2024
Development of the American College of Rheumatology Patient‐Reported Outcome Quality Measures for Systemic Lupus Erythematosus
Katz P, Barber C, Duarte‐García A, Garg S, Machua W, Rodgers W, Santiago‐Casas Y, Suter L, Bartels C, Yazdany J. Development of the American College of Rheumatology Patient‐Reported Outcome Quality Measures for Systemic Lupus Erythematosus. Arthritis Care & Research 2024, 76: 777-787. PMID: 38225171, PMCID: PMC11132939, DOI: 10.1002/acr.25301.Peer-Reviewed Original ResearchConceptsPatient-reported outcomesPatient advisory panelPhysical functionPatient partnersExpert workgroupMulti-Dimensional Health Assessment QuestionnaireAssessment of physical functionOutcomes Measurement Information SystemQuality measuresPhysical functioning scalePatient Health QuestionnairePatient-reported outcome domainsAdvisory PanelMeasurement Information SystemPatient self-managementAssessment of fatigueHealth Assessment QuestionnaireOutcome quality measuresAssessment of depressionFeasibility of implementationHealth QuestionnaireDepression ScaleSelf-managementContent validityPsychometric review
2023
Leveraging Quality Measurement to Achieve Best Practice Rheumatology Care: Can Pediatrics Lead Us?
Jatwani S, Suter L. Leveraging Quality Measurement to Achieve Best Practice Rheumatology Care: Can Pediatrics Lead Us? Arthritis Care & Research 2023, 75: 2420-2422. PMID: 37458090, DOI: 10.1002/acr.25195.Peer-Reviewed Original ResearchDevelopment of American College of Rheumatology Quality Measures for Systemic Lupus Erythematosus: A Modified Delphi Process With Rheumatology Informatics System for Effectiveness (RISE) Registry Data Review
Bartels C, Jorge A, Feldman C, Zell J, Bermas B, Barber C, Duarte‐García A, Garg S, Haseley L, Jatwani S, Johansson T, Limanni A, Rodgers W, Rovin B, Santiago‐Casas Y, Suter L, Barnado A, Ude J, Aguirre A, Li J, Schmajuk G, Yazdany J. Development of American College of Rheumatology Quality Measures for Systemic Lupus Erythematosus: A Modified Delphi Process With Rheumatology Informatics System for Effectiveness (RISE) Registry Data Review. Arthritis Care & Research 2023, 75: 2295-2305. PMID: 37165898, PMCID: PMC10615706, DOI: 10.1002/acr.25143.Peer-Reviewed Original ResearchConceptsSystemic lupus erythematosusRheumatology Informatics SystemLupus erythematosusDelphi processAmerican CollegeMultidisciplinary Delphi panelPhenotyping of patientsUS rheumatology practicesUrine protein excretionQuality Improvement ProgramReview of guidelinesSLE expertsGlucocorticoid useHydroxychloroquine useKidney functionProtein excretionGlucocorticoid reductionRheumatology practiceEffectiveness (RISE) registryClinical careKidney monitoringEuropean guidelinesErythematosusValidity testingData review
2021
Adaptation of American College of Rheumatology Rheumatoid Arthritis Disease Activity and Functional Status Measures for Telehealth Visits
England BR, Barber CEH, Bergman M, Ranganath VK, Suter LG, Michaud K. Adaptation of American College of Rheumatology Rheumatoid Arthritis Disease Activity and Functional Status Measures for Telehealth Visits. Arthritis Care & Research 2021, 73: 1809-1814. PMID: 32813284, PMCID: PMC7461171, DOI: 10.1002/acr.24429.Peer-Reviewed Original ResearchConceptsFunctional status measuresRA disease activityRheumatoid arthritis disease activityArthritis disease activityDisease activityStatus measuresTelehealth settingsJoint countTelehealth visitsAmerican CollegeFormal joint countsPatient-reported itemsTender joint countAcute phase reactantsHigh-quality clinical careClinical careExpert panelScoring modificationsStaff administrationVisitsLaboratory testingAssessment measuresACRSettingCount
2018
Development of the American College of Rheumatology Electronic Clinical Quality Measures for Gout
FitzGerald JD, Mikuls TR, Neogi T, Singh JA, Robbins M, Khanna PP, Turner AS, Myslinski R, Suter LG. Development of the American College of Rheumatology Electronic Clinical Quality Measures for Gout. Arthritis Care & Research 2018, 70: 659-671. PMID: 29649348, DOI: 10.1002/acr.23500.Peer-Reviewed Original ResearchConceptsRheumatology Informatics SystemElectronic clinical quality measuresClinical quality measuresElectronic health recordsAmerican CollegeProportion of patientsManagement of goutQuality of careTreatment of goutNational Quality ForumQuality Reporting ProgramGout guidelinesGout careHealth care stakeholdersHealth registriesEffectiveness (RISE) registrySerum urateClinical sitesQuality ForumNational endorsementCare stakeholdersGoutHealth recordsProcess measuresCare
2016
American College of Rheumatology White Paper on Performance Outcome Measures in Rheumatology
Suter LG, Barber CE, Herrin J, Leong A, Losina E, Miller A, Newman E, Robbins M, Tory H, Yazdany J. American College of Rheumatology White Paper on Performance Outcome Measures in Rheumatology. Arthritis Care & Research 2016, 68: 1390-1401. PMID: 27159835, PMCID: PMC5550018, DOI: 10.1002/acr.22936.Peer-Reviewed Original Research