2019
“I'm essentially his pancreas”: Parent perceptions of diabetes burden and opportunities to reduce burden in the care of children <8 years old with type 1 diabetes
Commissariat PV, Harrington KR, Whitehouse AL, Miller KM, Hilliard ME, Van Name M, DeSalvo DJ, Tamborlane WV, Anderson BJ, DiMeglio LA, Laffel LM. “I'm essentially his pancreas”: Parent perceptions of diabetes burden and opportunities to reduce burden in the care of children <8 years old with type 1 diabetes. Pediatric Diabetes 2019, 21: 377-383. PMID: 31808586, PMCID: PMC7830825, DOI: 10.1111/pedi.12956.Peer-Reviewed Original ResearchConceptsType 1 diabetesGlycemic controlDiabetes burdenSecondary caregiversEmotional burdenChildren's glycemic controlYoung childrenCare of childrenAge 5.2Parents' perceptionsCaregivers' knowledgeClinical centersSemi-structured qualitative interviewsDiabetesDiabetes educationParental burdenHealthcare providersAge groupsInsulin pumpParents' burdenT1DChildren's qualityChild's diabetesParents' knowledgeParents' confidence
2003
Quality of Life in School-Aged Children With Type 1 Diabetes on Intensive Treatment and Their Parents
Whittemore R, Urban AD, Tamborlane WV, Grey M. Quality of Life in School-Aged Children With Type 1 Diabetes on Intensive Treatment and Their Parents. The Science Of Diabetes Self-Management And Care 2003, 29: 847-854. PMID: 14603873, DOI: 10.1177/014572170302900514.Peer-Reviewed Original ResearchMeSH KeywordsAdaptation, PsychologicalAdultChildCritical CareCross-Sectional StudiesDepressive DisorderDiabetes Mellitus, Type 1Family HealthFemaleHumansInsulin Infusion SystemsMaleMultivariate AnalysisParentsPsychology, ChildQuality of LifeRegression AnalysisSocial SupportSurveys and QuestionnairesTreatment OutcomeConceptsType 1 diabetesQuality of lifeSchool-aged childrenIntensive treatmentMetabolic controlGood metabolic controlComplex chronic illnessDemands of treatmentCross-sectional analysisMost school-age childrenFamily psychosocial variablesChronic illnessIntensive psychosocial supportDepressive symptomsPsychosocial supportDiabetesChildren's qualityPsychosocial variablesChildrenTreatmentFamily factorsParentsSymptomsIllness