peer-Reviewed Original ResearchAmerican Indian or Alaska NativeBiomedical ResearchCommunity-Based Participatory ResearchHumansIndians, North AmericanInformation DisseminationPrivacy
2020
A systematic literature review of Native American and Pacific Islanders’ perspectives on health data privacy in the United States
Taitingfong R, Bloss C, Triplett C, Cakici J, Garrison N, Cole S, Stoner J, Ohno-Machado L. A systematic literature review of Native American and Pacific Islanders’ perspectives on health data privacy in the United States. Journal Of The American Medical Informatics Association 2020, 27: 1987-1998. PMID: 33063114, PMCID: PMC7727344, DOI: 10.1093/jamia/ocaa235.Peer-Reviewed Reviews, Practice Guidelines, Standards, and Consensus StatementsMeSH KeywordsAmerican Indian or Alaska NativeAttitude to HealthBiological Specimen BanksConfidentialityEthics, ResearchGenetic PrivacyHealth Records, PersonalHumansNative Hawaiian or Other Pacific IslanderPrivacyUnited States