2024
Development and Validation of a Scale to Measure Person-Centered Care in Fetal Care Centers
Wilpers A, White M, Austin M, Bahtiyar M, Francis K, Emery S, Wall D, Somers L, Wool C. Development and Validation of a Scale to Measure Person-Centered Care in Fetal Care Centers. Fetal Diagnosis And Therapy 2024, 51: 243-254. PMID: 38325342, PMCID: PMC11147688, DOI: 10.1159/000537691.Peer-Reviewed Original ResearchPerson-centered careMeasure person-centered careFetal care centersCare centerMeasures of person-centered careMaternal-child health outcomesConcurrent validityOpen-ended questionsWeb-based surveyRevised Patient PerceptionFactor analysisRounds of online questionnairesHealth outcomesExploratory factor analysisPatients' perceptionsItem clarityPerson-centeredCenter patientsInternal consistencyComparing scoresDelphi studyInitial itemsCareStandardized instrumentsLikert scale
2022
Development of a Parent-Reported Outcome Measure for Febrile Infants ≤60 Days Old
Aronson PL, Fleischer E, Schaeffer P, Fraenkel L, Politi MC, White MA. Development of a Parent-Reported Outcome Measure for Febrile Infants ≤60 Days Old. Pediatric Emergency Care 2022, 38: e821-e827. PMID: 35100782, PMCID: PMC8807943, DOI: 10.1097/pec.0000000000002378.Peer-Reviewed Original ResearchConceptsParent-reported outcome measureParents' emotionsPsychometric propertiesFebrile infants 60 daysMeasure's psychometric propertiesPotential itemsCognitive interviewsEmotionsItem clarityParents' experiencesInfants 60 daysParentsOutcome measuresDecision makingFinal measureItemsMeasuresInfant outcomesInterviewsExperienceNew samplesClarityFearExpert reviewEase of use