2021
Refining Patient-Centered Measures of End-of-Life Care Quality for Children With Cancer
Ananth P, Mun S, Reffat N, Kang SJ, Pitafi S, Ma X, Gross CP, Wolfe J. Refining Patient-Centered Measures of End-of-Life Care Quality for Children With Cancer. JCO Oncology Practice 2021, 18: e372-e382. PMID: 34613797, PMCID: PMC8932486, DOI: 10.1200/op.21.00447.Peer-Reviewed Original ResearchConceptsMedian importance scoresPalliative care consultationHealth care usePatient-reported outcomesCross-sectional electronic surveyLife care qualityPatient-centered measuresHealth care teamHealth care professionalsHealth care resourcesCandidate quality measuresCancer stakeholdersSymptom screeningCare consultationsCare useCare teamLife careCare professionalsPatient needsCare resourcesFamily stakeholdersCare qualityMedian scoreQuality measuresElectronic survey
2020
Parent Perceptions of Team-Delivered Care for Children With Advanced Cancer: A Report From the PediQUEST Study
Feraco AM, Ananth P, Dussel V, Al-Sayegh H, Ma C, Rosenberg AR, Feudtner C, Wolfe J. Parent Perceptions of Team-Delivered Care for Children With Advanced Cancer: A Report From the PediQUEST Study. Journal Of Pain And Symptom Management 2020, 60: 811-817. PMID: 32450115, PMCID: PMC7508972, DOI: 10.1016/j.jpainsymman.2020.05.019.Peer-Reviewed Original ResearchConceptsAdvanced cancerCare teamIndividual cliniciansExact testCare qualityRatings of careFisher's exact testHealth care teamSymptom management trialsParents' perceptionsChildhood cancer careCross-sectional surveyOne-third reportInterprofessional health care teamsCare of childrenClinician typePediQUEST studyPrimary outcomeParents of childrenCancer careAssociated FactorsRefractory cancerChild's oncologistExcellent careCancer