2024
Daily care hours among caregivers of older emergency department patients with dementia and undiagnosed cognitive impairment
Galske J, Chera T, Hwang U, Monin J, Venkatesh A, Lam K, Leggett A, Gettel C. Daily care hours among caregivers of older emergency department patients with dementia and undiagnosed cognitive impairment. Journal Of The American Geriatrics Society 2024, 72: 3261-3264. PMID: 38970304, PMCID: PMC11461120, DOI: 10.1111/jgs.19062.Peer-Reviewed Original Research‘If I don’t take care of me, then I can’t be there for others:’ a qualitative study of caregiving relationships among older women living with HIV
Vu T, Quinn M, Womack J, Monin J. ‘If I don’t take care of me, then I can’t be there for others:’ a qualitative study of caregiving relationships among older women living with HIV. Aging & Mental Health 2024, 28: 1304-1315. PMID: 38327025, DOI: 10.1080/13607863.2024.2313729.Peer-Reviewed Original ResearchCare networkHIV managementOlder womenPublic health programsCommunity-based organizationsPopulation of womenCare recipientsHealthcare discussionsOWLHHealth programsThematic analysisParticipants 1Qualitative studyCaregiversSemi-structuredCareEducational effortsHIVSources of meaningWomenParticipantsPerformance contentHealthcareYearsHealth“How can I be a caregiver for a second time?” A call to action to acknowledge and support experienced family caregivers
Mroz E, Fried T, Monin J. “How can I be a caregiver for a second time?” A call to action to acknowledge and support experienced family caregivers. Journal Of The American Geriatrics Society 2024, 72: 971-975. PMID: 38206857, PMCID: PMC10947907, DOI: 10.1111/jgs.18740.Peer-Reviewed Original ResearchFamily caregiversCaregivers
2023
PREPARING “EXPERIENCED” CAREGIVERS FOR FUTURE CARE: PERSPECTIVES FROM FORMER CAREGIVERS OF PARENTS WITH DEMENTIA
Mroz E, Piechota A, Ali T, Matta-Singh T, Abboud A, Sharma S, Fried T, Monin J. PREPARING “EXPERIENCED” CAREGIVERS FOR FUTURE CARE: PERSPECTIVES FROM FORMER CAREGIVERS OF PARENTS WITH DEMENTIA. Innovation In Aging 2023, 7: 414-415. PMCID: PMC10735791, DOI: 10.1093/geroni/igad104.1370.Peer-Reviewed Original ResearchFormer caregiversCaregiving roleNegative psychological consequencesPast experienceConsensual qualitative researchAdult child caregiversCare partnersPsychological consequencesDiminished senseDiminished confidencePositive senseNegative consequencesPersonal narrativesCaregiversParentsQualitative studyCumulative advantageConfidenceDementiaExperienceQualitative researchSkillsCare rolesTheory techniquesAdulthoodSELF- AND PROXY-REPORTED MET NEEDS IN PERSONS WITH DEMENTIA ARE ASSOCIATIED WITH A LOWER HEALTH-RELATED QUALITY OF LIFE
Wammes J, Laws H, van Hout H, Vroomen J, Monin J. SELF- AND PROXY-REPORTED MET NEEDS IN PERSONS WITH DEMENTIA ARE ASSOCIATIED WITH A LOWER HEALTH-RELATED QUALITY OF LIFE. Innovation In Aging 2023, 7: 792-792. PMCID: PMC10739274, DOI: 10.1093/geroni/igad104.2557.Peer-Reviewed Original ResearchPersonal Health Planning in Adult-Child Former Caregivers of Parents Living With Dementia
Mroz E, Ali T, Piechota A, Matta-Singh T, Abboud A, Sharma S, Monin J, Fried T. Personal Health Planning in Adult-Child Former Caregivers of Parents Living With Dementia. American Journal Of Health Promotion 2023, 38: 402-411. PMID: 37770019, PMCID: PMC10922991, DOI: 10.1177/08901171231204670.Peer-Reviewed Original ResearchFormer caregiversPersonal health planningDiverse teamsSemi-structured interviewsPrimary caregiversHealthy agingHealth planningInterview recordingsDementia engageCaregiversParentsInterview promptsPessimistic viewQualitative studyResearch domainHealth planning activitiesDementia 3DementiaAnxietyFeelingsParticipantsPromptsHealthEngageInterventionFormer dementia caregivers’ high and low point narratives: what is remembered, and how is it shared?
Matta-Singh T, Sharma S, Ali T, Piechota A, Abboud A, Fried T, Monin J, Mroz E. Former dementia caregivers’ high and low point narratives: what is remembered, and how is it shared? Aging & Mental Health 2023, 28: 427-435. PMID: 37712688, PMCID: PMC10922763, DOI: 10.1080/13607863.2023.2256252.Peer-Reviewed Original ResearchSelf- reported and informal caregiver proxy-reported met needs in persons living with dementia are associated with lower health-related quality of life: a dyadic, cross-sectional study
Wammes J, Laws H, van Hout H, Vroomen J, Monin J. Self- reported and informal caregiver proxy-reported met needs in persons living with dementia are associated with lower health-related quality of life: a dyadic, cross-sectional study. Aging & Mental Health 2023, 28: 422-426. PMID: 37622184, DOI: 10.1080/13607863.2023.2248047.Peer-Reviewed Original ResearchRewriting the Story of Mid- and Late-Life Family Caregiving: Applying a Narrative Identity Framework
Mroz E, Monin J, Gaugler J, Matta-Singh T, Fried T. Rewriting the Story of Mid- and Late-Life Family Caregiving: Applying a Narrative Identity Framework. The Gerontologist 2023, 64: gnad040. PMID: 37018754, PMCID: PMC10809219, DOI: 10.1093/geront/gnad040.Peer-Reviewed Original ResearchNarrative identity frameworkIdentity frameworkMemory systemNarrative therapy interventionFamily caregiversBehavioral outcomesTherapy interventionHealth-related outcomesFamily caregivingNegative consequencesLater lifeCaregiversLater life healthStress modelAdverse consequencesOlder peopleHealth needsExperienceIntensive supportLived experienceLife healthCaregivingBehaviorResearchCentral mechanismsImplicit and Explicit Dehumanization of Older Family Members: Novel Determinants of Elder Abuse Proclivity
Chang E, Monin J, Isenberg N, Zelterman D, Levy B. Implicit and Explicit Dehumanization of Older Family Members: Novel Determinants of Elder Abuse Proclivity. Stigma And Health 2023, 8: 40-48. PMID: 37092028, PMCID: PMC10120856, DOI: 10.1037/sah0000370.Peer-Reviewed Original ResearchExplicit dehumanizationElder abuseSelf-reported factorsOlder personsPsychological factorsOlder family membersCare-recipient healthDehumanizationFamily caregiversCurrent studyCaregiver burdenAbuseMost researchCaregiversProclivityWeb-based surveyRelevant covariatesPersonsCaregiver-based interventionsFamily membersVictimsHealthInterventionRelianceNovel determinant
2022
REFLECTION AND INTENTION: END-OF-LIFE PLANNING IN FORMER CAREGIVERS OF PARENTS LIVING WITH DEMENTIA
Mroz E, Matta T, Ali T, Piechota A, Abboud A, Sharma S, Monin J, Fried T. REFLECTION AND INTENTION: END-OF-LIFE PLANNING IN FORMER CAREGIVERS OF PARENTS LIVING WITH DEMENTIA. Innovation In Aging 2022, 6: 210-211. PMCID: PMC9765643, DOI: 10.1093/geroni/igac059.840.Peer-Reviewed Original ResearchDetermining best‐in‐practice dyadic discrete choice experiments to enable persons with dementia and informal caregivers to participate in health care decision‐making: a feasibility study
Wammes J, Swait J, Labrie N, Monin J, de Bekker Grob E, Vroomen J. Determining best‐in‐practice dyadic discrete choice experiments to enable persons with dementia and informal caregivers to participate in health care decision‐making: a feasibility study. Alzheimer's & Dementia 2022, 18 DOI: 10.1002/alz.064279.Peer-Reviewed Original ResearchChoice taskTask complexityChoice task complexityIndividual cognitive limitationsInformal caregiversJoint decision-making processCognitive limitationsElicitation taskCognitive screeningCognitive burdenSevere cognitive impairmentCognitive statusHeuristic decisionCognitive impairmentTaskChoice motivationsCaregiversDecision-making processJoint decisionDementiaPersonsGreater empowermentMajority of persons
2021
Dehumanization of Older Family Members: Novel Determinants of Elder Abuse Proclivity by Caregivers
Chang E, Monin J, Zelterman D, Isenberg N, Levy B. Dehumanization of Older Family Members: Novel Determinants of Elder Abuse Proclivity by Caregivers. Innovation In Aging 2021, 5: 322-322. PMCID: PMC8680248, DOI: 10.1093/geroni/igab046.1250.Peer-Reviewed Original ResearchExplicit dehumanizationDenial of humannessFamily caregiversCaregiver burdenSelf-reported factorsCaregiver Abuse ScreenAge stereotypesAbuse perpetrationOlder personsPsychological factorsOlder family membersCare-recipient healthDehumanizationElder abuseAbuse ScreenCaregiversCurrent studyMost researchProclivityAbuseRelevant covariatesPersonsFamily membersPerpetrationHumannessStructural and Individual Ageism Predicts Elder Abuse Proclivity and Perpetration
Chang E, Monin J, Zelterman D, Levy B. Structural and Individual Ageism Predicts Elder Abuse Proclivity and Perpetration. Innovation In Aging 2021, 5: 89-89. PMCID: PMC8680997, DOI: 10.1093/geroni/igab046.338.Peer-Reviewed Original Research
2019
Enfeeblement in Elders with Essential Tremor: Characterizing the Phenomenon and Its Role in Caregiver Burden
Cersonsky T, Diaz D, Kellner S, Hickman R, Zdrodowska M, Monin J, Louis E. Enfeeblement in Elders with Essential Tremor: Characterizing the Phenomenon and Its Role in Caregiver Burden. Tremor And Other Hyperkinetic Movements 2019, 9 DOI: 10.5334/tohm.461.Peer-Reviewed Original ResearchCaregiver burdenEssential tremorAssessment of patientsCommon movement disorderGreater tremor severityMore depressive symptomsCaregivers of individualsClinical correlatesFunctional impairmentMovement disordersGait disabilityCaregiver needsDepressive symptomsOverall healthTremor severityOlder ageGreater burdenCaregiversTremorBurdenCognitive difficultiesDisabilityScoresEldersIndividuals
2014
Compassionate Love in Individuals With Alzheimer’s Disease and Their Spousal Caregivers: Associations With Caregivers’ Psychological Health
Monin JK, Schulz R, Feeney BC. Compassionate Love in Individuals With Alzheimer’s Disease and Their Spousal Caregivers: Associations With Caregivers’ Psychological Health. The Gerontologist 2014, 55: 981-989. PMID: 24534607, PMCID: PMC4668762, DOI: 10.1093/geront/gnu001.Peer-Reviewed Original ResearchConceptsDepressive symptomsAlzheimer's diseaseSpousal caregiversCaregivers' positive appraisalsCaregiver depressive symptomsSelf-reported burdenPositive caregiving appraisalsCaregiver burdenAD individualsSignificant associationSymptomsDiseaseCaregiversCaregiving appraisalsBurdenPositive appraisalPsychological healthAssociationLess burdenCaregivingIndividualsCompassionate love
2012
Caregiving spouses’ attachment orientations and the physical and psychological health of individuals with Alzheimer's disease
Monin JK, Schulz R, Kershaw TS. Caregiving spouses’ attachment orientations and the physical and psychological health of individuals with Alzheimer's disease. Aging & Mental Health 2012, 17: 508-516. PMID: 23215899, PMCID: PMC3596494, DOI: 10.1080/13607863.2012.747080.Peer-Reviewed Original ResearchConceptsPsychological health symptomsAttachment orientationsHealth symptomsAnxious attachmentSpousal caregiversSelf-report measuresPhysical health symptomsAttachment securityAvoidant attachmentAttachment theoryPsychological healthMore physical symptomsPartner reportsCaregiving spousesPsychological symptomsFeeling of securityChronic illnessPhysical symptomsAlzheimer's diseaseCaregiversUseful frameworkIndividualsPersonsEmotionsAttachmentLinguistic Markers of Emotion Regulation and Cardiovascular Reactivity Among Older Caregiving Spouses
Monin JK, Schulz R, Lemay EP, Cook TB. Linguistic Markers of Emotion Regulation and Cardiovascular Reactivity Among Older Caregiving Spouses. Psychology And Aging 2012, 27: 903-911. PMID: 22369634, PMCID: PMC3938912, DOI: 10.1037/a0027418.Peer-Reviewed Original ResearchConceptsEmotion regulationPartners' sufferingCognitive processing wordsLinguistic markersPositive emotion wordsHR reactivityHigher HR reactivityLower HR reactivityEmotion wordsProcessing wordsWord useCardiovascular stress reactivityResilient caregiversVerbal accountsStress reactivityCaregiving spousesSpousal caregiversCardiovascular reactivityPartner interactionsCaregiver burdenCaregiversWordsLinguistic analysisEmotionsSuffering
2010
Spouses’ Cardiovascular Reactivity to Their Partners’ Suffering
Monin JK, Schulz R, Martire LM, Jennings JR, Lingler JH, Greenberg MS. Spouses’ Cardiovascular Reactivity to Their Partners’ Suffering. The Journals Of Gerontology Series B 2010, 65B: 195-201. PMID: 20067977, PMCID: PMC2821945, DOI: 10.1093/geronb/gbp133.Peer-Reviewed Original ResearchConceptsPartners' sufferingOne's sufferingBlood pressureCaregiver riskUnique influencePain expressionHeart rateOlder adultsPhysical healthCardiovascular reactivityHeavy logsSpousesTaskSufferingCardiovascular diseasePartnersPhysiological stressCaregiversRiskExposureAdultsFindingsLaboratory studiesOsteoarthritisDisease
2009
Interpersonal Effects of Suffering in Older Adult Caregiving Relationships
Monin JK, Schulz R. Interpersonal Effects of Suffering in Older Adult Caregiving Relationships. Psychology And Aging 2009, 24: 681-695. PMID: 19739924, PMCID: PMC2765123, DOI: 10.1037/a0016355.Peer-Reviewed Original ResearchConceptsInterpersonal effectsEmotional experienceCare recipientsCognitive empathyEmotion regulationIndividual differencesInterpersonal phenomenonDefensive emotionsCaregiving relationshipsRelationship closenessOlder adultsFamily caregivingPast theoriesClinical interventionsFuture researchCaregiversPhysical morbidityEmotionsSufferingEmpathyBroader understandingCaregivingResearchLearningCloseness