Advancing patient-centered research practices in a pragmatic patient-level randomized clinical trial: A thematic analysis of stakeholder engagement in Emergency Medicine Palliative Care Access (EMPallA)
Zhao N, Cuthel A, Storms O, Zhang R, Yamarik R, Hill J, Kaur R, Van Allen K, Flannery M, Chang A, Chung F, Randhawa S, Alvarez I, Young-Brinn A, Kizzie-Gillett C, Rosini D, Isaacs E, Hopkins E, Chan G, Booker-Vaughns J, Maguire M, Navarro M, Pidatala N, Dunn P, Williams P, Galvin R, Batra R, Welsh S, Vaughan W, Bouillon-Minois J, Grudzen C. Advancing patient-centered research practices in a pragmatic patient-level randomized clinical trial: A thematic analysis of stakeholder engagement in Emergency Medicine Palliative Care Access (EMPallA). Research Involvement And Engagement 2024, 10: 10. PMID: 38263088, PMCID: PMC10807180, DOI: 10.1186/s40900-023-00539-x.Peer-Reviewed Original ResearchStudy advisory committeePalliative care accessRandomized controlled trialsCare accessThematic analysisCommunity-based participatory researchCare of older adultsPragmatic two-arm randomized controlled trialTwo-arm randomized controlled trialOutpatient palliative carePalliative care experienceTelephonic case managementMulti-city randomized control trialSpanish-speaking patientsInstitutional review boardQualitative thematic analysisAdvanced illnessBackgroundInvolving patientsCare experiencesPatient goalsPatient-focusedStudy phaseHealth careHealthcare organizationsFamily needs