2020
Engaging heart failure patients from a clinical data research network: A survey on willingness to participate in different types of research.
Choi Y, López J, Meeker D, Ohno-Machado L, Kim K. Engaging heart failure patients from a clinical data research network: A survey on willingness to participate in different types of research. AMIA Annual Symposium Proceedings 2020, 2019: 305-312. PMID: 32308823, PMCID: PMC7153117.Peer-Reviewed Original ResearchConceptsClinical Data Research NetworkHeart failure patientsLarge cohort studyResearch participationResearch NetworkCohort studyFailure patientsOne-time surveyPatient cohortObservational studyPatient motivationWeight controlSignificant associationClinical researchPatientsPrecision medicineHealth dataRecruitment effortsNational effortsActivity interestsSurgeryCohort
2015
Symptom trends in the last year of life from 1998 to 2010: a cohort study.
Singer A, Meeker D, Teno J, Lynn J, Lunney J, Lorenz K. Symptom trends in the last year of life from 1998 to 2010: a cohort study. Annals Of Internal Medicine 2015, 162: 175-83. PMID: 25643305, PMCID: PMC4346253, DOI: 10.7326/m13-1609.Peer-Reviewed Original ResearchConceptsProxy reportsPain intensitySymptom prevalenceLife careProxy-reported painChronic lung diseaseCongestive heart failureManagement of painPrevalence of depressionEnd of lifeCohort studySevere painHeart failureLung diseaseObservational studyTroubling symptomsSudden deathIndividual symptomsAlarming symptomsPainFamily respondentsHRS participantsSymptom trendsPrevalenceRepresentative longitudinal survey