2024
Life and Death: A Multicenter Study Evaluating Cardiologists’ Approach to Difficult Conversations with Fontan Patients and Families
Lee S, Rathod R, Valente A, Davey B, Wu F, Drucker N, Lombardi K, St. Clair N, Azcue N, Toro-Salazar O, Elder R. Life and Death: A Multicenter Study Evaluating Cardiologists’ Approach to Difficult Conversations with Fontan Patients and Families. Pediatric Cardiology 2024, 1-8. PMID: 39164409, DOI: 10.1007/s00246-024-03631-5.Peer-Reviewed Original ResearchPatient-related barriersGoals of carePhysician demographic dataProvider-relatedEnrollment of individualsPerceived barriersRisk counselingLongitudinal careMental healthThematic approachYears post fellowshipFontan patientsLack of familiarityAdverse event riskDifficult conversationsOutpatient cardiologistPsychosocial stressorsNarrative commentsSignificant barriersAdolescent/young adultPatient-relatedSocial barriersDemographic dataCardiologists' attitudesCare
2023
Unique clinical challenges for the teenager with congenital heart disease
Pastor T, Elder R. Unique clinical challenges for the teenager with congenital heart disease. Current Opinion In Pediatrics 2023, 35: 553-560. PMID: 37700620, DOI: 10.1097/mop.0000000000001281.Peer-Reviewed Original ResearchConceptsCongenital heart diseaseHeart diseaseHeart-healthy behaviorsUnderlying medical conditionsAdult-oriented careCareful history takingImportance of exerciseUnique clinical challengesImportant long-term benefitsMental health concernsOutpatient cardiologistCHD riskCHD patientsLong-term benefitsPotential complicationsWeight managementAppropriate screeningClinical challengeMedical conditionsHistory takingClinical practiceSexual healthCHD adolescentsHealth concernMotivational interviewing