2024
Development of the American College of Rheumatology Patient‐Reported Outcome Quality Measures for Systemic Lupus Erythematosus
Katz P, Barber C, Duarte‐García A, Garg S, Machua W, Rodgers W, Santiago‐Casas Y, Suter L, Bartels C, Yazdany J. Development of the American College of Rheumatology Patient‐Reported Outcome Quality Measures for Systemic Lupus Erythematosus. Arthritis Care & Research 2024, 76: 777-787. PMID: 38225171, PMCID: PMC11132939, DOI: 10.1002/acr.25301.Peer-Reviewed Original ResearchMeSH KeywordsConsensusDelphi TechniqueHumansLupus Erythematosus, SystemicPatient Reported Outcome MeasuresPsychometricsReproducibility of ResultsRheumatologyUnited StatesConceptsPatient-reported outcomesPatient advisory panelPhysical functionPatient partnersExpert workgroupMulti-Dimensional Health Assessment QuestionnaireAssessment of physical functionOutcomes Measurement Information SystemQuality measuresPhysical functioning scalePatient Health QuestionnairePatient-reported outcome domainsAdvisory PanelMeasurement Information SystemPatient self-managementAssessment of fatigueHealth Assessment QuestionnaireOutcome quality measuresAssessment of depressionFeasibility of implementationHealth QuestionnaireDepression ScaleSelf-managementContent validityPsychometric review
2023
Development of American College of Rheumatology Quality Measures for Systemic Lupus Erythematosus: A Modified Delphi Process With Rheumatology Informatics System for Effectiveness (RISE) Registry Data Review
Bartels C, Jorge A, Feldman C, Zell J, Bermas B, Barber C, Duarte‐García A, Garg S, Haseley L, Jatwani S, Johansson T, Limanni A, Rodgers W, Rovin B, Santiago‐Casas Y, Suter L, Barnado A, Ude J, Aguirre A, Li J, Schmajuk G, Yazdany J. Development of American College of Rheumatology Quality Measures for Systemic Lupus Erythematosus: A Modified Delphi Process With Rheumatology Informatics System for Effectiveness (RISE) Registry Data Review. Arthritis Care & Research 2023, 75: 2295-2305. PMID: 37165898, PMCID: PMC10615706, DOI: 10.1002/acr.25143.Peer-Reviewed Original ResearchMeSH KeywordsGlucocorticoidsHumansHydroxychloroquineLupus Erythematosus, SystemicQuality Indicators, Health CareRheumatologyRoutinely Collected Health DataUnited StatesConceptsSystemic lupus erythematosusRheumatology Informatics SystemLupus erythematosusDelphi processAmerican CollegeMultidisciplinary Delphi panelPhenotyping of patientsUS rheumatology practicesUrine protein excretionQuality Improvement ProgramReview of guidelinesSLE expertsGlucocorticoid useHydroxychloroquine useKidney functionProtein excretionGlucocorticoid reductionRheumatology practiceEffectiveness (RISE) registryClinical careKidney monitoringEuropean guidelinesErythematosusValidity testingData review