2015
Comparison of consumers’ views on electronic data sharing for healthcare and research
Kim K, Joseph J, Ohno-Machado L. Comparison of consumers’ views on electronic data sharing for healthcare and research. Journal Of The American Medical Informatics Association 2015, 22: 821-830. PMID: 25829461, PMCID: PMC5009901, DOI: 10.1093/jamia/ocv014.Peer-Reviewed Original ResearchConceptsElectronic data sharingData sharingHealth information exchangeData networksHealth informationTechnology infrastructureInformation exchangePrivacyHealth Insurance PortabilitySharingAccountability ActUse of dataInsurance PortabilitySecurityNetworkInformationHealthcareIndividual controlHealthcare deliveryMere relianceDepth studyPortabilityAccessInfrastructureComparison of consumers
2013
Data governance requirements for distributed clinical research networks: triangulating perspectives of diverse stakeholders
Kim K, Browe D, Logan H, Holm R, Hack L, Ohno-Machado L. Data governance requirements for distributed clinical research networks: triangulating perspectives of diverse stakeholders. Journal Of The American Medical Informatics Association 2013, 21: 714-719. PMID: 24302285, PMCID: PMC4078279, DOI: 10.1136/amiajnl-2013-002308.Peer-Reviewed Original ResearchConceptsFair Information Practice PrinciplesTechnical infrastructureClinical data reuseGovernance requirementsTrustworthy platformData reuseHealth Insurance PortabilityHIPAA regulationsAccountability ActNetworkInsurance PortabilityHealth informationRequirementsInformationResearch NetworkPrivacyPortabilityBest practicesInfrastructurePlatformReuseDiverse stakeholdersTimeliness
2012
iDASH: integrating data for analysis, anonymization, and sharing
Ohno-Machado L, Bafna V, Boxwala A, Chapman B, Chapman W, Chaudhuri K, Day M, Farcas C, Heintzman N, Jiang X, Kim H, Kim J, Matheny M, Resnic F, Vinterbo S, team A. iDASH: integrating data for analysis, anonymization, and sharing. Journal Of The American Medical Informatics Association 2012, 19: 196-201. PMID: 22081224, PMCID: PMC3277627, DOI: 10.1136/amiajnl-2011-000538.Commentaries, Editorials and LettersConceptsHigh-performance computing environmentPrivacy-preserving mannerCollaborative tool developmentData-sharing capabilitiesData ownersComputing environmentData consumersBiomedical computingHealth Insurance PortabilityTechnology researchTool developmentAccountability ActBiological projectsBiological dataInsurance PortabilityAnonymizationComputingPortabilityBehavioral researchersAlgorithmSoftwareCloudNew National CenterDataCapability