2024
Perspectives of Adolescents and Young Adults With Sickle Cell Disease and Clinicians on Improving Transition Readiness With a Video Game Intervention
Aronson P, Nolan S, Schaeffer P, Hieftje K, Ponce K, Calhoun C. Perspectives of Adolescents and Young Adults With Sickle Cell Disease and Clinicians on Improving Transition Readiness With a Video Game Intervention. Journal Of Pediatric Hematology/Oncology 2024, 46: e147-e155. PMID: 38237001, DOI: 10.1097/mph.0000000000002810.Peer-Reviewed Original ResearchConceptsVideo game interventionPediatric to adult careOptimize self-efficacyGame interventionPatient engagementSelf-efficacyAdult careIdentified 4 main themesMedical decisionsImprove transition readinessYoung adultsExperiences of cliniciansQuaternary-care hospitalSickle cell diseaseData saturationTransition readinessMultilevel determinantsSemistructured interviewsClinician experienceHome managementCareInductive analysisCell diseaseDecision-makingIntervention
2022
Stakeholder Perspectives on Hospitalization Decisions and Shared Decision-Making in Bronchiolitis.
Aronson PL, Schaeffer P, Ponce KA, Gainey TK, Politi MC, Fraenkel L, Florin TA. Stakeholder Perspectives on Hospitalization Decisions and Shared Decision-Making in Bronchiolitis. Hospital Pediatrics 2022, 12: 473-482. PMID: 35441213, PMCID: PMC9647631, DOI: 10.1542/hpeds.2021-006475.Peer-Reviewed Original ResearchConceptsParents' perspectivesSocial-emotional factorsParents of childrenParents' emotionsChild's ageTraining cliniciansEmotionsHospitalization decisionsParents' preferencesParentsDecision-making processInductive analysisChildrenClinical factorsChildren's HospitalMost hospitalizationsEmergency departmentHealth literacyUnpredictable courseBronchiolitisClinicians' decisionsHospitalizationCliniciansInterviewsHospital