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Poynter Lecture Healthcare for Every Body – Best Practices for Caring for Higher Weight Patients

April 04, 2024
  • 00:00OK. Oh, there you are.
  • 00:02OK. Hi, everybody.
  • 00:03Welcome. I'm Anna Reisman,
  • 00:05director of the Program for
  • 00:06Humanities and Medicine and
  • 00:08very pleased to be here with you
  • 00:10for this point to lecture. Healthcare
  • 00:12for everybody, Everybody.
  • 00:13Best practices for caring for higher
  • 00:16weight patients Featuring Reagan Chastain.
  • 00:19And this talk is happening.
  • 00:22Thanks to medical student Chinya Jelly.
  • 00:28And so I will introduce Chinya and then
  • 00:30turn it over to Chinya to introduce
  • 00:33Reagan and to lead the rest of the hour.
  • 00:37So Chinya is a fourth year
  • 00:38medical student here at Yale.
  • 00:40Her research and career interests include
  • 00:42HealthEquity and Health Policy.
  • 00:44Through her participation in many
  • 00:46extracurricular activities, she acts
  • 00:47as an advocate for medical trainees
  • 00:49and patients from backgrounds
  • 00:51underrepresented in medicine.
  • 00:52She recently matched into the
  • 00:54Family Medicine Residency program
  • 00:56at the University of Pennsylvania.
  • 00:58Thank you, Jing.
  • 01:05Hi, everyone. Thank you so much for coming.
  • 01:07Just gonna adjust this mic. Yeah.
  • 01:10So I now have the honor of introducing
  • 01:13our speaker, Reagan Chastain.
  • 01:15She's got many accolades,
  • 01:16and I'm just trying to go
  • 01:18through as many as possible.
  • 01:19Reagan Chastain is a speaker,
  • 01:21writer, researcher,
  • 01:22board certified patient advocate,
  • 01:25multi certified health
  • 01:26and fitness professional,
  • 01:27and thought leader in weight science,
  • 01:29weight stigma, health and healthcare.
  • 01:32Utilizing her background in research,
  • 01:33methods and statistics,
  • 01:35Reagan has brought her signature mix
  • 01:37of humor and hard facts to healthcare,
  • 01:39corporate,
  • 01:39conference and college audiences from
  • 01:42Kaiser Permanente and Nationwide
  • 01:44Children's Hospital to Amazon and Google,
  • 01:47to Dartmouth, Caltech,
  • 01:49and ICAA.
  • 01:50Author of the Weight and Healthcare
  • 01:53Newsletter co-author of Haes
  • 01:55Health sheets and editor of the
  • 01:58anthology The Politics of Science,
  • 02:00Reagan is frequently featured
  • 02:01as an expert in print, radio,
  • 02:04television and documentary film.
  • 02:06In her free time,
  • 02:07Reagan is a national dance champion,
  • 02:09Tri athlete and marathoner
  • 02:11who holds the Guinness World
  • 02:13Record for the heaviest
  • 02:14woman to complete a marathon.
  • 02:16Reagan lives in Oregon
  • 02:18with her fiance Julianne,
  • 02:19and a rotating cast of foster dogs.
  • 02:22Please give her a warm welcome.
  • 02:25Thank you so much.
  • 02:28Thank you so much for having me.
  • 02:29The worst part about being a
  • 02:31professional speaker is hearing
  • 02:32your bio read over and over again.
  • 02:33So thank you so much and thanks
  • 02:35for all the work to bring me here.
  • 02:37These things are no small feat to put
  • 02:39together and I hugely appreciate it.
  • 02:41So we're gonna talk a bit
  • 02:42about healthcare for everybody.
  • 02:43A couple things to start off with.
  • 02:45First of all, I'm not a doctor.
  • 02:46I don't play one on TV.
  • 02:47My area of expertise is the research.
  • 02:49I've been researching the intersections
  • 02:50of weight science, weight stigma,
  • 02:52and healthcare for about 20 years.
  • 02:54And so my goal is to bring my research
  • 02:56knowledge to help you in whatever you do,
  • 02:58including if you're a practitioner,
  • 03:01I may talk about things that are
  • 03:03different than what you have learned,
  • 03:06than what you have taught other people.
  • 03:09And so in the 20 years that
  • 03:11I've studied weight science,
  • 03:12I can tell you I've had all
  • 03:13the feelings right?
  • 03:14Anger, defensiveness, denial.
  • 03:15And so if that comes up,
  • 03:18I just want to say that's incredibly valid.
  • 03:20And also if it does, Ioffer that
  • 03:22as an as an invitation to explore,
  • 03:25right, to dig deeper.
  • 03:26And I'm happy to help with that.
  • 03:28That's my e-mail,
  • 03:30reagan@wadeandhealthcare.com.
  • 03:30You're welcome to e-mail me anytime.
  • 03:31I pretty much live to talk about this stuff.
  • 03:34I also want to say that when I talk
  • 03:35about mistakes that are made around
  • 03:37weight science and weight Sigma healthcare,
  • 03:39I have typically made each and every
  • 03:41one of these mistakes personally.
  • 03:43And I don't think that people are making
  • 03:45these mistakes typically out of malice.
  • 03:46But I do think that there's a lot
  • 03:48of misinformation that floats around
  • 03:49and I do think that we've sort of
  • 03:51built a paradigm on research that
  • 03:53doesn't necessarily support it.
  • 03:54And so that's what I'll talk about today.
  • 03:56Most of my work,
  • 03:57I think a lot about the Galileo
  • 03:58story and we all know the whole,
  • 04:00like, figured out the earth,
  • 04:01revolved around the sun,
  • 04:02put under house arrest,
  • 04:04forced recant, terrible.
  • 04:04The part of that story that most
  • 04:07interests me is that Galileo's
  • 04:08contemporaries are said to have
  • 04:10refused to look through the telescope.
  • 04:12So it's not that they were saying this
  • 04:14telescope is poorly made or your math is off.
  • 04:16They simply wouldn't look.
  • 04:17And so a lot of my work is just asking
  • 04:20people to look through the telescope.
  • 04:33Got it? Well, we can click this way.
  • 04:37There we go. OK. All right.
  • 04:38I want to start about,
  • 04:39start off talking about language.
  • 04:40And I also want to say this is going to
  • 04:41be about a 20 minute talk and then we're
  • 04:43going to do an interview and AQ and A.
  • 04:44And so this talk can go from
  • 04:4620 minutes to four hours.
  • 04:47So I'm really like condensing
  • 04:48down to the high point.
  • 04:49So again, there's a lot more to unpack
  • 04:51here and I welcome you to reach out to
  • 04:53me if you'd like to ever discuss this.
  • 04:55So obese and overweight.
  • 04:57These were terms that were literally
  • 04:59created for the express purpose of
  • 05:01pathologizing bodies based on shared
  • 05:03size rather than shared symptomatology
  • 05:05or cardio metabolic profile.
  • 05:06The origin of pathologizing
  • 05:08bodies based on size,
  • 05:09the origin of weight stigma in general,
  • 05:11the origin of the body
  • 05:12mass index in specific.
  • 05:13These things are rooted in an inextricable
  • 05:16from racism and anti blackness.
  • 05:18And I that's not my scholarship,
  • 05:20that's what I've learned.
  • 05:21And I absolutely recommend
  • 05:23reading Sabrina's Strings,
  • 05:23Fearing the Black Body and Deshawn
  • 05:25Harrison's Belly of the Beast to learn
  • 05:27more about how not only are these
  • 05:29things rooted in racism and anti blackness,
  • 05:31but they continue to disproportionately
  • 05:33impact those communities today.
  • 05:35So the impact of this idea of
  • 05:37pathologizing higher weight bodies has
  • 05:38been a tremendous amount of profit to
  • 05:40the weight loss industry who have been
  • 05:42the primary architects of this paradigm.
  • 05:43A lot of stigma and oppression to
  • 05:45the people in these classifications,
  • 05:47a lot of separation between higher
  • 05:49weight people and health and healthcare
  • 05:51and healthcare practitioners,
  • 05:53and basically no decrease in the
  • 05:54number of higher weight people.
  • 05:55In fact,
  • 05:56there's been a consistent increase in
  • 05:58the number of higher weight people.
  • 06:00So then there's person first
  • 06:01language and you may have heard
  • 06:02this idea as anti stigma language,
  • 06:04the idea that saying a person
  • 06:05with obesity or a person with
  • 06:07overweight is less stigmatizing.
  • 06:09And the first thing I want you to
  • 06:11know is that this did not come from
  • 06:13weight neutral health community,
  • 06:14it did not come from bad activism community.
  • 06:15This again,
  • 06:16came from the weight loss industry and
  • 06:19through the advocacy groups that they fund.
  • 06:22And so this the problem
  • 06:23with person first language,
  • 06:24besides the fact that it makes
  • 06:26us sort of unwitting marketers
  • 06:27for the weight loss industry,
  • 06:28is that it's actually more stigmatizing
  • 06:30because it means we talk about
  • 06:31higher weight bodies differently
  • 06:32than we talk about any other body.
  • 06:34We're never like,
  • 06:35oh thank goodness my friend
  • 06:36with tallness is here.
  • 06:37Now we can finally change that light bulb,
  • 06:39right?
  • 06:39Or my friend with blondness is
  • 06:40going to sit next to me or oh,
  • 06:41that man with thinness getting on the bus.
  • 06:43I believe I know him right.
  • 06:44That's not how we talk about bodies.
  • 06:46So when we suggest that higher
  • 06:48weight bodies that simply accurately
  • 06:49naming them is so stigmatizing
  • 06:51that it requires A
  • 06:52semantic work around,
  • 06:53that in fact is stigma.
  • 06:57And so Person first language is roundly
  • 06:59rejected by both weight neutral health
  • 07:01community and fed activism community,
  • 07:03anti stigma language.
  • 07:04What we're looking for are terms that
  • 07:06accurately describe these bodies without
  • 07:08medicalizing or pathologizing them,
  • 07:10and that we're not used as a taunt or
  • 07:11slur in a way that could be triggering.
  • 07:13And so those can be terms like
  • 07:15higher weight people of size,
  • 07:16larger bodies then we have fat.
  • 07:19Fat is my preferred personal
  • 07:21descriptor for a lot of reasons,
  • 07:22but fat is a reclaiming term with all of
  • 07:24the complexities that come with that.
  • 07:26So there are people who could be defined
  • 07:28as fat who reject that term completely,
  • 07:30and that's totally valid.
  • 07:31I like it because it's one of
  • 07:33the ways I tell my bullies.
  • 07:34They can't have my lunch money anymore,
  • 07:36right? You can't offend me by
  • 07:38accurately describing my body.
  • 07:39And also, again,
  • 07:40it doesn't medicalize or pathologize my body.
  • 07:42Now, I'm not suggesting that
  • 07:43you chart people as fat, right?
  • 07:45But what I am saying is if someone
  • 07:47describes themselves as fat in
  • 07:48a neutral or a positive way,
  • 07:50then we must never,
  • 07:51never correct them.
  • 07:52You're not fat.
  • 07:53Don't call yourself fat because
  • 07:54they in fact are fat no matter
  • 07:56what we're calling them.
  • 07:57So suggesting that again,
  • 07:59accurately describing yourself as
  • 08:01somehow offensive again is stigma.
  • 08:03And this is an issue that happens
  • 08:04in a lot of weight stigma research
  • 08:06where that weight stigma research is
  • 08:08actually rooted in anti fatness, right.
  • 08:10So what We'll start the obesity
  • 08:13epidemic continues unabated.
  • 08:14You know there will be X number
  • 08:15of obese people soon.
  • 08:16Anyway,
  • 08:17let's talk about not stigmatizing them,
  • 08:19right.
  • 08:19So it comes from a point of view of
  • 08:20like we don't want to stigmatize fat people,
  • 08:22but we definitely want to eradicate
  • 08:23them from the earth and make
  • 08:25sure no more ever exist.
  • 08:26That's not an anti stigma point of view,
  • 08:28right?
  • 08:29And so all of that gets
  • 08:30rooted into this language.
  • 08:31So throughout this talk,
  • 08:32I'll use higher weight in people's size,
  • 08:35larger body and fat interchangeably.
  • 08:37I'll use quote obese and quote
  • 08:38overweight when I talk about the
  • 08:40research that uses those terms.
  • 08:41And I will not
  • 08:41use person first language.
  • 08:43So in the 20 years that I've
  • 08:45been studying weight science,
  • 08:47there are some commonalities that I
  • 08:49want to talk about within the research.
  • 08:51The first basic premise error I see
  • 08:52in a tremendous amount of the research
  • 08:54is this idea that will have higher
  • 08:55weight patients experience a health
  • 08:57issue more often than thinner patients.
  • 08:59Then it must be because they're
  • 09:01higher weight and everybody knows
  • 09:02from their first day in their
  • 09:03first research methods class.
  • 09:04This is a correlation causation error.
  • 09:06And this is complicated in
  • 09:08healthcare research because we
  • 09:09use correlation all the time,
  • 09:11but it's not responsible to do that without
  • 09:14actually investigating confounding variables.
  • 09:15What else could be affecting
  • 09:18this relationship?
  • 09:19And here we have weight, weight stigma,
  • 09:21weight cycling and healthcare inequalities,
  • 09:23which we'll talk about in a moment.
  • 09:25And there's also surveillance
  • 09:26bias and testing rate, right?
  • 09:28So if higher weight people are,
  • 09:30as we find in research,
  • 09:31often have their blood pressure
  • 09:33taken with A2 small cuff,
  • 09:34which gives an artificially elevated reading,
  • 09:36and then we say, wow,
  • 09:37those people have a lot of hypertension.
  • 09:39That's an example of surveillance
  • 09:40or testing bias.
  • 09:41If we test higher weight people
  • 09:43early and often for type 2 diabetes
  • 09:44and we don't test thin patients,
  • 09:46that's an example of surveillance
  • 09:48or testing bias.
  • 09:49The second basic premise error is OK.
  • 09:50Well,
  • 09:51if higher weight patients experience
  • 09:52a health condition more often,
  • 09:54or if a healthcare intervention
  • 09:55is less effective for them,
  • 09:56then the solution is to make
  • 09:58them into thinner patients.
  • 09:59So using weight as a proxy for
  • 10:01health becomes problematic really
  • 10:02quickly because no matter what
  • 10:04definition someone's trying to use,
  • 10:05whether it's BMI, waist,
  • 10:07circumference, you know,
  • 10:09percentage of adiposity,
  • 10:11we still have the same issue,
  • 10:12which is that you can have people
  • 10:14who have those exact same traits with
  • 10:16vastly different health statuses and
  • 10:18symptomatology and cardio metabolic profiles.
  • 10:21You can have people with vastly
  • 10:23different weight, BMI,
  • 10:24waist, circumference,
  • 10:25etcetera,
  • 10:26with the exact same health status and
  • 10:29symptomatology and cardio metabolic profile.
  • 10:31Also,
  • 10:31people experience weight changes without
  • 10:33health changes and they experience
  • 10:34health changes without weight changes.
  • 10:36And So what this becomes is
  • 10:37sort of like saying,
  • 10:38well,
  • 10:38we know that CIS male pattern
  • 10:40baldness is incredibly highly
  • 10:41correlated with cardiac incidents.
  • 10:43So the obvious solution is to
  • 10:44get these folks to grow hair.
  • 10:46It's the obvious difference.
  • 10:47Like we've got to have a war on baldness.
  • 10:49We've got to fix this,
  • 10:50and that's what happens.
  • 10:52It sounds ridiculous,
  • 10:53and it is ridiculous,
  • 10:53but in many ways,
  • 10:54when you dig into weight signs,
  • 10:55this is exactly what is happening.
  • 10:59So in looking at those confounding variables,
  • 11:01there's often in this weight science
  • 11:03research a deep failure to control.
  • 11:06So the first is controlling for
  • 11:08the effects of weight stigma.
  • 11:10Munich found that experiencing
  • 11:11weight stigma over time was
  • 11:12associated with increased rates of
  • 11:14blood pressure and type 2 diabetes.
  • 11:18Sutentanol found that perceived weight
  • 11:19discrimination was associated with an
  • 11:21increase in mortality risk of nearly 60%.
  • 11:24And Munich, in a separate study,
  • 11:25found that the difference between
  • 11:27actual and desired body weight was a
  • 11:30stronger predictor of physical and mental
  • 11:32health than actual body mass index.
  • 11:34Right? And typically,
  • 11:35weight stigma is often not even mentioned,
  • 11:37let alone controlled for in studies
  • 11:39that claim to find a relationship
  • 11:41between weight and health issues.
  • 11:44Then we've got weight cycling.
  • 11:46So Gaysern and Gotti found that
  • 11:48the risks associated with weight
  • 11:49cycling are very much the same as
  • 11:51those associated with quote obesity,
  • 11:53bacon and AD for more found weight
  • 11:55cycling results in increased inflammation,
  • 11:57which in turn is known to
  • 11:58increase the risk for many,
  • 11:59quote UN quote obesity associated diseases.
  • 12:01And it's important to understand that
  • 12:03when we talk about weight related or
  • 12:05quote obesity associated diseases,
  • 12:07we're talking about diseases that
  • 12:08people of all sizes have that get called
  • 12:11weight related or obesity associated
  • 12:13when higher weight people have them.
  • 12:15Research also indicates that weight
  • 12:17fluctuation or weight cycling is associated
  • 12:19with poor cardiovascular outcomes and
  • 12:21increased overall mortality risk.
  • 12:22And in fact,
  • 12:23Bacon and Aftermore found that weight
  • 12:25cycling could account for all of the
  • 12:27excess mortality that was associated with,
  • 12:29quote, obesity in both the
  • 12:30Framingham and the Enhanes.
  • 12:34And this is important because about a
  • 12:36century of research from Stunkred ET
  • 12:37al in 1959 that actually looked at the
  • 12:39previous 30 years of research to at
  • 12:41least Gazer and Angadi in 2021 found
  • 12:43that the most common outcome by far
  • 12:46of intentional weight loss attempts is
  • 12:48short term weight loss and then long
  • 12:50term weight regain which is weight cycling.
  • 12:53So for about 100 years we've been
  • 12:55prescribing these healthcare interventions
  • 12:57right where the majority of people lose
  • 12:59weight short term and and regain it.
  • 13:01So we've been prescribing weight
  • 13:04cycling essentially and then finally
  • 13:06we have lack of access to ethical
  • 13:07evidence based healthcare.
  • 13:09And so here we can talk about practitioner
  • 13:11bias and that is of course both
  • 13:13implicit and explicit is an issue.
  • 13:14But it goes beyond that.
  • 13:15Most research doesn't include
  • 13:17higher weight people.
  • 13:19I was just speaking at a conference
  • 13:21for anesthesiologists and and looking
  • 13:22at like 30 years of anesthesia
  • 13:24research repeatedly.
  • 13:25They would create guidelines and the
  • 13:26guidelines would start by saying,
  • 13:28you know,
  • 13:28guidelines for higher weight people.
  • 13:30And they would start by saying,
  • 13:31well, we know that pharmacokinetics
  • 13:33and pharmacodynamics are different
  • 13:34for higher weight people,
  • 13:35but we're not sure how because they're
  • 13:37typically excluded from drug trials.
  • 13:38Anyway,
  • 13:39here's some guidelines, right?
  • 13:41And so instead of saying,
  • 13:42dear God,
  • 13:43we need to do studies that actually include
  • 13:45higher weight people so that we know
  • 13:47how this medication works in their bodies,
  • 13:49they simply sort of shrug it off.
  • 13:51And this is an example of both weight
  • 13:53stigma and the healthcare inequality,
  • 13:55the outcomes of which will often be
  • 13:58blamed on higher weight people's bodies.
  • 14:00And then there's accommodation,
  • 14:02right?
  • 14:02Simply a chair in the waiting
  • 14:04room that someone can sit in the
  • 14:05correct size blood pressure cup,
  • 14:06A correct size gown,
  • 14:08a correct size MRI until healthcare actually
  • 14:10accommodates people of higher weights,
  • 14:12Until there's research so that
  • 14:14the tools and best practices and
  • 14:16pharmacotherapies that are developed
  • 14:17through research are actually
  • 14:19developed for higher weight people,
  • 14:21we cannot possibly have equality.
  • 14:23And blaming higher weight people
  • 14:25for healthcare's failings is
  • 14:26not just weight stigma,
  • 14:28but it also then perpetuates weight stigma.
  • 14:32So also there's an underlying tenant of
  • 14:34a lot of care of higher weight people,
  • 14:36including in the way that the FDA
  • 14:38approves weight loss interventions,
  • 14:39that it's worth risking higher weight
  • 14:41people's lives and quality of life
  • 14:42and attempts to make them thin.
  • 14:43And it's particularly important to
  • 14:45know that that's coming from this
  • 14:47research that I was just talking about,
  • 14:49where there's no control for weight stigma,
  • 14:50weight cycling or healthcare inequalities,
  • 14:53right?
  • 14:53Where there's just a pile of
  • 14:55research that correlates being
  • 14:56higher weight with health issues.
  • 14:57And then the conclusion is Oh well
  • 14:59obviously it's so dangerous to be
  • 15:01higher weight it's worth risking
  • 15:02higher weight people's lives and
  • 15:04quality of life to make them thin.
  • 15:06So the bottom line here is that
  • 15:07what are sometimes called weight
  • 15:09related or quote obesity related
  • 15:11conditions again might
  • 15:12actually be weight stigma related
  • 15:14conditions and or weight cycling
  • 15:16related conditions and or healthcare
  • 15:18inequality related conditions.
  • 15:20And until these are controlled
  • 15:21for we cannot possibly know or
  • 15:23understand the relationship between
  • 15:24body size or adiposity and health.
  • 15:28So what we have currently is a
  • 15:30blame game where healthcare and
  • 15:32the weight loss industry create and
  • 15:35perpetuate weight stigma and weight
  • 15:37cycling and care inequalities.
  • 15:39And then research blames the
  • 15:41negative outcomes of that on
  • 15:43higher weight people's bodies.
  • 15:44And then those negative outcomes
  • 15:46are used to justify additional
  • 15:47weight stigma and weight cycling
  • 15:49and healthcare inequalities.
  • 15:50And we're caught in this loop.
  • 15:52And again, I don't think people
  • 15:53are doing this on purpose.
  • 15:55I think often it's a matter of
  • 15:58paradigm entrenchment, right?
  • 15:59Not looking through the telescope,
  • 16:00being so sure that this must be the way
  • 16:02it is that we don't ask the questions.
  • 16:06And so then I want to talk real quickly
  • 16:08about one claim that's very common.
  • 16:09We hear, OK, 5 to 10% weight loss leads
  • 16:12to clinically meaningful health benefits.
  • 16:14And the first thing I want you to know is
  • 16:16that that number came through attrition.
  • 16:17It started with the metropolitan
  • 16:19life tight weight tables where there
  • 16:21was very specific if you are this,
  • 16:23this height and this frame,
  • 16:24you should weigh this amount.
  • 16:26But they couldn't get people to lose
  • 16:28anywhere near that amount of weight.
  • 16:29So they moved to 20%,
  • 16:30not through clinical trials,
  • 16:31but because it was a round
  • 16:33Number and it seemed memorable.
  • 16:35But they couldn't get people to lose 20%.
  • 16:36So they went to 10%, then five to 10.
  • 16:38And recently I've seen three to five,
  • 16:40an amount of weight I could lose
  • 16:42with a haircut and a loofah, right,
  • 16:44But always attaching this clinically
  • 16:46meaningful health benefits phrase to the end.
  • 16:49And so Man and Tomiama, I'm sorry,
  • 16:51Tomiama, Osterman,
  • 16:52Man in 2013 tested this to see,
  • 16:54do these small amounts of weight
  • 16:56loss actually create clinically
  • 16:57meaningful health benefits?
  • 16:59And what they found was
  • 17:00in correlational analysis,
  • 17:01we uncovered no clear relationship
  • 17:03between weight loss and health
  • 17:04outcomes related to hypertension,
  • 17:06diabetes or cholesterol,
  • 17:07calling into question whether weight
  • 17:09change per SE had any causal role
  • 17:12in the few effects of the diets.
  • 17:14Increased exercise, healthier eating,
  • 17:15engagement with the healthcare
  • 17:16system and social support may
  • 17:18have played a role instead.
  • 17:19And So what we might actually
  • 17:20be seeing is that people,
  • 17:21when they engage in these
  • 17:23weight loss interventions,
  • 17:24they make behavior changes.
  • 17:25They experience health changes
  • 17:27and they experience typically
  • 17:29temporary weight changes.
  • 17:31And even though the weight changes
  • 17:33are both small and simultaneous,
  • 17:34we tend to credit them
  • 17:35for the health changes,
  • 17:36ignoring the behavior changes
  • 17:37that preceded the health changes.
  • 17:41And this is supported when we
  • 17:43look at research like Klein ET al.
  • 17:45So they looked at OK will large volume
  • 17:48abdominal liposuction create these
  • 17:49same improvements and they found that
  • 17:51in fact they did not that large volume
  • 17:54abdominal liposuction basically fat
  • 17:56loss without behavior change does not
  • 17:59significantly improve obesity associated
  • 18:01metabolic abnormalities and again
  • 18:03caveat on the quote obesity associated.
  • 18:06And then we have this body of research
  • 18:09that looks at retrospective studies.
  • 18:11So we'll start with the way at all
  • 18:14they looked at 25,714 adults, CIS men.
  • 18:17Now in this study,
  • 18:18as in almost every study that
  • 18:19I'll talk about,
  • 18:20there is no trans and non binary
  • 18:22representation and there is an under
  • 18:24representation of people of color.
  • 18:25And that is a consistent issue that
  • 18:26should never have happened and certainly
  • 18:28should have been solved before now.
  • 18:30But we see this.
  • 18:31So they looked at the relationship
  • 18:33between relative risk of all
  • 18:34'cause mortality and body size.
  • 18:36And if you look at these Gray bars,
  • 18:38these are quote UN quote normal weight,
  • 18:39quote UN quote overweight and
  • 18:41quote UN quote obese CIS men who
  • 18:43were not participating in fitness.
  • 18:44And we can see the rise in all
  • 18:46'cause mortality as body size rises.
  • 18:47Now we cannot say that is caused
  • 18:50by body size,
  • 18:51again because of the possible confounders,
  • 18:52but we do see that it's there.
  • 18:54These red bars are CIS men who
  • 18:56are participating in 170 minutes
  • 18:57of movement a week.
  • 18:58And what we see here is that their
  • 19:01relative risk of all 'cause mortality was
  • 19:04essentially the same regardless of size.
  • 19:06Matheson and all took this further.
  • 19:08They looked at 11,761 CIS men and women
  • 19:11and they looked at 4 healthy habits,
  • 19:135 or more servings of fruits and vegetables,
  • 19:15exercise more than 12 * a month
  • 19:16alcohol up to 1 drink a day for
  • 19:18CIS women and two drinks a day
  • 19:20for CIS men and not smoking.
  • 19:22And so here we have their graph.
  • 19:23Y axis is the health hazard ratio.
  • 19:25X axis is the number of those four healthy
  • 19:27habits people were participating in,
  • 19:28from none of them to all four.
  • 19:32And then on top of each of those numbers are
  • 19:34three bars for quote UN quote normal weight,
  • 19:36quote UN quote overweight,
  • 19:37and quote UN quote obese.
  • 19:38We can see when people were
  • 19:40participating in none of the habits,
  • 19:41there was a pretty big striation
  • 19:43among health hazard ratio.
  • 19:44Once again,
  • 19:44we cannot say this is caused by body size,
  • 19:46but we do see that it's there.
  • 19:48When people participated in just one of
  • 19:50those habits that compressed significantly
  • 19:53for those participating in all four,
  • 19:54they had essentially the same health
  • 19:56hazard ratio regardless of size.
  • 19:58And this is what we see over
  • 19:59and over and over again.
  • 20:00If we actually take behaviors into account,
  • 20:03they may well be a better predictor
  • 20:04of current and future health than
  • 20:06his body size or weight loss.
  • 20:07So Gazer and Gaudi is the
  • 20:09last study we looked
  • 20:09at 2021. They looked at 225 studies,
  • 20:12systematic reviews and meta analysis.
  • 20:15And they were looking at the
  • 20:16relationship between physical activity,
  • 20:17cardiorespiratory fitness and health.
  • 20:18And what they found was the mortality
  • 20:20risk that gets associated with
  • 20:21quote obesity is largely attenuated
  • 20:23or eliminated by moderate to
  • 20:24high levels of cardiorespiratory
  • 20:26fitness or physical activity.
  • 20:27They found most cardio metabolic risk
  • 20:29factors that are associated with, quote,
  • 20:31obesity can be improved with exercise
  • 20:33training independent of weight loss
  • 20:34and by a magnitude similar to that
  • 20:36observed with weight loss programs.
  • 20:38Which is really important because
  • 20:39as we see with weight loss programs,
  • 20:40the vast majority of people regain weight
  • 20:42and lose cardio metabolic benefits.
  • 20:45They found that weight loss,
  • 20:46even if it was intentional,
  • 20:47was not consistently associated
  • 20:49with a lower mortality risk.
  • 20:52They found that increases in
  • 20:53cardiorespiratory fitness and physical
  • 20:54activity are consistently associated
  • 20:56with greater reductions in mortality
  • 20:57risk than is intentional weight loss.
  • 21:01They found, again,
  • 21:02weight cycling is associated with
  • 21:03numerous adverse health outcomes,
  • 21:05including increased mortality.
  • 21:06And they posited that adherence to
  • 21:08physical activity might improve if
  • 21:09healthcare professionals emphasize to
  • 21:11their patients the myriad benefits of
  • 21:13physical activity and cardiorespiratory
  • 21:14fitness in the absence of weight loss.
  • 21:16Because what higher weight people are
  • 21:18told is exercise makes you lose weight,
  • 21:20which makes you healthier.
  • 21:22And so people start an exercise
  • 21:23program and they either lose a
  • 21:24little bit of weight and gain it
  • 21:25back or they don't lose weight at
  • 21:26all and then they quit because they
  • 21:28assume it's not working because
  • 21:29they've been misled about the likely
  • 21:31outcome and also about the benefits.
  • 21:33It's important to understand
  • 21:34the benefits of these health
  • 21:36supporting behaviors are direct.
  • 21:39So then we've got an RCT.
  • 21:41So there's not a lot of randomized
  • 21:43controlled trials of weight neutral
  • 21:46health interventions and a big
  • 21:48part of that is that so much of
  • 21:49the funding is earmarked only for
  • 21:51quote UN quote obesity treatment and
  • 21:53prevention which is a huge issue.
  • 21:55But Lindo Bacon ET all did a
  • 22:00randomized controlled style trial.
  • 22:02They looked at weight neutral
  • 22:03intervention versus a behavior
  • 22:04based weight loss intervention.
  • 22:05It was a six month RCT with
  • 22:07two years of follow up.
  • 22:09At six months,
  • 22:1041% of the diet group had quit and only
  • 22:128% of the weight neutral group had quit.
  • 22:15At two years,
  • 22:1650% of both groups returned for evaluation.
  • 22:19Among the weight neutral group,
  • 22:20they had maintained their weight,
  • 22:22improved all outcome variables
  • 22:23and sustained the improvements.
  • 22:24Over 2 years,
  • 22:25the diet group had regained their weight
  • 22:28and little improvement was sustained,
  • 22:30which is what the previous
  • 22:32research would tell us.
  • 22:33So what we're talking about
  • 22:34here is a change in focus.
  • 22:36Instead of focusing on manipulating the
  • 22:37weight of fat patients and focusing on
  • 22:39trying to figure out how to quote UN quote,
  • 22:41treat existing in a higher weight body,
  • 22:44we focus on supporting people's health
  • 22:45at their current size in research,
  • 22:47in tools and equipment,
  • 22:49in practitioner training,
  • 22:50from compassion and anti stigma
  • 22:52to practice right.
  • 22:53What do we have?
  • 22:54What does the research actually tell
  • 22:56us is the best thing for our patients
  • 22:57who are higher weight to advocacy,
  • 22:59which is advocating for the research
  • 23:01We don't have right in advocating
  • 23:03for equality in structural bias,
  • 23:06including things like chairs and Mr.
  • 23:08IS and blood pressure, cuffs and gowns.
  • 23:11Best practices and informed consent
  • 23:13around weight loss interventions.
  • 23:14True informed consent.
  • 23:17So best practices,
  • 23:18sorry,
  • 23:21best practices include weigh in only
  • 23:24when medically necessary, right?
  • 23:26Rather than routine weigh insurance
  • 23:28between no 'cause patient disengagement,
  • 23:31allowing patients to decline with no
  • 23:33pushback, and considering signage,
  • 23:34and absolutely never offering
  • 23:35to guess a patient's weight.
  • 23:37The first time this happened to me,
  • 23:38I was so surprised.
  • 23:40I literally said this is not the County Fair.
  • 23:42You're not guessing my weight today.
  • 23:44And now what I say is either a number is
  • 23:46medically relevant or it's guessable.
  • 23:47And since you've told me it's guessable,
  • 23:49I know it's not medically relevant.
  • 23:53Look for inequalities and solve them.
  • 23:54In what ways are higher weight people
  • 23:56not having the same experience
  • 23:58in a space that you're in?
  • 24:00Right? Are there chairs that
  • 24:01would accommodate folks, sturdy,
  • 24:03armless chairs in love seats?
  • 24:05Are there gowns?
  • 24:05Are there blood pressure cuffs?
  • 24:06Is there only one thigh cuff?
  • 24:09And so anytime a higher weight patient
  • 24:11needs their blood pressure taken,
  • 24:12everybody has to run around and try
  • 24:14to find that one thigh cuff, right?
  • 24:16That's a procurement issue that's
  • 24:18pretty pretty easily solved if you're
  • 24:20tempted to prescribe weight loss,
  • 24:22asking ourselves, OK, well,
  • 24:23what would we do for a thin
  • 24:25person who has this health issue?
  • 24:26And have we tried that for this patient,
  • 24:30choosing medications based on
  • 24:32therapeutic effects first,
  • 24:33not necessarily just weight impact 1st and
  • 24:36also making sure to get informed consent.
  • 24:39I'm hearing from a lot of patients
  • 24:41now who are being told to try the new
  • 24:43GLP one agonist weight loss drugs and
  • 24:45when they ask about side effects,
  • 24:46they're being told, well all drugs
  • 24:48have side effects and it's no big deal.
  • 24:50That is not an informed consent conversation
  • 24:53creating a list of accommodating options.
  • 24:55If you know that your facility
  • 24:56doesn't have a large bore MRI,
  • 24:58find out proactively what facility
  • 25:01does and have a list of these things
  • 25:03so that instead of just setting
  • 25:04the patient out and saying we can't
  • 25:05accommodate you saying here's the space,
  • 25:09that can't.
  • 25:10All right, so I'll finish this up
  • 25:11and we'll go to the interview.
  • 25:12I just want to say,
  • 25:12even if I'm wrong and I have to
  • 25:14say that right,
  • 25:15every scientist has to say that even if
  • 25:18higher weight patients could all become thin,
  • 25:20even if by becoming thinner
  • 25:21they would all become healthier,
  • 25:22higher weight patients would still deserve
  • 25:24equal accommodation and access to the world,
  • 25:26including healthcare.
  • 25:27Fat people have the right to
  • 25:29exist without shame, stigma,
  • 25:30bullying or oppression.
  • 25:31It doesn't matter why they're fat.
  • 25:33It doesn't matter if their
  • 25:34health impacts of being fat.
  • 25:35It doesn't matter if they could
  • 25:37or even want to become thinner.
  • 25:38The rights to life,
  • 25:39liberty,
  • 25:39and the pursuit of happiness are
  • 25:40not and should not be size dependent.
  • 25:44All right, so you're welcome to contact me.
  • 25:46You can e-mail me, you can message me,
  • 25:48you can find more resources.
  • 25:49The Health at Every Size health
  • 25:50sheets are weight neutral,
  • 25:51diagnosis specific care guides.
  • 25:52So you can literally download
  • 25:54like Fatty Liver and see OK,
  • 25:56what's the weight neutral
  • 25:57option for caring for that.
  • 25:58There's also a resource in research bank,
  • 26:00so if you like me or a mega nerd,
  • 26:02that's a good place to kind of dig in.
  • 26:04And then Wade and Healthcare is
  • 26:05my newsletter where I talk about
  • 26:06these things pretty much endlessly.
  • 26:07So thank you.
  • 26:08I know this is a lot of information fast.
  • 26:10Do please feel free to reach out to
  • 26:11me with any questions or thoughts.
  • 26:13And I'm looking forward to our interview.
  • 26:38Can you guys hear me?
  • 26:40Fantastic. Yours is working.
  • 26:42I think. So. Can you hear me?
  • 26:44Perfect. Thank you.
  • 26:46So I want to start by saying that that
  • 26:48talk was so inspiring and eye opening. I
  • 26:51really appreciate it. That's why I was
  • 26:53like you guys have to give her a hand.
  • 26:54That's amazing. Thank you.
  • 26:57And so I have a handful of questions
  • 26:59I want to ask you and some of
  • 27:00them you already touched on,
  • 27:01but I'm going to give you the
  • 27:03opportunity to elaborate.
  • 27:04Thank you. So first,
  • 27:06a topic that is probably
  • 27:08on a lot of people's minds,
  • 27:10and if it's not,
  • 27:11it should be is the GLP one
  • 27:15agonist that you mentioned,
  • 27:17drugs like Ozempic.
  • 27:18Can you talk about how the
  • 27:20introduction of those drugs and
  • 27:21sort of the frenzy around them has
  • 27:23affected higher weight people?
  • 27:24Sure. So I think they've really changed
  • 27:27the conversation around the idea of
  • 27:29weight loss and weight management and
  • 27:30I think that's happened prematurely.
  • 27:32Sort of a sub specialty of mine is
  • 27:34the ways in which the weight loss
  • 27:36industry works to influence and
  • 27:38manipulate the healthcare industry.
  • 27:39And I think there's a lot of that
  • 27:41here to go back and just give
  • 27:42a little bit of context.
  • 27:43So Novo Nordisk and Eli Lilly,
  • 27:44who are the two big players right
  • 27:46now with the GLP One agonist,
  • 27:47though there are more coming.
  • 27:49We're also big players in insulin
  • 27:51and price gouging on insulin.
  • 27:54And they did that through
  • 27:55something called shadow pricing,
  • 27:56where they look and see.
  • 27:57And as their competitor
  • 27:58increases their price,
  • 27:59they increase their price
  • 28:00sometimes within minutes.
  • 28:02And that's how the price of
  • 28:03insulin went up and up and up.
  • 28:04And so as they were forced to
  • 28:06bring down the price of insulin,
  • 28:07Novo Nordisk CEO said he was going to quote,
  • 28:10take a bet on quote obesity.
  • 28:13And so when Wagovi was approved,
  • 28:15which is the Somali tide,
  • 28:17the form of Ozempic,
  • 28:19that's for weight loss,
  • 28:20they promised their shareholders
  • 28:22the fastest ever launch of the
  • 28:24drug and they did exactly that.
  • 28:25And so there's been a huge marketing
  • 28:28push and everything from paid speakers
  • 28:31who are doctors and researchers
  • 28:33who are putting out research,
  • 28:35who are advocating in the papers,
  • 28:37often without disclosure,
  • 28:38to their own marketing around this,
  • 28:40to their advocacy groups that they fund.
  • 28:43So there's been a huge push.
  • 28:45And the thing about these
  • 28:46drugs that's important,
  • 28:47first of all,
  • 28:48they are Type 2 diabetes drugs
  • 28:49with a side effect of weight loss.
  • 28:51And so they are dosed and titrated very
  • 28:53differently when dosed for type 2 diabetes.
  • 28:55The goal is to give the minimum dose to
  • 28:57get glycemic management and to minimize
  • 29:00side effects windows for weight loss.
  • 29:02The goal is to maximize side effects and
  • 29:05you can't do that without maximizing
  • 29:06all dose dependent side effects.
  • 29:08We only have two years of data
  • 29:11on these drugs at that dose.
  • 29:13For Ozempic until just a year,
  • 29:15two years ago the maximum
  • 29:17dose was 1 milligram.
  • 29:19For the last two years the maximum
  • 29:20dose has been 2 milligrams.
  • 29:21Well,
  • 29:22Govi is 2.4kg,
  • 29:25so we've got a bunch of people on
  • 29:26a mega dose of a type 2 diabetes
  • 29:28drug with only two years of data.
  • 29:30We know from their research that
  • 29:31when people go off the drug they do
  • 29:33regain the weight pretty quickly.
  • 29:35But also even their own two year
  • 29:36research shows that at the end of two
  • 29:38years people who stayed on the drug,
  • 29:39their weight is ticking up.
  • 29:42Also about 10 to 15% of people
  • 29:44don't lose weight on the drug
  • 29:45and in the tirzepatide study.
  • 29:47So there's a thing that happens
  • 29:49in weight science research where
  • 29:50words that mean things get new
  • 29:52and interesting definitions.
  • 29:54So in the tirzepatide study,
  • 29:55maintained weight loss meant
  • 29:57gained back less than 20%
  • 29:59of the weight by the first year, right.
  • 30:03So they did a 36 week treatment and then
  • 30:05they observed for the next 52 weeks,
  • 30:07some people went off, some people
  • 30:08stayed on and so maintained weight loss
  • 30:10just meant they were regaining slowly,
  • 30:12which is a little bit questionable to me.
  • 30:15And so I my concern with these drugs is
  • 30:17that they do have serious side effects,
  • 30:19sometimes fatal side effects.
  • 30:20And I'm very concerned that we're
  • 30:23headed toward another Fen ven
  • 30:25where we're so and and I again,
  • 30:28I don't think people are doing
  • 30:29this to harm higher weight people,
  • 30:30but I think people have spent their careers,
  • 30:32we've got this paradigm entrenchment
  • 30:34that like we have got to get higher
  • 30:36weight people to lose weight.
  • 30:37And we have absolutely failed at
  • 30:39every intervention we've tried.
  • 30:40And Oh my God,
  • 30:41here's the thing that quote UN quote works.
  • 30:42So put everybody on it And the drug
  • 30:45companies are doing a really good job
  • 30:47of working hard to expand their markets
  • 30:49progressively older and younger populations,
  • 30:51progressively lower BMI populations,
  • 30:54often using this idea of quote UN
  • 30:56quote weight related conditions.
  • 30:58So I'm,
  • 30:58I'm very concerned that we're not
  • 31:00having a full discussion about this and
  • 31:02we're really jumping the gun and that
  • 31:03a lot of people are going to get harmed.
  • 31:07Thank you so much, So much to unpack here.
  • 31:09It's a lot. Yeah. So I want to
  • 31:13sort of dig into the culture of
  • 31:15weight loss and the war on obesity.
  • 31:20Can we talk about when that started
  • 31:22and I asked that question because
  • 31:24you showed us some excellent studies
  • 31:26that showed a lack of effect of
  • 31:29dieting and weight loss programs on
  • 31:31the health of higher weight people.
  • 31:33And some of those studies are old.
  • 31:36I mean from my perspective,
  • 31:37you know, 2003, 2013.
  • 31:41So the only reason why studies
  • 31:44like that haven't taken hold
  • 31:45and aren't more widely discussed
  • 31:47must be a cultural reason.
  • 31:49So can you tell us what is the war
  • 31:52on obesity? When did it start?
  • 31:53Why did it start?
  • 31:54Yeah. So to go way back the when,
  • 31:59the World Health Organization classified,
  • 32:01quote, obesity as a disease,
  • 32:03that meeting was paid for by the
  • 32:06International Obesity Task Force.
  • 32:07The International Obesity Task Force
  • 32:09was funded by two drug companies who
  • 32:11had weight loss drugs coming out.
  • 32:12They asked The Who to have the meeting
  • 32:14and who said we don't have money
  • 32:15for that And they said no problem,
  • 32:16they paid for the meeting,
  • 32:17they drafted the statements and then
  • 32:20they bypassed the Who's editorial
  • 32:21review and sent it out to health
  • 32:23ministers of over 100 countries.
  • 32:25And then the committee for the NIH
  • 32:28said that they felt pressured to
  • 32:30conform to the Who's definitions.
  • 32:32And also the committee for the
  • 32:34NIH had nine people and seven of
  • 32:36them had like huge financial ties
  • 32:38to the weight loss industry.
  • 32:40And that committee was chaired by someone
  • 32:41who was a former executive director and
  • 32:44current board member of Weight Watchers.
  • 32:46So the weight loss industry has been in
  • 32:48it since the beginning and continues to
  • 32:50be in it in a lot of different ways.
  • 32:52And then Richard Carmona,
  • 32:54who was the surgeon general at the time,
  • 32:58said that obesity was a bigger
  • 33:01threat than terrorism.
  • 33:03And so that was sort of what started
  • 33:05the the whole war on obesity.
  • 33:07We need this global war on obesity
  • 33:09and and the ridiculous notion that
  • 33:11you can want to eradicate fatness
  • 33:14without stigmatizing fat people,
  • 33:16right, which is simply not possible.
  • 33:19And so this whole war on obesity
  • 33:22at that point,
  • 33:23that's when we saw the money get
  • 33:25earmarked only for research around,
  • 33:27quote UN quote,
  • 33:28obesity treatment and prevention where
  • 33:30it's incredibly difficult to fund
  • 33:32anything that doesn't pathologize
  • 33:34higher weight bodies and doesn't focus
  • 33:35on manipulating the size of those bodies.
  • 33:37That is when we started to see this
  • 33:40huge global conglomerate of weight loss
  • 33:43companies and the sort of astroturf
  • 33:46organizations they funded, right?
  • 33:48The Quote Obesity Action Coalition.
  • 33:49When they were pushing the AMA to make,
  • 33:51quote, obesity a disease.
  • 33:53They had 10 platinum sponsors,
  • 33:56all of whom were weight loss companies.
  • 33:59Now they're down to 1 platinum sponsor.
  • 34:01It's Novo Nordisk.
  • 34:02They gave them about $600,000 last year.
  • 34:05And the OAC lobbies heavily for
  • 34:08insurance coverage of NOVOS drugs.
  • 34:12Right?
  • 34:12So you've got this incredible mixing often,
  • 34:16not clearly,
  • 34:18right.
  • 34:19A lot of what Novo is doing with
  • 34:20the GLP ones is taken right out
  • 34:22of the playbook that Purdue Pharma
  • 34:24used for its Oxycontin promotion.
  • 34:26And it's tough.
  • 34:27You can't talk about this for more than
  • 34:28like 5 minutes without starting to
  • 34:30sound like a tinfoil hat conspiracy theorist,
  • 34:32because it is in many ways a conspiracy,
  • 34:36right?
  • 34:36And again,
  • 34:36I think a lot of the people are who
  • 34:39are part of this are well meaning.
  • 34:40I think there are some people who are
  • 34:43doing this for money and don't care much,
  • 34:45right?
  • 34:46We're talking about a company
  • 34:47that price gouged insulin.
  • 34:48So I think everything that
  • 34:49Nova and artist does has
  • 34:50to be viewed through that lens.
  • 34:52And so now we've got people saying,
  • 34:54oh the war on obesity isn't right, right.
  • 34:56We don't want to stigmatize fat people,
  • 34:58We just want to eradicate
  • 34:59them from the earth,
  • 34:59but like in a non stigmatizing way.
  • 35:02So I think that that's sort of changing.
  • 35:05They're also now.
  • 35:06So many people are now falling
  • 35:08all over themselves to say,
  • 35:09oh, behavior based weight loss
  • 35:12interventions don't work.
  • 35:13People in my community have been screaming
  • 35:15this from the rooftops since the 40s, right?
  • 35:18And now the weight loss companies are like
  • 35:21the last seven people to learn this fact,
  • 35:23but only in the service of
  • 35:24now we have more expensive,
  • 35:26more dangerous interventions to
  • 35:27foist on this population rather
  • 35:29than maybe now is the time to
  • 35:31actually start having weight neutral
  • 35:33comparator groups in our research,
  • 35:35right.
  • 35:36One of the things that happens in the
  • 35:38research is that like for Novo's drugs,
  • 35:39they compared their drugs to a
  • 35:41behavior based weight loss intervention
  • 35:42that they said in the introduction
  • 35:44of their study didn't work.
  • 35:45Comparing your drug to a known
  • 35:47poor intervention is like nice
  • 35:49work if you can get it.
  • 35:50But if they had had a weight
  • 35:51neutral comparator group,
  • 35:52then we could really see could these
  • 35:54benefits be achieved without all the risks
  • 35:56of these drugs and the enormous expense,
  • 36:00right.
  • 36:00Same thing with them,
  • 36:01weight loss surgeries,
  • 36:02often their comparator groups are
  • 36:03people who wanted weight loss surgeries
  • 36:05and were denied the surgeries,
  • 36:06not like a galloping shock that this
  • 36:08group of people would have worse outcomes
  • 36:10than the surgical outcome group,
  • 36:11right.
  • 36:12But we don't.
  • 36:13We're not digging into the research.
  • 36:15And so I think to come back to your point,
  • 36:18sorry to get off a bit but the this
  • 36:21war on obesity has been something that
  • 36:24people could sort of get behind easily,
  • 36:29right?
  • 36:29Oh these are fat people.
  • 36:30And again that goes back and I,
  • 36:31I absolutely do not intend to white
  • 36:33explain racism, racism to anyone.
  • 36:34But I'm the person with the mic.
  • 36:36So I just want to make it clear
  • 36:38like this goes back to to the fact
  • 36:40that fatness is tied with blackness
  • 36:41and with people of color in this
  • 36:44way that it's easy to to just
  • 36:46blend those two things together
  • 36:47in ways that they intersect and
  • 36:49that allows that to to flourish.
  • 36:52Right. And I as I was telling you before,
  • 36:55I'm kind of new to the
  • 36:57study of weight stigma.
  • 36:59But what you described in terms
  • 37:01of the relationship between racism
  • 37:03and weight stigma is something
  • 37:06that I think black women especially
  • 37:08have personal experience with,
  • 37:09with, even if they can't name it.
  • 37:12So I'm really thankful that
  • 37:13you mentioned those two books
  • 37:15earlier in the presentation,
  • 37:17and I've only read one of them,
  • 37:19so I'm going to read the other.
  • 37:20Awesome. Yeah, yeah. Sabrina,
  • 37:22Strings Fearing the Black Body
  • 37:24and Deshawn Harris and Belly of
  • 37:26the Beast are the two. Thank you.
  • 37:29OK, so you, you mentioned how some
  • 37:33studies attribute health issues,
  • 37:36various comorbidities to higher weight,
  • 37:40but they're confounders
  • 37:41that we didn't look at.
  • 37:42And one of those confounders is
  • 37:45discrimination against higher weight.
  • 37:46Folks, can
  • 37:47you talk about the discrimination
  • 37:50higher weight folks that happen
  • 37:52specifically in healthcare context?
  • 37:54Yeah, so there's within healthcare context,
  • 37:58we first have practitioner bias,
  • 37:59both implicit and explicit, right?
  • 38:02So implicit is subconscious bias.
  • 38:03And we live in a world with a
  • 38:05tremendous amount of weight stigma.
  • 38:06So again, not a galloping shock
  • 38:07if we've internalized that.
  • 38:09And so it can be very easy to see
  • 38:11somebody who has higher weight
  • 38:13and start making assumptions
  • 38:14about them subconsciously, right.
  • 38:16So we've got that and then
  • 38:17we've got explicit bias.
  • 38:18And these are people who have very specific,
  • 38:20they're aware that they have
  • 38:22stereotypes and negative beliefs
  • 38:23about higher weight people.
  • 38:24They're aware that they're acting on them,
  • 38:27right. And I think part of
  • 38:28what's causing this, ironically,
  • 38:29is this whole war on obesity because
  • 38:32doctors were trained for years and
  • 38:33years and are still in some cases being
  • 38:35trained that if people try hard enough
  • 38:37they can lose weight and keep it off
  • 38:38with behavior based interventions.
  • 38:40There is literally nothing to support that.
  • 38:42There is no reason in in the
  • 38:44research to believe that is true,
  • 38:45but that's what they've been told.
  • 38:47And so they assume I give this advice to
  • 38:49my patients and they don't lose weight
  • 38:51or they lose weight and gain it back,
  • 38:53they're non compliant.
  • 38:53And so they think, OK,
  • 38:55these patients don't want to help themselves.
  • 38:57Why would I want to help them?
  • 38:58And so it spins this kind of,
  • 39:00you know, weight stigma in that way.
  • 39:02So there's that there's bias.
  • 39:04But then there's also,
  • 39:05like we talked about research,
  • 39:07research that doesn't include
  • 39:08higher weight people, right.
  • 39:10Research that only looks at how to
  • 39:12make higher weight people thinner,
  • 39:14not how to make higher weight
  • 39:16people healthier.
  • 39:17Research that specifically excludes
  • 39:19any kind of intervention that
  • 39:21doesn't involve weight loss, right.
  • 39:23So you'll see guidelines created and
  • 39:25one of the exclusion criteria was that
  • 39:26the study looked at health and not wait.
  • 39:28So when we exclude that from the research,
  • 39:31when we say we're not even going to
  • 39:32look at that, that's a huge problem,
  • 39:35right?
  • 39:35So you've got research bias,
  • 39:36then you've got structural bias.
  • 39:38And structural bias is when the
  • 39:39things that higher weight people
  • 39:41need either don't exist for them
  • 39:42or don't exist in a specific space.
  • 39:44And so we go back to, like,
  • 39:45is there a chair I cannot fit.
  • 39:47I cannot physically sit in any
  • 39:49chair in this room.
  • 39:50So if I were a student here and this was
  • 39:52a room that I had to be in for a lecture,
  • 39:55I would have to try to get my own chair,
  • 39:57which isn't always something that
  • 39:59happens because it's If people's
  • 40:01weight is not considered a disability,
  • 40:03then like,
  • 40:04the disability services office
  • 40:04doesn't have to help.
  • 40:05I see this.
  • 40:06I work with people a lot in spaces like
  • 40:08this who aren't being accommodated.
  • 40:10I went to the law student who took
  • 40:12every test of law school sitting on
  • 40:14the stairs because the testing room
  • 40:15didn't have a chair that would fit her
  • 40:16and they wouldn't make an accommodation,
  • 40:17right.
  • 40:18So it's the chairs,
  • 40:20it's the blood pressure cuffs,
  • 40:21it's the gowns, it's the Mr.
  • 40:23is,
  • 40:23it's the ultrasound,
  • 40:24it's the research upon which the
  • 40:26best practices and the tools in the
  • 40:29pharmacotherapies were created.
  • 40:30This research typically excluded
  • 40:32higher weight people and then when
  • 40:35their outcomes aren't as good,
  • 40:36we say, Oh well,
  • 40:37it's because they're higher weight.
  • 40:38Obviously they have to be made into
  • 40:40thin people rather than saying
  • 40:42they're being treated in a healthcare
  • 40:44system that wasn't made for them.
  • 40:45There's an interesting study Sun
  • 40:47ET al In 2012 looked at the 2009
  • 40:50H 1N1 outbreak and higher weight
  • 40:52people had much
  • 40:53worse outcomes in terms of
  • 40:55severe outcomes and death.
  • 40:56And so at the time all of the
  • 40:58studies coming out, we're like, well,
  • 40:59what's wrong with fat bodies, right?
  • 41:00Is it low grade inflammation
  • 41:01due to quote, obesity?
  • 41:02Is it that it's acting in the adipose
  • 41:04tissue and what Sun and all found was
  • 41:07simply that thinner people got earlier
  • 41:09antiviral treatment than heavier people did,
  • 41:11and that when that difference
  • 41:12was controlled for,
  • 41:13the difference in outcome disappeared.
  • 41:16And so I wonder how often that's happening,
  • 41:19right, that what we're seeing is inequality
  • 41:21of treatment that gets blamed on fat bodies.
  • 41:24So there's that kind of bias.
  • 41:26There's a bias where if research
  • 41:28shows that higher weight people
  • 41:29have higher rates of complications
  • 41:31than they're denied surgery, right.
  • 41:33And we see this with BMI based denials
  • 41:34which I would describe as healthcare
  • 41:36held hostage for a weight loss ransom
  • 41:37that most people will not be able to pay.
  • 41:41And this is,
  • 41:42I'm as a as she had said in my bio,
  • 41:45I'm a certified patient advocate and
  • 41:47this is typically the work that I do
  • 41:49as an advocate is helping people who
  • 41:50have been denied care that they need,
  • 41:52often denied a surgery that they
  • 41:54need or want,
  • 41:55and then referred to weight loss surgery.
  • 41:58Right.
  • 41:58So your knee surgery is too dangerous,
  • 41:59but we'll be very happy to take
  • 42:01your perfectly healthy digestive
  • 42:02system and create a disease state
  • 42:04permanently that we're cool with, right?
  • 42:06So there's a lot of that as well.
  • 42:07So there's so many different layers
  • 42:09of weight stigma,
  • 42:10and structural stigma is one of
  • 42:12those things that all stigma needs
  • 42:14systemic changes.
  • 42:15But weight stigma that is structural
  • 42:18requires systemic change.
  • 42:20You can have a fully fat affirming
  • 42:22practitioner.
  • 42:22You can have a fully fat affirming patient,
  • 42:24but if the MRI isn't big enough,
  • 42:26that patient will not get care.
  • 42:29And I was just giving a talk to
  • 42:30APA program where one of the the
  • 42:32folks said when they were working
  • 42:33in the emergency room,
  • 42:34they had a patient pass away
  • 42:36because they couldn't get an MRI.
  • 42:38And that in a thinner patient they
  • 42:40suspected there would have been
  • 42:41no problem in getting the MRI and
  • 42:42that patient would have lived.
  • 42:43So these weight stigma can be fatal
  • 42:47and it requires systemic change to solve.
  • 42:51Thank you. And my next question.
  • 42:53My next question falls directly from
  • 42:55what you were just speaking about.
  • 42:57And you've already mentioned
  • 42:58some of these best practices,
  • 42:59but I'll give you the chance to elaborate.
  • 43:01In addition to the larger MRI machines,
  • 43:04the larger blood pressure
  • 43:06coughs and the thigh coughs,
  • 43:07what can we do to better accommodate people,
  • 43:12higher weight people?
  • 43:15So I think there's a number of things.
  • 43:18First, getting educated on the options
  • 43:20for weight neutral care, right?
  • 43:22And part of that is just if you're
  • 43:24tempted to prescribe weight loss to
  • 43:25say what would I prescribe to a thin
  • 43:28person in the same situation, right.
  • 43:29And making sure that you at least
  • 43:31give that as an option to the patient.
  • 43:33Real informed consent conversations
  • 43:36that include things about data like
  • 43:39for weight loss surgery, again,
  • 43:40the comparator groups are really problematic.
  • 43:42There's very little data more than 10
  • 43:45years out and the data that exists
  • 43:47often suggest that if a patient
  • 43:48is below their baseline weight by
  • 43:50any amount and they are not dead,
  • 43:51they are a success.
  • 43:53They typically only look at adverse
  • 43:55events for the 1st 30 days,
  • 43:57even though they're creating a situation
  • 43:58where we know that people can experience
  • 44:00long term malnutrition and long term
  • 44:02serious significant side effects.
  • 44:03So if you're only tracking adverse events
  • 44:05for 30 days and you tracks, you know,
  • 44:08improvements for a year and then you say see,
  • 44:10this is a great idea,
  • 44:11that's a huge problem and
  • 44:13patients deserve to know.
  • 44:15We don't really have much data after that.
  • 44:18We're not sure what will happen,
  • 44:20but we know, for example,
  • 44:21that if you get this ruined,
  • 44:23why you won't be able to meet
  • 44:24your nutritional needs with food.
  • 44:25I was recently on a panel with a woman
  • 44:27who had that surgery and then very
  • 44:31unexpectedly experienced homelessness.
  • 44:32And so she knew she could not get
  • 44:34the nutrition she needed without
  • 44:35her supplements and she could not
  • 44:36afford her supplements and there was
  • 44:38literally nothing for her to do, right?
  • 44:41So making sure that patients
  • 44:42understand all of these things,
  • 44:44there's I think sometimes what happens is,
  • 44:46and again I think it comes often
  • 44:48from a really well meaning place,
  • 44:49but there's a paternalism that happens
  • 44:52where the practitioner believes that
  • 44:53this is the best thing for the patient.
  • 44:56The practitioner perhaps has implicit
  • 44:57bias that says if a patient is fat,
  • 44:59then they're not smart enough to make
  • 45:01decisions for themselves or obviously
  • 45:02they're making poor decisions for themselves.
  • 45:04So I've got to convince this
  • 45:06patient to do what's best for them.
  • 45:07And so maybe one of the ways I do that
  • 45:09is I kind of hold back on that informed
  • 45:11consent conversation and I say all
  • 45:13medications have side effects which
  • 45:14is both true and completely unhelpful
  • 45:17in an informed consent context,
  • 45:19right.
  • 45:19So it's we've got to be having
  • 45:21these conversations,
  • 45:21we've got to be offering weight neutral
  • 45:24options and we've got to be clear,
  • 45:25look there are people of all sizes
  • 45:27who have your exact same presentation
  • 45:29and here's what we offer to people
  • 45:32who are quote UN quote normal weight
  • 45:34to whom we don't suggest weight loss.
  • 45:36This is what we offer and offering
  • 45:37those things to patients as well,
  • 45:41excellent. So I want to take this time to
  • 45:44open the floor to questions and
  • 45:45for the people in the room,
  • 45:47if you could just raise your hand,
  • 45:48I'll bring you a microphone and we'll get
  • 45:50some of the questions on Zoom as well.
  • 45:55OK. We've got a couple questions. I'm coming.
  • 45:58I'm so excited. This is my, I do the talk,
  • 46:00so I can do the Q&A. So this is awesome.
  • 46:06Hi, thank you for coming to talk to us.
  • 46:09I I'm curious for for patients who
  • 46:11say that they do want to lose weight,
  • 46:13is it like, is it ever ethical for
  • 46:16healthcare providers to help them do that?
  • 46:18That's a great question.
  • 46:19I think the first thing to do if a patient
  • 46:22wants weight loss is to ask them why.
  • 46:24And they will probably be surprised
  • 46:26because this has probably
  • 46:27never happened to them, right.
  • 46:28They say you won't weight loss.
  • 46:29I I won't weight loss the practitioners,
  • 46:31because of course you do and then you
  • 46:32just go on and usually the answer to why
  • 46:34will fall into one of three buckets.
  • 46:36They're trying to cure or
  • 46:37prevent health issues.
  • 46:38They're trying to increase mobility
  • 46:40or ability or they're trying to
  • 46:42escape weight stigma and it may
  • 46:43be one or all of those buckets.
  • 46:45And so for the first two buckets,
  • 46:47we can offer weight neutral options, right?
  • 46:50For both of those things,
  • 46:51there are people of all sizes who
  • 46:53have the same mobility and ability,
  • 46:55who have the same cinematology
  • 46:56and cardio metabolic profile.
  • 46:57So we have weight neutral options
  • 46:59and we can offer those.
  • 47:01We can also offer weight loss,
  • 47:03but we have to be honest about things
  • 47:05like failure rates and the possible harm.
  • 47:08And then the third bucket, weight stigma.
  • 47:10That's the tough one,
  • 47:11because weight stigma is real and
  • 47:13it impacts people in very real ways,
  • 47:15and their life would be better if they
  • 47:17were thinner because of weight stigma.
  • 47:19The problem is we don't have real
  • 47:21good ways to make people thin.
  • 47:23And so,
  • 47:23again,
  • 47:24I think informed consent is really important.
  • 47:26I think to the extent that it's
  • 47:27within the scope of whatever you're
  • 47:28practicing to let people know there's
  • 47:30a whole community out there who are
  • 47:31working and surviving and thriving
  • 47:33outside of weight loss, right?
  • 47:35There's the weight neutral community,
  • 47:36there's the fat activism community
  • 47:38and letting people know about
  • 47:40those resources as well.
  • 47:42And for me, so I'm both fat and gay.
  • 47:44I came out in Texas in the mid 90s,
  • 47:46which was a super interesting time to be out.
  • 47:47And I did a lot of political work around
  • 47:49queer and trans rights and at that time,
  • 47:51in my personal experience,
  • 47:52and this is still happening
  • 47:53to way too many people,
  • 47:55but that's when they told me
  • 47:56like OK being queer as a choice,
  • 47:57it's a bad choice,
  • 47:58it's bad for you,
  • 47:59it's bad for society and homophobia
  • 48:00is terrible.
  • 48:01So you should really try to be straight.
  • 48:03And I never bought into that
  • 48:04as a queer person,
  • 48:05but I did buy into it as a fat
  • 48:06person for a really long time.
  • 48:08And So what I realized was that
  • 48:09I had spent years fighting my
  • 48:11body on behalf of weight stigma,
  • 48:13and that what I wanted to do instead was
  • 48:15fight weight stigma on behalf of my body.
  • 48:17And that choice made all the difference.
  • 48:19And so letting people know
  • 48:21that that is an option,
  • 48:22especially if that's why if
  • 48:23they're saying like I want to
  • 48:24lose weight because I want to,
  • 48:25you know,
  • 48:26shop at the normal clothing stores or I,
  • 48:28you know,
  • 48:29want to escape weight stigma in whatever way
  • 48:30they're experiencing it,
  • 48:31I think that's really important.
  • 48:33In terms of ethics, it really that's
  • 48:36I think a really personal question.
  • 48:38And some people won't have the option
  • 48:40to say like I don't offer weight loss.
  • 48:42Right. But I think that at the very least,
  • 48:44it has to be a serious informed consent
  • 48:46conversation so that people know,
  • 48:47especially if they're undergoing,
  • 48:48for example, behavior based interventions.
  • 48:51Look, 95% of the time people lose weight
  • 48:53short term and gain it back long term.
  • 48:54Up to 66% of people gain back
  • 48:56more weight than they lost.
  • 48:58If that happens to you,
  • 48:59that is not your fault.
  • 49:00That is what every piece of research
  • 49:02we have says will happen long term.
  • 49:04And so you're, you know,
  • 49:05you're welcome to do that and I
  • 49:08will be here if it doesn't work.
  • 49:09And I want you to know it's not your fault.
  • 49:11I think it's important to remember patient
  • 49:14centered care is still fully rooted in
  • 49:16ethical evidence based medicine, right.
  • 49:18So if a patient said, oh,
  • 49:19I saw on a TikTok that I can fly
  • 49:20if I jump off my roof and I think
  • 49:22that would really cure my knee pain,
  • 49:23right 'cause flying will take the
  • 49:25pressure like right off that joint.
  • 49:27It's still not patient centered
  • 49:28care to like endorse their plan to
  • 49:30jump off their garage and flap their
  • 49:31arms really hard right even though
  • 49:33they believe it will help them.
  • 49:35And so I think we still have to always
  • 49:36be coming from do I believe that
  • 49:38this is an ethical evidence based
  • 49:40intervention and what informed consent
  • 49:41do I need to offer to the patient.
  • 49:45I actually have a question
  • 49:47sure which I never ask.
  • 49:50I liked your comparison
  • 49:51for best practices
  • 49:53worth and patients and as you referred to as
  • 49:55fat patients. But
  • 49:56my question is actually what could
  • 49:59what would you say to fat haters
  • 50:04the people that just for
  • 50:06one reason or another
  • 50:09don't see the comparison
  • 50:10don't don't understand do
  • 50:15you I'm sorry, can you elaborate
  • 50:16a little bit people who well, I,
  • 50:18I the one that came to my mind was
  • 50:20the show that's on TV my 600 LB Oh
  • 50:22yeah. And and or
  • 50:24just people in general
  • 50:25that will make a comment,
  • 50:27those rude, horrible comments
  • 50:30that they would probably
  • 50:31not say to a thin person,
  • 50:33but they will say or under their
  • 50:35breath say to someone who is fat.
  • 50:37Yeah, I mean, so no matter, again,
  • 50:40no matter what people think about
  • 50:42being fat and health, it does not
  • 50:45justify poor treatment of fat people, right.
  • 50:48And so to those folks, I say like,
  • 50:50I hope you get some help to work
  • 50:51out your issues and I hope that
  • 50:53you learn to behave better.
  • 50:59Hi, I don't have
  • 51:01like a specific question,
  • 51:01but I was wondering if you could
  • 51:03talk a little bit more about larger
  • 51:04bodies and reproductive health.
  • 51:05I just think like
  • 51:06in classes, I've learned that higher
  • 51:09way and like higher risk of like
  • 51:12gestational diabetes and also just
  • 51:14in general the culture about like
  • 51:17getting your body back like postpartum
  • 51:19and all that. Yeah.
  • 51:21So for this in general I recommend Nicola
  • 51:24Salmon's work and I see Ola Salmon.
  • 51:27She does incredible work around
  • 51:29fat fertility and fat pregnancy.
  • 51:30I've done some written some some stuff
  • 51:32with her and done some workshops with her.
  • 51:34So I think again when we
  • 51:36go back to the research,
  • 51:37often it doesn't suggest the risk
  • 51:40is as high as it's believed to be.
  • 51:43Also, again,
  • 51:43there's not good research that
  • 51:46shows like would behavior based
  • 51:48interventions improve these outcomes?
  • 51:50And so I just saw a study and I
  • 51:52haven't broken it down yet,
  • 51:53but it's like maybe you know quote UN
  • 51:55quote obese pregnant people shouldn't gain
  • 51:57weight at all or should maybe lose weight.
  • 52:00And there's other research that says
  • 52:01that's probably not the best idea, right.
  • 52:03So it's always about breaking
  • 52:05down the research I think and then
  • 52:08managing the situation, right.
  • 52:10People who have high risk for
  • 52:11pregnancies for various reasons get
  • 52:13pregnant and that is their right.
  • 52:15And so, like,
  • 52:15how do we manage and help those
  • 52:17folks rather than saying, like,
  • 52:18you shouldn't got a you shouldn't
  • 52:20have gotten pregnant, you know,
  • 52:21you shouldn't exist as a pregnant person.
  • 52:24You don't deserve help any problem.
  • 52:25And this is what I hear people say,
  • 52:27like, yeah,
  • 52:27I was getting an epidural and my
  • 52:29doctor said that if I had any problems,
  • 52:31it would be my fault and that I
  • 52:32should never have gotten fat.
  • 52:33Like, while they were giving the
  • 52:35epidural out of scope.
  • 52:37Inappropriate, right?
  • 52:38So there's the way that weight
  • 52:40stigma also impacts.
  • 52:41Do people get all of their care?
  • 52:42Do they skip prenatal visits,
  • 52:43'cause they just cannot deal with
  • 52:45another weight lecture, right?
  • 52:46So there's all of that.
  • 52:47And then the culture around getting like,
  • 52:48pregnancy body back is like that bit
  • 52:52of diet culture is so, like odd to me.
  • 52:55Like you made a whole person, right?
  • 52:57And all we're like is do you look
  • 52:59like you looked when you were 18?
  • 53:00Who cares?
  • 53:00Like that diet culture thing is
  • 53:02a whole extra separate trip.
  • 53:13Uh, huh.
  • 53:22Now it's on.
  • 53:24And so for me as a
  • 53:24second year medical student,
  • 53:26I'm thinking a lot about the sort of
  • 53:28long term consequences of patients
  • 53:30who are under insured or uninsured.
  • 53:32And I think if you look at the landscape
  • 53:34of the American Insurance you know,
  • 53:36scheme, one in 10 people are not insured.
  • 53:39And if you look at you know the sort
  • 53:41of breakdown of who those people are,
  • 53:43they tend to be people who are you know,
  • 53:44from lower socio economic groups,
  • 53:46you know face you know different barriers,
  • 53:48social determinants of health etcetera.
  • 53:50And I guess my question is when
  • 53:53you are charting and you write
  • 53:56the word obesity in a chart,
  • 53:58insurance companies from what I
  • 54:00understand have sort of limited,
  • 54:01my limited knowledge is that they do often
  • 54:05elevate rates for people who are obese
  • 54:07or those those sort of rates are are in,
  • 54:10you know,
  • 54:11they're informed by the charts.
  • 54:13But I want my patients to be
  • 54:15insured because people who are
  • 54:17insured have better health outcomes.
  • 54:19So you see the issue here, right?
  • 54:20Like, what is the purpose of documenting
  • 54:22that in a chart that then might,
  • 54:25you know,
  • 54:25affect someone's insurance status to the
  • 54:27point where they are no longer insured
  • 54:30and then they're jeopardized further by
  • 54:32a system that they can't support them.
  • 54:34So I'm curious, I guess,
  • 54:34as a comment, how does charting,
  • 54:37you know,
  • 54:38maybe affect people's insurance status?
  • 54:40And how does insurance status
  • 54:42affect people's health as as
  • 54:43people who present with obesity?
  • 54:44So I don't know.
  • 54:45Yeah,
  • 54:46that's a great question.
  • 54:47This has gotten a lot better
  • 54:49since the Affordable Care Act.
  • 54:50Prior to that when insurance
  • 54:52companies were allowed to deny
  • 54:53people for pre-existing conditions.
  • 54:55You may or may not remember
  • 54:56when that was the case,
  • 54:57high BMI was considered a
  • 54:59pre-existing condition.
  • 54:59I personally could not get
  • 55:01healthcare for 14 years because my
  • 55:04body was considered a pre-existing
  • 55:05condition that insurance companies
  • 55:07were not required to cover.
  • 55:09And so that's not the case anymore.
  • 55:10They're not allowed to stratify
  • 55:12based on body size.
  • 55:13It's just smoking in age at this point.
  • 55:16If they're under an Obamacare
  • 55:18and Affordable Care Act plan,
  • 55:19if they're doing the like independent
  • 55:21private plans and they can,
  • 55:22it's they can do whatever they want.
  • 55:23Unfortunately for me,
  • 55:25the the charting around,
  • 55:27quote UN quote, obesity,
  • 55:28first of all,
  • 55:28it can trigger a lot of like
  • 55:30communications with the patient
  • 55:31that that patient may not want.
  • 55:33Especially let's say the patient
  • 55:34is higher weight and experiencing
  • 55:35an eating disorder, right.
  • 55:36And they're getting all of this
  • 55:38weight loss stuff that can be
  • 55:40incredibly triggering and problematic
  • 55:41also like life insurance and
  • 55:43long long term care insurance.
  • 55:44Those things are deeply impacted by weight.
  • 55:47I cannot get either because of
  • 55:51my BMIA lot of people can't.
  • 55:52So that's a huge problem.
  • 55:54So, yeah,
  • 55:54I think the the way that we chart
  • 55:56size and the fact that it's been
  • 55:59put into requirement like the MIPS,
  • 56:00if you're working with with Medicare,
  • 56:03one thing to know is that with
  • 56:04MIPS if the patient refuses weigh
  • 56:06in or declines weigh in,
  • 56:07it removes them from both the numerator
  • 56:09and the denominator of the miscalculation.
  • 56:11So it does not count against
  • 56:13the compensation.
  • 56:14If that is removed,
  • 56:15of course you have to have an
  • 56:16EHR that will do that,
  • 56:17which is a whole other thing.
  • 56:19So I think in terms of like
  • 56:20their health insurance,
  • 56:21it doesn't necessarily cause an
  • 56:23immediate problem in terms of
  • 56:25like their cost of insurance,
  • 56:27it doesn't make it go up,
  • 56:28but it can create barriers,
  • 56:30it can create step programs with
  • 56:32certain insurances where like they're
  • 56:33expected to try different things.
  • 56:35And this is one of the huge concerns
  • 56:37with the big push right now.
  • 56:39Novo Nordisk and Eli Lilly are in
  • 56:41a huge full court press to mandate
  • 56:43Medicare coverage of their weight loss drugs,
  • 56:46which is odd because Medicare is
  • 56:48almost entirely people 65 and up.
  • 56:50And that's a group of people where
  • 56:51there's a large body of research
  • 56:53that shows that they that weight
  • 56:55loss creates increased mortality.
  • 56:56So I have some concerns about that.
  • 56:58They're also pushing.
  • 56:59I just want to point out that access
  • 57:01to these drugs for black and brown
  • 57:04communities is a social justice issue.
  • 57:05But black and brown communities were
  • 57:07vastly underrepresented in their trials.
  • 57:09Meaning this is basically just
  • 57:11replicating a history of experimental
  • 57:13medicine on people of color.
  • 57:14And I think that's something that
  • 57:15we need to keep pointing out.
  • 57:17So I think that that in terms of charting,
  • 57:19that's the bigger issue to me.
  • 57:21I also just want to point out like there's
  • 57:23there's the thing where they say, oh,
  • 57:24people of lower socio economic status
  • 57:26have a higher chance of being fat.
  • 57:28But I also want to point out that
  • 57:30people who are fat have a lower,
  • 57:31have a higher chance of
  • 57:33being lower economic status,
  • 57:34right higher way people are hired less,
  • 57:36paid less and promoted less than
  • 57:38similarly qualified than people.
  • 57:39One study found that higher weight women,
  • 57:41the penalty was about $19,000
  • 57:43over very thin women.
  • 57:45So it's not like a small amount of money.
  • 57:47So I think that we also always
  • 57:48need to be looking at like the
  • 57:49chicken and the egg problem there,
  • 57:51which is way more than you asked for,
  • 57:52but that's what I got.
  • 57:55I thank you for a wonderful
  • 57:56talk and advocating for patients.
  • 57:59Could you please clarify a little bit
  • 58:02the statement that you made about the
  • 58:04increased risks of the GLP one medications?
  • 58:07I think you had compared it to the Fen
  • 58:10Fen from from Eris prior because you know
  • 58:14there there's not as much long term data
  • 58:17on the obesity dosings of the GLP ones.
  • 58:21But there's plenty of long term data
  • 58:23and big study data is using the same
  • 58:25agents in diabetic trials and they,
  • 58:28you know mostly for all agents have shown
  • 58:31improvement in three or four point Mace.
  • 58:33It's being used in heart
  • 58:36failure kidney disease.
  • 58:37So you know,
  • 58:38those seem like they're quite beneficial
  • 58:40for patients who have comorbidities.
  • 58:42But what,
  • 58:43what is the concern about the higher
  • 58:46doses for obesity management?
  • 58:49Yeah, so there there's a couple of concerns.
  • 58:51The 1st is just that it's
  • 58:53more than the maximum dose.
  • 58:54So while we have data on the diabetes doses,
  • 58:56that titration and dosing is very different
  • 58:59for weight loss because the goal of
  • 59:01that is to maximize side effects, right.
  • 59:02So it has good health benefits and I
  • 59:04agree that it's a solid type 2 diabetes
  • 59:06drug and has other benefits as well,
  • 59:08like the idea that we wouldn't
  • 59:09give it at that dosage,
  • 59:10but that we could keep cranking up
  • 59:11the dosage to produce weight loss,
  • 59:13to produce the side effect means that
  • 59:16we're going to increase the rates
  • 59:18of all those dependent side effects.
  • 59:20So there's that piece of it
  • 59:22that's concerning.
  • 59:23There's also the concern that we don't know.
  • 59:24Now one of the chief benefits of these
  • 59:28drugs in terms of type 2 diabetes is
  • 59:29that they only act when glucose is high.
  • 59:31So there are fewer hypo incidents
  • 59:33on these drugs.
  • 59:33However,
  • 59:34people who don't have type 2
  • 59:36diabetes do have glucose spikes.
  • 59:38And what we don't know and what some
  • 59:39endocrinologists are asking is what
  • 59:40happens when we give people a mega
  • 59:42dose of a type 2 diabetes drug and
  • 59:43they don't have type 2 diabetes.
  • 59:45So when they have a normal blood sugar spike,
  • 59:47does that then like hammer the beta cells,
  • 59:50exhaust them sooner and create an
  • 59:51earlier presentation or presentation
  • 59:53that never would have happened of type
  • 59:542 diabetes in that patient, right.
  • 59:56We don't have an answer to that
  • 59:58question because we don't have
  • 59:59a long term data on of people on
  • 01:00:01these high doses of the drug.
  • 01:00:02So that's the concern in general.
  • 01:00:04My Fen Fen concern is that
  • 01:00:07it's not just the side effects,
  • 01:00:08but the fact that we've got a medication
  • 01:00:10that shows short term weight loss,
  • 01:00:13right,
  • 01:00:13that in two years weight loss levels
  • 01:00:15off around like that 58 to 62 week mark.
  • 01:00:17And then sort of studies with TIRZEPATITIS,
  • 01:00:21studies with Novo Nordisk at 68 weeks,
  • 01:00:23sort of a weight cycling.
  • 01:00:25Thing happens with the mean weight
  • 01:00:26loss and then at the end of two
  • 01:00:28years weight is is going up and
  • 01:00:30that's when the data stops.
  • 01:00:32So that's a concern.
  • 01:00:34The fact that their own 100 year
  • 01:00:36patient adverse data shows that
  • 01:00:37every 25 years people are looking
  • 01:00:39at three serious adverse events and
  • 01:00:42one adverse event serious enough
  • 01:00:44to discontinue the medication.
  • 01:00:46And again,
  • 01:00:46because this is the same as weight
  • 01:00:48loss drugs have always been,
  • 01:00:49when people go off of it,
  • 01:00:49they regain the weight.
  • 01:00:51And Novo notice unbelievably
  • 01:00:52profitable solution is will people
  • 01:00:54just stay on this drug for life.
  • 01:00:55And that's why we're seeing this redefinition
  • 01:00:57of obesity isn't just a disease,
  • 01:00:59it's a chronic lifelong relapsing remitting
  • 01:01:01disease which covers all of their bases,
  • 01:01:03right.
  • 01:01:04If people weight cycle on the drug,
  • 01:01:06well that's the relapsing remitting nature
  • 01:01:07of the quote UN quote disease, right.
  • 01:01:10It's chronic and lifelong like asthma.
  • 01:01:11So you have to take it forever,
  • 01:01:13except that it's not like asthma or
  • 01:01:15type 2 diabetes because there's no
  • 01:01:17real definition of obesity that is
  • 01:01:21separate from other conditions, right.
  • 01:01:23They. So there have been, if you look,
  • 01:01:26there's no clear definition.
  • 01:01:27We've had the BMI definition.
  • 01:01:30But the the new definitions are like,
  • 01:01:32oh, well, it's excess fatness that
  • 01:01:34impacts health, which is not really the
  • 01:01:36way you diagnose the disease, right.
  • 01:01:37Because it's like saying, well,
  • 01:01:39if you're 6 foot seven, you're just tall,
  • 01:01:40but if you're 6 foot seven with hypertension,
  • 01:01:42now you're medically over tall, right.
  • 01:01:45And so the the thing with these,
  • 01:01:47with these drugs that is concerning
  • 01:01:49to me is that we're almost 70% of the
  • 01:01:52population is eligible for them and
  • 01:01:55they're pushing really hard to get
  • 01:01:56insurance coverage for Medicare so
  • 01:01:57that they can get private insurance.
  • 01:01:59They're pushing really hard to get
  • 01:02:00them formularies in other countries.
  • 01:02:01And we don't have a lot of data.
  • 01:02:03There are serious and including
  • 01:02:05fatal side effects of these drugs,
  • 01:02:07and we don't know what that will
  • 01:02:08look like at this dose.
  • 01:02:09And we are racing to get them to people.
  • 01:02:12And that is what concerns me
  • 01:02:13about another fan event.
  • 01:02:17So we have time for one
  • 01:02:19more question from the room.
  • 01:02:24Anyone else have a question?
  • 01:02:28Yes, Doctor Hall. Really
  • 01:02:40loud. Karen's going to give
  • 01:02:41it to you. I'm sorry. Yeah,
  • 01:02:43they're bringing the mic.
  • 01:02:43We are. We do have a bunch of
  • 01:02:45people on Zoom. So hi Zoomers,
  • 01:02:55can you hear me Perfect.
  • 01:02:57Thank you for that,
  • 01:02:58that very informative talk.
  • 01:02:59I was wondering if you could
  • 01:03:00speak a little bit more about,
  • 01:03:02you know you mentioned the
  • 01:03:04intersection between anti between
  • 01:03:06weight related stigma and racism.
  • 01:03:09But you also touched a little bit on
  • 01:03:11how that may intersect with sexism,
  • 01:03:13particularly with respect to,
  • 01:03:15you know, I would say sort of the,
  • 01:03:18you know, get your pre pregnancy
  • 01:03:19body back and just this idea that
  • 01:03:21you know somehow women are vessels
  • 01:03:23and you know you have to gain weight
  • 01:03:25to produce the the pregnancy.
  • 01:03:27But then afterwards you know you better,
  • 01:03:29you better get that body back in shape
  • 01:03:31so that you can be desirable because
  • 01:03:33otherwise like what's your value?
  • 01:03:35Obviously I'm exaggerating,
  • 01:03:36although sadly not that much.
  • 01:03:39And then you know also you,
  • 01:03:41you reference the correlation
  • 01:03:42between weight and socioeconomic
  • 01:03:44status and certainly you have more
  • 01:03:46expertise in this area than I.
  • 01:03:47But the what I've read on that
  • 01:03:49actually that that's pretty gender
  • 01:03:51specific and that for men the
  • 01:03:54correlation between weight and
  • 01:03:56earnings does not hold particularly.
  • 01:03:58Whereas with women,
  • 01:04:00there's a stark difference in terms of pay,
  • 01:04:03in terms of what,
  • 01:04:05you know,
  • 01:04:05weight stigma and how like economically
  • 01:04:08there's a huge advantage to being
  • 01:04:10thin because the stigma is so great
  • 01:04:12for professional women in particular.
  • 01:04:15So I was wondering if you could
  • 01:04:16just speak a little bit more
  • 01:04:17about that and some of the work
  • 01:04:18that's been done in that area.
  • 01:04:19And and what are you,
  • 01:04:21what do you think are some of
  • 01:04:22the underpinnings of of of that?
  • 01:04:23Because I think it's,
  • 01:04:24it's really salient to
  • 01:04:25this conversation as well.
  • 01:04:27Yeah. So I'll do the last one first.
  • 01:04:29A new report has just come out that has
  • 01:04:31found that in fact the wage penalty
  • 01:04:33for higher weight men is much worse
  • 01:04:36than was recently believed. Right.
  • 01:04:38So up till now there's been the general
  • 01:04:40belief that the penalty isn't as bad
  • 01:04:41for CIS men as it is for CIS women.
  • 01:04:43And while that's true,
  • 01:04:44it seems that it is much steeper for CIS men,
  • 01:04:47especially if you start to
  • 01:04:49striate by education.
  • 01:04:50So the more education someone has,
  • 01:04:52the the bigger the penalty is.
  • 01:04:55So that data was for the for a
  • 01:04:57long time was what was believed.
  • 01:04:59And now it's seeming that that may not
  • 01:05:01be true and that if we really striate
  • 01:05:03there is a significant difference.
  • 01:05:05And in general,
  • 01:05:06I mean the weight loss in the beauty
  • 01:05:09industries have made billions of dollars
  • 01:05:11by creating the Sisyphean task, right?
  • 01:05:13You have.
  • 01:05:13We have a solution to sell you.
  • 01:05:15So you have a problem, right?
  • 01:05:17You should spend as much time and
  • 01:05:19energy and money as you possibly can
  • 01:05:21trying to attain a stereotype of
  • 01:05:23beauty that is firmly rooted in thin
  • 01:05:25white CIS het currently able bodied youth.
  • 01:05:29And you will probably never get there.
  • 01:05:30But that is not a good reason not to try,
  • 01:05:33right?
  • 01:05:33That has been the underpinning.
  • 01:05:35And it's also why intersectionally,
  • 01:05:37it creates so many problems for people
  • 01:05:39with multiple marginalized identities,
  • 01:05:41right?
  • 01:05:41Because you've got all of these
  • 01:05:43different aspects of the stereotype
  • 01:05:45of beauty that will be unattainable
  • 01:05:47for you and even people who attain it.
  • 01:05:49It hurts people who attain that
  • 01:05:51stereotype of beauty because then they
  • 01:05:53live in terror of losing that right,
  • 01:05:55the privilege that that creates,
  • 01:05:56the opportunities that that creates for them.
  • 01:05:59And so they tend to spend a ton of
  • 01:06:01time and energy and money trying
  • 01:06:02to maintain that privilege.
  • 01:06:03So that's been the underpinning of
  • 01:06:05diet culture for a really long time.
  • 01:06:07And it's, you know,
  • 01:06:08we can see it and pull it apart
  • 01:06:10in each aspect.
  • 01:06:10And the whole pregnancy body for
  • 01:06:13people who can get pregnant is
  • 01:06:14certainly a huge part of that, right.
  • 01:06:16It's this market that they have
  • 01:06:18of people who, you know,
  • 01:06:19now you need to get your pregnancy
  • 01:06:21body back and this, you know,
  • 01:06:23this whole diet culture piece of it.
  • 01:06:25But I think it's all sort of based
  • 01:06:27on that Sisyphean idea of attaining
  • 01:06:29that stereotype of beauty and that
  • 01:06:31that's our responsibility and that
  • 01:06:32we owe other people aesthetically
  • 01:06:34pleasing by their own definition.
  • 01:06:37And I think that that one of the
  • 01:06:39things that I looked at in my own
  • 01:06:42journey was what if perceiving
  • 01:06:43beauty was a skill set?
  • 01:06:45So if I don't see the beauty in someone,
  • 01:06:46that's on me because we're not asked
  • 01:06:48to develop that skill set, right?
  • 01:06:49We're told this is beauty.
  • 01:06:50Everything else isn't.
  • 01:06:51This isn't beauty done easy.
  • 01:06:53So what if the ability to perceive
  • 01:06:54a beauty is
  • 01:06:55a skill set that we don't develop?
  • 01:06:56And so then it's my responsibility.
  • 01:06:58And if somebody can't see the beauty in me,
  • 01:06:59that's not on me, that's their
  • 01:07:01responsibility to develop that skill set.
  • 01:07:03And maybe they never do, but I don't
  • 01:07:05take responsibility for that, right?
  • 01:07:07I don't owe people aesthetically pleasing
  • 01:07:08based on their definition and the same thing.
  • 01:07:11I think often this gets intertwined
  • 01:07:15with the idea of health, right?
  • 01:07:17So whatever the current standard
  • 01:07:18of beauty is is also what quote,
  • 01:07:20UN quote, healthier fit looks like.
  • 01:07:22And so I think it's really important
  • 01:07:24that we're always saying health
  • 01:07:25is not an obligation, right.
  • 01:07:26Which I know because there's a the
  • 01:07:28whole NFL where the goal is to risk
  • 01:07:30your short and long term physical
  • 01:07:31and mental health in the hope that
  • 01:07:33someday your team will score enough
  • 01:07:34points to win a shiny piece of jewelry.
  • 01:07:36You're allowed to do that,
  • 01:07:38but it does not prioritize the health.
  • 01:07:40The sport of skeleton in the Olympics,
  • 01:07:4180 miles an hour down an ice
  • 01:07:43chute on a sled face first,
  • 01:07:44does not prioritize the health, right.
  • 01:07:47So there's that piece of the
  • 01:07:48health is not an obligation,
  • 01:07:50it's not a barometer of worthiness.
  • 01:07:51It's not entirely within our control.
  • 01:07:54And it's a really gooey,
  • 01:07:55amorphous concept, right.
  • 01:07:57And just like beauty,
  • 01:07:58we tend to act like health is as simple,
  • 01:08:00like you could throw a dart and hit it.
  • 01:08:01That's healthy, right?
  • 01:08:02It's a simple definition.
  • 01:08:03I put people in and out of it.
  • 01:08:04But when we look at individuals,
  • 01:08:07it's so different.
  • 01:08:08If you take for one example,
  • 01:08:09somebody who has no chronic
  • 01:08:11conditions versus someone who's just
  • 01:08:12developed a chronic condition versus
  • 01:08:14somebody who's been dealing with six
  • 01:08:16chronic conditions over a decade,
  • 01:08:17their concepts of what health and Wellness
  • 01:08:19look like will be very different.
  • 01:08:21But that doesn't make any of
  • 01:08:22them wrong and just say, well,
  • 01:08:23some people are healthy and
  • 01:08:24some people are not,
  • 01:08:25doesn't do a service to anybody.
  • 01:08:28Rather than saying,
  • 01:08:29OK,
  • 01:08:29based on this person's personal
  • 01:08:31goals and priorities and situation,
  • 01:08:33what is it that they're looking
  • 01:08:34for in terms of health?
  • 01:08:35And I think that also can be
  • 01:08:38ascribed then over to the idea of
  • 01:08:40this beauty standard that is used
  • 01:08:42and abused within the healthcare
  • 01:08:43system and within the greater world.
  • 01:08:48So we are unfortunately over time.
  • 01:08:51But I just wanted to take the
  • 01:08:52opportunity to thank you, Reagan,
  • 01:08:54for coming to speak to us.
  • 01:08:56It takes a lot of courage to try
  • 01:08:58to push back against a cultural
  • 01:09:00paradigm like the war on obesity,
  • 01:09:02but that is the work of activism.
  • 01:09:03So we appreciate you doing that work.
  • 01:09:06And please give her a hand.
  • 01:09:10Thank you very much.
  • 01:09:13And again, thank you for
  • 01:09:14all of the work you did.
  • 01:09:15Thank you all for coming.
  • 01:09:17It's been an honor.