Life and Death: A Multicenter Study Evaluating Cardiologists’ Approach to Difficult Conversations with Fontan Patients and Families
Lee S, Rathod R, Valente A, Davey B, Wu F, Drucker N, Lombardi K, St. Clair N, Azcue N, Toro-Salazar O, Elder R. Life and Death: A Multicenter Study Evaluating Cardiologists’ Approach to Difficult Conversations with Fontan Patients and Families. Pediatric Cardiology 2024, 1-8. PMID: 39164409, DOI: 10.1007/s00246-024-03631-5.Peer-Reviewed Original ResearchPatient-related barriersGoals of carePhysician demographic dataProvider-relatedEnrollment of individualsPerceived barriersRisk counselingLongitudinal careMental healthThematic approachYears post fellowshipFontan patientsLack of familiarityAdverse event riskDifficult conversationsOutpatient cardiologistPsychosocial stressorsNarrative commentsSignificant barriersAdolescent/young adultPatient-relatedSocial barriersDemographic dataCardiologists' attitudesCare