2023
Defining the denominator for measuring quality of end-of-life care in children with cancer: Results of a nominal group technique.
Johnston E, Tefera R, Ananth P, Martinez I, Porter A, Snaman J, Thienprayoon R, Asch S, Bhatia S, O'Beirne R. Defining the denominator for measuring quality of end-of-life care in children with cancer: Results of a nominal group technique. JCO Oncology Practice 2023, 19: 227-227. DOI: 10.1200/op.2023.19.11_suppl.227.Peer-Reviewed Original ResearchEOL quality measuresPoor-prognosis cancerQuality of EOLSpecific treatment scenarioNominal group techniqueHigh-quality EOL carePediatric palliative carePediatric critical careQuality of endNon-Hispanic whitesNational Quality ForumClinical program developmentAdvanced diseasePalliative carePediatric oncologyEOL careCritical careLife careStage IIIHospice cliniciansCertain symptomsCancerQuality ForumLife quality measuresTreatment scenarios
2022
Development of Primary Palliative Care End-of-Life Quality Measures: A Modified Delphi Process.
Bogetz J, Johnston E, Thienprayoon R, Patneaude A, Ananth P, Rosenberg A. Development of Primary Palliative Care End-of-Life Quality Measures: A Modified Delphi Process. Pediatrics 2022, 150 PMID: 36437228, DOI: 10.1542/peds.2022-058241.Peer-Reviewed Original ResearchConceptsComplex chronic conditionsEOL quality measuresPediatric palliative careEnd of lifeElectronic health recordsHealth care utilizationMultidisciplinary expert panelHigh-quality pediatric palliative careManual chart reviewQuality improvement initiativesModified Delphi processChart reviewCare utilizationSymptom managementPalliative careChronic conditionsIllness trajectoryPediatric measuresLife quality measuresDelphi processHealth recordsExpert panelImprovement initiativesQuality measuresInterprofessional services