2024
Advancing patient-centered research practices in a pragmatic patient-level randomized clinical trial: A thematic analysis of stakeholder engagement in Emergency Medicine Palliative Care Access (EMPallA)
Zhao N, Cuthel A, Storms O, Zhang R, Yamarik R, Hill J, Kaur R, Van Allen K, Flannery M, Chang A, Chung F, Randhawa S, Alvarez I, Young-Brinn A, Kizzie-Gillett C, Rosini D, Isaacs E, Hopkins E, Chan G, Booker-Vaughns J, Maguire M, Navarro M, Pidatala N, Dunn P, Williams P, Galvin R, Batra R, Welsh S, Vaughan W, Bouillon-Minois J, Grudzen C. Advancing patient-centered research practices in a pragmatic patient-level randomized clinical trial: A thematic analysis of stakeholder engagement in Emergency Medicine Palliative Care Access (EMPallA). Research Involvement And Engagement 2024, 10: 10. PMID: 38263088, PMCID: PMC10807180, DOI: 10.1186/s40900-023-00539-x.Peer-Reviewed Original ResearchStudy advisory committeePalliative care accessRandomized controlled trialsCare accessThematic analysisCommunity-based participatory researchCare of older adultsPragmatic two-arm randomized controlled trialTwo-arm randomized controlled trialOutpatient palliative carePalliative care experienceTelephonic case managementMulti-city randomized control trialSpanish-speaking patientsInstitutional review boardQualitative thematic analysisAdvanced illnessBackgroundInvolving patientsCare experiencesPatient goalsPatient-focusedStudy phaseHealth careHealthcare organizationsFamily needsWhat's in This For You? What's in This For Me?: A Win-Win Perspective of Involving Study Advisory Committee Members in Palliative Care Research
Booker-Vaughns J, Rosini D, Batra R, Chan G, Dunn P, Galvin R, Hopkins E, Isaacs E, Kizzie-Gillett C, Maguire M, Navarro M, Pidatala N, Vaughan W, Welsh S, Williams P, Young-Brinn A, Van Allen K, Cuthel A, Yamarik R, Flannery M, Goldfeld K, Grudzen C. What's in This For You? What's in This For Me?: A Win-Win Perspective of Involving Study Advisory Committee Members in Palliative Care Research. Journal Of Patient Experience 2024, 11: 23743735231224562. PMID: 38188534, PMCID: PMC10768616, DOI: 10.1177/23743735231224562.Peer-Reviewed Original Research
2021
Pragmatic Considerations in Incorporating Stakeholder Engagement Into a Palliative Care Transitions Study
de Forcrand C, Flannery M, Cho J, Pidatala N, Batra R, Booker-Vaughns J, Chan G, Dunn P, Galvin R, Hopkins E, Isaacs E, Kizzie-Gillett C, Maguire M, Navarro M, Rosini D, Vaughan W, Welsh S, Williams P, Young-Brinn A, Grudzen C. Pragmatic Considerations in Incorporating Stakeholder Engagement Into a Palliative Care Transitions Study. Medical Care 2021, 59: s370-s378. PMID: 34228019, PMCID: PMC8263137, DOI: 10.1097/mlr.0000000000001583.Peer-Reviewed Original ResearchConceptsControl clinical trialHealth care payersOutcomes Research InstituteClinical trialsHealth care researchPatient advocacy organizationsPatient recruitmentCare payersStudy designCare researchPatientsAdvisory CommitteePerson meetingsMulticenterGroupStakeholder engagement methodsAdvocacy organizationsTrialsCaregivers