2020
Patient reported outcome measures (PROMs) in amyotrophic lateral sclerosis
De Marchi F, Berry J, Chan J, Caldwell S, Ellrodt A, Scalia J, Burke K, Fang T, Clark Sisodia R, Schwamm L, Moura L, Paganoni S. Patient reported outcome measures (PROMs) in amyotrophic lateral sclerosis. Journal Of Neurology 2020, 267: 1754-1759. PMID: 32125520, DOI: 10.1007/s00415-020-09774-8.Peer-Reviewed Original ResearchConceptsOutcome measuresClinical careALS Functional RatingMental health subscoresALSFRS-R scoreOutpatient clinic visitsOutcomes Measurement Information SystemClinical outcome measuresRoutine clinical careMental health scoresAmyotrophic lateral sclerosisMeasurement Information SystemQuality of lifeTablet-based surveyALS careALS clinicClinic visitsPROM scoresFunctional ratingClinic staffHealth scoresLateral sclerosisPROM collectionPatientsPhysical health
2019
Adjusted cost analysis of video televisits for the care of people with amyotrophic lateral sclerosis
Paganoni S, van de Rijn M, Drake K, Burke K, Doyle M, Ellrodt A, Nicholson K, Atassi N, de Marchi F, Babu S, Estrada J, Schwamm L, Berry J. Adjusted cost analysis of video televisits for the care of people with amyotrophic lateral sclerosis. Muscle & Nerve 2019, 60: 147-154. PMID: 31136007, PMCID: PMC6772103, DOI: 10.1002/mus.26606.Peer-Reviewed Original ResearchMeSH KeywordsAmbulatory CareAmyotrophic Lateral SclerosisCaregiversCost of IllnessCost SavingsCosts and Cost AnalysisHousingHumansSick LeaveTelemedicineTravelVideoconferencing
2017
Experience with telemedicine in a multi-disciplinary ALS clinic
Van De Rijn M, Paganoni S, Levine-Weinberg M, Campbell K, Ellrodt A, Estrada J, Cohen A, Schwamm L, Berry J. Experience with telemedicine in a multi-disciplinary ALS clinic. Amyotrophic Lateral Sclerosis And Frontotemporal Degeneration 2017, 19: 143-148. PMID: 29250986, DOI: 10.1080/21678421.2017.1392577.Peer-Reviewed Original ResearchMeSH KeywordsAdultAgedAged, 80 and overAmbulatory Care FacilitiesAmyotrophic Lateral SclerosisData CollectionDelivery of Health CareFemaleHumansMaleMiddle AgedRetrospective StudiesTelemedicine