2022
Pilot Randomized Clinical Trial of a Goals-of-Care Decision Aid for Surrogates of Patients With Severe Acute Brain Injury
Muehlschlegel S, Goostrey K, Flahive J, Zhang Q, Pach JJ, Hwang DY. Pilot Randomized Clinical Trial of a Goals-of-Care Decision Aid for Surrogates of Patients With Severe Acute Brain Injury. Neurology 2022, 99: e1446-e1455. PMID: 35853748, PMCID: PMC9576301, DOI: 10.1212/wnl.0000000000200937.Peer-Reviewed Original ResearchConceptsCode status changeTraumatic brain injuryBrain injuryIschemic strokeCare decisionsIntracerebral hemorrhageDA groupAcute brain injury patientsSevere acute brain injuryNeurologic intensive care unitCare decision aidSurrogates of patientsAcute brain injuryAcute ischemic strokeClass IV evidenceLong-term prognosisIntensive care unitBrain injury patientsClinician-family communicationAdditional psychosocial supportPatient-centered careLife-sustaining treatmentPsychological outcomesDecision-making interventionClassification of evidence
2021
Predictors of Family Dissatisfaction with Support During Neurocritical Care Shared Decision-Making
Weber U, Zhang Q, Ou D, Garritano J, Johnson J, Anderson N, Knies AK, Nhundu B, Bautista C, Huang KB, Vranceanu AM, Rosand J, Hwang DY. Predictors of Family Dissatisfaction with Support During Neurocritical Care Shared Decision-Making. Neurocritical Care 2021, 35: 714-722. PMID: 33821402, PMCID: PMC8021441, DOI: 10.1007/s12028-021-01211-6.Peer-Reviewed Original ResearchConceptsFormal family meetingsICU admissionFamily meetingsNeuro-ICURetrospective observational cohort studyObservational cohort studyUS academic centersFamilies of patientsBroad inclusion criteriaFamily satisfactionTop-box responsesFamily membersNeuroscience ICUICU dischargeICU courseCohort studyIll patientsAvailable patientsPatient variablesFamily dissatisfactionInclusion criteriaPatientsAcademic centersPatient lengthAverage patient length
2020
Goals-of-care decision aid for critically ill patients with TBI: Development and feasibility testing.
Muehlschlegel S, Hwang DY, Flahive J, Quinn T, Lee C, Moskowitz J, Goostrey K, Jones K, Pach JJ, Knies AK, Shutter L, Goldberg R, Mazor KM. Goals-of-care decision aid for critically ill patients with TBI: Development and feasibility testing. Neurology 2020, 95: e179-e193. PMID: 32554766, PMCID: PMC7455326, DOI: 10.1212/wnl.0000000000009770.Peer-Reviewed Original ResearchConceptsCare decision aidSurrogates of patientsEarly feasibilityFeasibility trial protocolTraumatic brain injuryDecision aidConsecutive patientsIll patientsFeasibility trialStudy protocolTrial protocolBrain injuryInterim analysisCare communicationPatientsPaper-based decision aidExcellent usabilityComplete dataFeasibility testingHigh rateFamily membersBehavioral outcomesQualitative studyAcceptabilityIterative revisions
2018
Primary Care Physician Involvement in Shared Decision Making for Critically Ill Patients and Family Satisfaction with Care
Huang KB, Weber U, Johnson J, Anderson N, Knies AK, Nhundu B, Bautista C, Poskus K, Sheth KN, Hwang DY. Primary Care Physician Involvement in Shared Decision Making for Critically Ill Patients and Family Satisfaction with Care. The Journal Of The American Board Of Family Medicine 2018, 31: 64-72. PMID: 29330241, DOI: 10.3122/jabfm.2018.01.170211.Peer-Reviewed Original ResearchConceptsPatient's primary care physicianPatient's PCPPrimary care physiciansIll patientsPCP involvementPrimary care physician involvementMedical decisionsFamilies of patientsFamily satisfactionICU decisionICU patientsCare physiciansClinical informationPatientsMedical teamSatisfaction scoresIndividual survey itemsPhysician involvementICUMean scoreInvolvementFamily membersCareScoresSurvey items