Development of Primary Palliative Care End-of-Life Quality Measures: A Modified Delphi Process.
Bogetz J, Johnston E, Thienprayoon R, Patneaude A, Ananth P, Rosenberg A. Development of Primary Palliative Care End-of-Life Quality Measures: A Modified Delphi Process. Pediatrics 2022, 150 PMID: 36437228, DOI: 10.1542/peds.2022-058241.Peer-Reviewed Original ResearchConceptsComplex chronic conditionsEOL quality measuresPediatric palliative careEnd of lifeElectronic health recordsHealth care utilizationMultidisciplinary expert panelHigh-quality pediatric palliative careManual chart reviewQuality improvement initiativesModified Delphi processChart reviewCare utilizationSymptom managementPalliative careChronic conditionsIllness trajectoryPediatric measuresLife quality measuresDelphi processHealth recordsExpert panelImprovement initiativesQuality measuresInterprofessional servicesSurvey of Pediatric Palliative Care Quality Improvement Training, Activities, and Barriers
Bogetz JF, Johnston E, Ananth P, Patneaude A, Workgroup T, Thienprayoon R, Rosenberg A. Survey of Pediatric Palliative Care Quality Improvement Training, Activities, and Barriers. Journal Of Pain And Symptom Management 2022, 64: e123-e131. PMID: 35577143, DOI: 10.1016/j.jpainsymman.2022.04.182.Peer-Reviewed Original ResearchConceptsPediatric palliative careQI activitiesHigh-quality pediatric palliative careQI effortsQI workPediatrics Task ForceHalf of participantsQuality improvement activitiesPalliative careQuality improvement trainingEducation/trainingSerious illnessImprovement NetworkElectronic surveyQI trainingOne-thirdHours totalTwo-thirdsCliniciansClinical disciplinesOne-quarterResearch NetworkTask ForceDedicated staffStandardized measures