2020
A systematic literature review of Native American and Pacific Islanders’ perspectives on health data privacy in the United States
Taitingfong R, Bloss C, Triplett C, Cakici J, Garrison N, Cole S, Stoner J, Ohno-Machado L. A systematic literature review of Native American and Pacific Islanders’ perspectives on health data privacy in the United States. Journal Of The American Medical Informatics Association 2020, 27: 1987-1998. PMID: 33063114, PMCID: PMC7727344, DOI: 10.1093/jamia/ocaa235.Peer-Reviewed Reviews, Practice Guidelines, Standards, and Consensus StatementsEngaging heart failure patients from a clinical data research network: A survey on willingness to participate in different types of research.
Choi Y, López J, Meeker D, Ohno-Machado L, Kim K. Engaging heart failure patients from a clinical data research network: A survey on willingness to participate in different types of research. AMIA Annual Symposium Proceedings 2020, 2019: 305-312. PMID: 32308823, PMCID: PMC7153117.Peer-Reviewed Original ResearchConceptsClinical Data Research NetworkHeart failure patientsLarge cohort studyResearch participationResearch NetworkCohort studyFailure patientsOne-time surveyPatient cohortObservational studyPatient motivationWeight controlSignificant associationClinical researchPatientsPrecision medicineHealth dataRecruitment effortsNational effortsActivity interestsSurgeryCohort
2015
Comparison of consumers’ views on electronic data sharing for healthcare and research
Kim K, Joseph J, Ohno-Machado L. Comparison of consumers’ views on electronic data sharing for healthcare and research. Journal Of The American Medical Informatics Association 2015, 22: 821-830. PMID: 25829461, PMCID: PMC5009901, DOI: 10.1093/jamia/ocv014.Peer-Reviewed Original ResearchConceptsElectronic data sharingData sharingHealth information exchangeData networksHealth informationTechnology infrastructureInformation exchangePrivacyHealth Insurance PortabilitySharingAccountability ActUse of dataInsurance PortabilitySecurityNetworkInformationHealthcareIndividual controlHealthcare deliveryMere relianceDepth studyPortabilityAccessInfrastructureComparison of consumers