2023
Barriers to care in juvenile localized and systemic scleroderma: an exploratory survey study of caregivers’ perspectives
Stubbs L, Ferry A, Guffey D, Loccke C, Wade E, Pour P, Ardalan K, Chira P, Ganske I, Glaser D, Higgins G, Luca N, Moore K, Sivaraman V, Stewart K, Vasquez-Canizares N, Hunt R, Maricevich R, Torok K, Li S. Barriers to care in juvenile localized and systemic scleroderma: an exploratory survey study of caregivers’ perspectives. Pediatric Rheumatology 2023, 21: 39. PMID: 37098622, PMCID: PMC10131373, DOI: 10.1186/s12969-023-00819-6.Peer-Reviewed Original ResearchConceptsSystemic sclerosisJuvenile sclerodermaSSc patientsMedical communityHealthcare needsSystemic treatment initiationSocioeconomic statusMedication side effectsGeneral medical communityRare pediatric conditionChildren's healthcare needsCross-sectional studyLow socioeconomic statusSchool/workNon-Hispanic whitesLack of knowledgeHigher socioeconomic statusAnnual household incomeActive diseaseProgressive diseaseSystemic immunosuppressantsMost patientsInitial presentationSevere morbidityTreatment initiation
2022
Parent‐in‐training: Resident and fellow experiences from pregnancy to parenthood
Sharp E, Nicholson K, Taft M, Glaser D, Gibson B, Kazmerski T. Parent‐in‐training: Resident and fellow experiences from pregnancy to parenthood. Journal Of Hospital Medicine 2022, 17: 609-623. PMID: 35855539, DOI: 10.1002/jhm.12914.Peer-Reviewed Original Research
2020
Unilateral Neuroimaging Findings in Pediatric Craniofacial Scleroderma: Parry-Romberg Syndrome and En Coup de Sabre
Seese RR, Glaser D, Furtado A, Thakkar K, Torok KS. Unilateral Neuroimaging Findings in Pediatric Craniofacial Scleroderma: Parry-Romberg Syndrome and En Coup de Sabre. Journal Of Child Neurology 2020, 35: 753-762. PMID: 32527172, DOI: 10.1177/0883073820931253.Peer-Reviewed Original ResearchConceptsParry-Romberg syndromeNeurological symptomsDiagnosis of PRSHistory of seizuresHistory of headacheCentral nervous systemPresence of susceptibilityCutaneous findingsMRI abnormalitiesRheumatological diagnosisClinical associationsEn CoupMost lesionsSupratentorial compartmentNeuroimaging findingsNervous systemWhite matterHeadachePatientsLesionsSclerodermaSeizuresSusceptibility findingsSyndromeSymptoms