2023
OUTC-08. IMPLEMENTING SOCIAL DETERMINANT OF HEALTH DATA COLLECTION FOR PEDIATRIC, ADOLESCENT AND YOUNG ADULT NEURO-ONCOLOGY PATIENTS IN THE CLINICAL TRIAL CONSORTIA SETTING: PROGRESS AND CHALLENGES
Puthenpura V, Bona K, Cooney T, Coven S, Davidson T, Fouladi M, Kline C, Leary S, Mueller S, Green A, Marks A. OUTC-08. IMPLEMENTING SOCIAL DETERMINANT OF HEALTH DATA COLLECTION FOR PEDIATRIC, ADOLESCENT AND YOUNG ADULT NEURO-ONCOLOGY PATIENTS IN THE CLINICAL TRIAL CONSORTIA SETTING: PROGRESS AND CHALLENGES. Neuro-Oncology 2023, 25: i37-i37. PMCID: PMC10260067, DOI: 10.1093/neuonc/noad073.145.Peer-Reviewed Original ResearchNeuro-oncology patientsMulticenter clinical trialClinical trialsSocial determinantsSocioeconomic statusClinical Trials ConsortiumLong-term complicationsAYA cancer patientsAdverse social determinantsSocioeconomic status dataAdverse SDOHSurvival disparitiesMultidisciplinary careTherapy adherenceToxicity incidenceCancer patientsTrial therapyPersonal socioeconomic statusOutcome disparitiesTrial designSDOHPatientsHealth equityHealth data collectionTrials
2021
Disparities in the long-term survival of adolescent and young adult diffuse large B cell lymphoma survivors
Berkman A, Andersen C, Puthenpura V, Livingston J, Ahmed S, Cuglievan B, Hildebrandt M, Roth M. Disparities in the long-term survival of adolescent and young adult diffuse large B cell lymphoma survivors. Cancer Epidemiology 2021, 75: 102044. PMID: 34597882, PMCID: PMC8627460, DOI: 10.1016/j.canep.2021.102044.Peer-Reviewed Original ResearchConceptsLong-term survivalDLBCL survivorsLymphoma survivorsSurvival disparitiesDiffuse Large B-Cell Lymphoma SurvivorsNon-Hispanic black survivorsNon-Hispanic white survivorsWorse long-term survivalReduced long-term survivalEnd Results registryOverall survival patternsRace/ethnicityMedian followMale sexWhite survivorsOlder ageSurvivorsRacial disparitiesYoung adultsBlack survivorsSocioeconomic statusSurvivalSurvival patternsSexCurrent study