2024
“WOOP is my safe haven”: A qualitative feasibility and acceptability study of the Wish Outcome Obstacle Plan (WOOP) intervention for spouses of people living with early‐stage dementia
Mroz E, Schwartz A, Valeika S, Oettingen G, Marottoli R, David D, Hagaman A, Fedus D, Monin J. “WOOP is my safe haven”: A qualitative feasibility and acceptability study of the Wish Outcome Obstacle Plan (WOOP) intervention for spouses of people living with early‐stage dementia. International Journal Of Geriatric Psychiatry 2024, 39: e6092. PMID: 38687142, PMCID: PMC11448666, DOI: 10.1002/gps.6092.Peer-Reviewed Original ResearchConceptsSpouses of peopleLongitudinal semi-structured interviewsEarly-stage dementiaCodebook thematic analysisSemi-structured interviewsCare partnersIntervention deliveryBaseline strengthThematic analysisMeta-themesQualitative studyBehavioral interventionsAreas of improvementDementiaQualitative feasibilityMental exerciseInterventionSpousesWell-beingEmotional stressorsIntervention mechanismsParticipantsAcceptability studyWishesPeople
2023
A dementia positive, family‐centered question geriatricians can ask caregivers and persons living with dementia
Monin J, Valeika S, Gil H. A dementia positive, family‐centered question geriatricians can ask caregivers and persons living with dementia. Journal Of The American Geriatrics Society 2023, 71: 2049-2051. PMID: 37027317, DOI: 10.1111/jgs.18364.Peer-Reviewed Original ResearchNavigating the COVID‐19 pandemic together: Discussions between persons with early‐stage dementia and their adult children
Ali T, Mroz E, Valeika S, Mendez E, Cohen A, Monin J. Navigating the COVID‐19 pandemic together: Discussions between persons with early‐stage dementia and their adult children. International Journal Of Geriatric Psychiatry 2023, 38: e5905. PMID: 36929513, PMCID: PMC10590087, DOI: 10.1002/gps.5905.Peer-Reviewed Original ResearchPersons living with dementia and multiple chronic conditions identifying health priorities with care partners
Vu T, Mroz E, Hernandez‐Bigos K, Chow D, Ternent R, Johnson K, Tinetti M, Monin J. Persons living with dementia and multiple chronic conditions identifying health priorities with care partners. Journal Of The American Geriatrics Society 2023, 71: 2005-2008. PMID: 36705432, PMCID: PMC10836201, DOI: 10.1111/jgs.18257.Peer-Reviewed Original ResearchDyadic Discrete Choice Experiments Enable Persons with Dementia and Informal Caregivers to Participate in Health Care Decision Making: A Mixed Methods Study
Wammes J, Swait J, de Bekker-Grob E, Monin J, Labrie N, Vroomen J. Dyadic Discrete Choice Experiments Enable Persons with Dementia and Informal Caregivers to Participate in Health Care Decision Making: A Mixed Methods Study. Journal Of Alzheimer's Disease 2023, 91: 105-114. PMID: 36373319, PMCID: PMC9881026, DOI: 10.3233/jad-220604.Peer-Reviewed Original ResearchMeSH KeywordsCaregiversChoice BehaviorDecision MakingDelivery of Health CareDementiaHumansPalliative CareConceptsChoice task
2022
“Been there, done that:” A grounded theory of future caregiver preparedness in former caregivers of parents living with dementia
Mroz E, Piechota A, Ali T, Matta‐Singh T, Abboud A, Sharma S, White M, Fried T, Monin J. “Been there, done that:” A grounded theory of future caregiver preparedness in former caregivers of parents living with dementia. Journal Of The American Geriatrics Society 2022, 71: 1495-1504. PMID: 36571504, PMCID: PMC10175151, DOI: 10.1111/jgs.18209.Peer-Reviewed Original Research
2014
Compassionate Love in Individuals With Alzheimer’s Disease and Their Spousal Caregivers: Associations With Caregivers’ Psychological Health
Monin JK, Schulz R, Feeney BC. Compassionate Love in Individuals With Alzheimer’s Disease and Their Spousal Caregivers: Associations With Caregivers’ Psychological Health. The Gerontologist 2014, 55: 981-989. PMID: 24534607, PMCID: PMC4668762, DOI: 10.1093/geront/gnu001.Peer-Reviewed Original ResearchConceptsDepressive symptomsAlzheimer's diseaseSpousal caregiversCaregivers' positive appraisalsCaregiver depressive symptomsSelf-reported burdenPositive caregiving appraisalsCaregiver burdenAD individualsSignificant associationSymptomsDiseaseCaregiversCaregiving appraisalsBurdenPositive appraisalPsychological healthAssociationLess burdenCaregivingIndividualsCompassionate love
2012
Caregiving spouses’ attachment orientations and the physical and psychological health of individuals with Alzheimer's disease
Monin JK, Schulz R, Kershaw TS. Caregiving spouses’ attachment orientations and the physical and psychological health of individuals with Alzheimer's disease. Aging & Mental Health 2012, 17: 508-516. PMID: 23215899, PMCID: PMC3596494, DOI: 10.1080/13607863.2012.747080.Peer-Reviewed Original ResearchConceptsPsychological health symptomsAttachment orientationsHealth symptomsAnxious attachmentSpousal caregiversSelf-report measuresPhysical health symptomsAttachment securityAvoidant attachmentAttachment theoryPsychological healthMore physical symptomsPartner reportsCaregiving spousesPsychological symptomsFeeling of securityChronic illnessPhysical symptomsAlzheimer's diseaseCaregiversUseful frameworkIndividualsPersonsEmotionsAttachmentLinguistic Markers of Emotion Regulation and Cardiovascular Reactivity Among Older Caregiving Spouses
Monin JK, Schulz R, Lemay EP, Cook TB. Linguistic Markers of Emotion Regulation and Cardiovascular Reactivity Among Older Caregiving Spouses. Psychology And Aging 2012, 27: 903-911. PMID: 22369634, PMCID: PMC3938912, DOI: 10.1037/a0027418.Peer-Reviewed Original ResearchConceptsEmotion regulationPartners' sufferingCognitive processing wordsLinguistic markersPositive emotion wordsHR reactivityHigher HR reactivityLower HR reactivityEmotion wordsProcessing wordsWord useCardiovascular stress reactivityResilient caregiversVerbal accountsStress reactivityCaregiving spousesSpousal caregiversCardiovascular reactivityPartner interactionsCaregiver burdenCaregiversWordsLinguistic analysisEmotionsSuffering
2010
Spouses’ Cardiovascular Reactivity to Their Partners’ Suffering
Monin JK, Schulz R, Martire LM, Jennings JR, Lingler JH, Greenberg MS. Spouses’ Cardiovascular Reactivity to Their Partners’ Suffering. The Journals Of Gerontology Series B 2010, 65B: 195-201. PMID: 20067977, PMCID: PMC2821945, DOI: 10.1093/geronb/gbp133.Peer-Reviewed Original ResearchConceptsPartners' sufferingOne's sufferingBlood pressureCaregiver riskUnique influencePain expressionHeart rateOlder adultsPhysical healthCardiovascular reactivityHeavy logsSpousesTaskSufferingCardiovascular diseasePartnersPhysiological stressCaregiversRiskExposureAdultsFindingsLaboratory studiesOsteoarthritisDisease
2009
Interpersonal Effects of Suffering in Older Adult Caregiving Relationships
Monin JK, Schulz R. Interpersonal Effects of Suffering in Older Adult Caregiving Relationships. Psychology And Aging 2009, 24: 681-695. PMID: 19739924, PMCID: PMC2765123, DOI: 10.1037/a0016355.Peer-Reviewed Original ResearchConceptsInterpersonal effectsEmotional experienceCare recipientsCognitive empathyEmotion regulationIndividual differencesInterpersonal phenomenonDefensive emotionsCaregiving relationshipsRelationship closenessOlder adultsFamily caregivingPast theoriesClinical interventionsFuture researchCaregiversPhysical morbidityEmotionsSufferingEmpathyBroader understandingCaregivingResearchLearningClosenessWillingness to Express Emotions to Caregiving Spouses
Monin JK, Martire LM, Schulz R, Clark MS. Willingness to Express Emotions to Caregiving Spouses. Emotion 2009, 9: 101-106. PMID: 19186921, PMCID: PMC2791507, DOI: 10.1037/a0013732.Peer-Reviewed Original Research