Goal Attainment Scaling for haemophilia (GAS‐Hēm): testing the feasibility of a new patient‐centric outcome measure in people with haemophilia
Roberts J, Lattimore S, Recht M, Jackson S, Gue D, Squire S, Robinson K, Price V, Denne M, Richardson S, Rockwood K. Goal Attainment Scaling for haemophilia (GAS‐Hēm): testing the feasibility of a new patient‐centric outcome measure in people with haemophilia. Haemophilia 2018, 24: e199-e206. PMID: 29626387, DOI: 10.1111/hae.13454.Peer-Reviewed Original ResearchConceptsGoal Attainment ScalingStandardized response meanGoal attainmentQOL measuresPatient-centred outcome measuresAnnualized bleeding ratePatient-reported outcomesProportion of participantsQuality of lifeSelf-defined goalsResponse meanContent validityPatients aged 5Construct validityOutcome measuresPrimary outcomeAged 5QoLLeisure activitiesParticipantsGoal areasScoresAttainmentNorth American centresJoint problem
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