2024
“How can I be a caregiver for a second time?” A call to action to acknowledge and support experienced family caregivers
Mroz E, Fried T, Monin J. “How can I be a caregiver for a second time?” A call to action to acknowledge and support experienced family caregivers. Journal Of The American Geriatrics Society 2024, 72: 971-975. PMID: 38206857, PMCID: PMC10947907, DOI: 10.1111/jgs.18740.Peer-Reviewed Original ResearchFamily caregiversCaregivers
2023
PREPARING “EXPERIENCED” CAREGIVERS FOR FUTURE CARE: PERSPECTIVES FROM FORMER CAREGIVERS OF PARENTS WITH DEMENTIA
Mroz E, Piechota A, Ali T, Matta-Singh T, Abboud A, Sharma S, Fried T, Monin J. PREPARING “EXPERIENCED” CAREGIVERS FOR FUTURE CARE: PERSPECTIVES FROM FORMER CAREGIVERS OF PARENTS WITH DEMENTIA. Innovation In Aging 2023, 7: 414-415. PMCID: PMC10735791, DOI: 10.1093/geroni/igad104.1370.Peer-Reviewed Original ResearchFormer caregiversCaregiving roleNegative psychological consequencesPast experienceConsensual qualitative researchAdult child caregiversCare partnersPsychological consequencesDiminished senseDiminished confidencePositive senseNegative consequencesPersonal narrativesCaregiversParentsQualitative studyCumulative advantageConfidenceDementiaExperienceQualitative researchSkillsCare rolesTheory techniquesAdulthoodPersonal Health Planning in Adult-Child Former Caregivers of Parents Living With Dementia
Mroz E, Ali T, Piechota A, Matta-Singh T, Abboud A, Sharma S, Monin J, Fried T. Personal Health Planning in Adult-Child Former Caregivers of Parents Living With Dementia. American Journal Of Health Promotion 2023, 38: 402-411. PMID: 37770019, PMCID: PMC10922991, DOI: 10.1177/08901171231204670.Peer-Reviewed Original ResearchFormer caregiversPersonal health planningDiverse teamsSemi-structured interviewsPrimary caregiversHealthy agingHealth planningInterview recordingsDementia engageCaregiversParentsInterview promptsPessimistic viewQualitative studyResearch domainHealth planning activitiesDementia 3DementiaAnxietyFeelingsParticipantsPromptsHealthEngageInterventionFormer dementia caregivers’ high and low point narratives: what is remembered, and how is it shared?
Matta-Singh T, Sharma S, Ali T, Piechota A, Abboud A, Fried T, Monin J, Mroz E. Former dementia caregivers’ high and low point narratives: what is remembered, and how is it shared? Aging & Mental Health 2023, 28: 427-435. PMID: 37712688, PMCID: PMC10922763, DOI: 10.1080/13607863.2023.2256252.Peer-Reviewed Original ResearchRewriting the Story of Mid- and Late-Life Family Caregiving: Applying a Narrative Identity Framework
Mroz E, Monin J, Gaugler J, Matta-Singh T, Fried T. Rewriting the Story of Mid- and Late-Life Family Caregiving: Applying a Narrative Identity Framework. The Gerontologist 2023, 64: gnad040. PMID: 37018754, PMCID: PMC10809219, DOI: 10.1093/geront/gnad040.Peer-Reviewed Original ResearchNarrative identity frameworkIdentity frameworkMemory systemNarrative therapy interventionFamily caregiversBehavioral outcomesTherapy interventionHealth-related outcomesFamily caregivingNegative consequencesLater lifeCaregiversLater life healthStress modelAdverse consequencesOlder peopleHealth needsExperienceIntensive supportLived experienceLife healthCaregivingBehaviorResearchCentral mechanisms
2022
REFLECTION AND INTENTION: END-OF-LIFE PLANNING IN FORMER CAREGIVERS OF PARENTS LIVING WITH DEMENTIA
Mroz E, Matta T, Ali T, Piechota A, Abboud A, Sharma S, Monin J, Fried T. REFLECTION AND INTENTION: END-OF-LIFE PLANNING IN FORMER CAREGIVERS OF PARENTS LIVING WITH DEMENTIA. Innovation In Aging 2022, 6: 210-211. PMCID: PMC9765643, DOI: 10.1093/geroni/igac059.840.Peer-Reviewed Original ResearchGiving up on the objective of providing goal‐concordant care: Advance care planning for improving caregiver outcomes
Fried TR. Giving up on the objective of providing goal‐concordant care: Advance care planning for improving caregiver outcomes. Journal Of The American Geriatrics Society 2022, 70: 3006-3011. PMID: 35974460, PMCID: PMC9588724, DOI: 10.1111/jgs.18000.Peer-Reviewed Original ResearchConceptsAdvance care planningGoal-concordant careCaregiver outcomesCare planningAdvance directivesPost-traumatic stress disorderEnd of lifeAdverse outcomesPatient goalsPatient Self-Determination ActElevated riskPatient's life storyAppropriate careSelf-Determination ActStress disorderCareCaregiversHealthcare agentsOutcomesPatientsFacilitation of communicationPrimary objectiveCritical determinantClinicians
2017
CAREGIVING ICAREGIVING ASSISTANCE PROVIDED TO OLDER ADULTS WITH AND WITHOUT DEMENTIA AND DISABILITY
Riffin C, Van Ness P, Wolff J, Fried T. CAREGIVING ICAREGIVING ASSISTANCE PROVIDED TO OLDER ADULTS WITH AND WITHOUT DEMENTIA AND DISABILITY. Innovation In Aging 2017, 1: 138-139. PMCID: PMC6242145, DOI: 10.1093/geroni/igx004.557.Peer-Reviewed Original ResearchCaregiver burdenOlder adultsCommunity-dwelling older adultsSignificant linear associationMantel-Haenszel trend testAging Trends StudyUnadjusted analysesNational HealthHigh riskOlder personsDementiaCaregiver rolePrimary caregiversLinear associationCaregiversDisabilityBurdenInformal caregivingAdultsNational studyComposite measureRepresentative sampleTrends StudyGroupCaregivingBURDEN AMONG CAREGIVERS OF OLDER ADULTS WITHOUT DEMENTIA OR DISABILITY: WHO IS AT RISK?
Riffin C, Van Ness P, Wolff J, Fried T. BURDEN AMONG CAREGIVERS OF OLDER ADULTS WITHOUT DEMENTIA OR DISABILITY: WHO IS AT RISK? Innovation In Aging 2017, 1: 140-141. PMCID: PMC6242125, DOI: 10.1093/geroni/igx004.564.Peer-Reviewed Original ResearchOlder adultsCaregiver burdenMultivariable logistic regression modelCommunity-dwelling older adultsDisease-specific samplesAging Trends StudyLogistic regression modelsSelf-reported depressionNational HealthHealth characteristicsHigh riskHealth management tasksSevere disabilityPoor healthPrimary caregiversIADLCaregiversDementiaAdultsBurdenNational studyRiskComposite measureRegression modelsDisability
2002
Factors associated with caregiver burden among caregivers of patients with cancer in a hospice setting
Goldstein N, Concato J, Fried T, Cherlin E, Kasl S, Bradley E. Factors associated with caregiver burden among caregivers of patients with cancer in a hospice setting. Journal Of Clinical Epidemiology 2002, 55: 628. DOI: 10.1016/s0895-4356(02)00418-3.Peer-Reviewed Original ResearchCaregivers of patientsCaregiver burdenSocio-demographic characteristicsSocial Network IndexCaregivers' socio-demographic characteristicsSelf-reported health statusZarit Burden InventoryLevel of burdenCross-sectional surveyBurden scoreBurden InventoryChronic illnessSummary scoresHospice settingsCaregivers' perceptionsHealth statusWorse scoresYounger ageCaregivers' feelingsGreater burdenLogistic regressionUpper quartilePrimary caregiversPatientsCaregivers