2021
Psychometric properties of the Chinese Parent Version of the Autism Spectrum Rating Scale: Rasch analysis
Yan W, Siegert RJ, Zhou H, Zou X, Wu L, Luo X, Li T, Huang Y, Guan H, Chen X, Mao M, Xia K, Zhang L, Li E, Li C, Zhang X, Zhou Y, Shih A, Fombonne E, Zheng Y, Han J, Sun Z, Jiang YH, Wang Y. Psychometric properties of the Chinese Parent Version of the Autism Spectrum Rating Scale: Rasch analysis. Autism 2021, 25: 1872-1884. PMID: 33845648, PMCID: PMC8548063, DOI: 10.1177/13623613211004054.Peer-Reviewed Original ResearchConceptsAutism Spectrum Rating ScaleAutism spectrum disorderSpectrum disorderRasch analysisRating ScaleBehavioral rating scalesIdentification of childrenParent versionRasch measurementPsychometric propertiesChinese childrenChildrenDisordersParentsSupport servicesScaleStringent criteriaItemsGrandparentsScientific measurementsQuestionnaireBehavior characteristicsTeachers
2019
The genome empowerment scale: An assessment of parental empowerment in families with undiagnosed disease
McConkie‐Rosell A, Schoch K, Sullivan J, Cope H, Spillmann R, Palmer C, Pena L, Jiang Y, Daniels N, Walley N, Tan K, Network U, Hooper S, Shashi V. The genome empowerment scale: An assessment of parental empowerment in families with undiagnosed disease. Clinical Genetics 2019, 96: 521-531. PMID: 31448412, PMCID: PMC6983919, DOI: 10.1111/cge.13635.Peer-Reviewed Original Research
2018
Psychosocial Profiles of Parents of Children with Undiagnosed Diseases: Managing Well or Just Managing?
McConkie‐Rosell A, Hooper SR, Pena LDM, Schoch K, Spillmann RC, Jiang Y, Cope H, Network U, Palmer C, Shashi V. Psychosocial Profiles of Parents of Children with Undiagnosed Diseases: Managing Well or Just Managing? Journal Of Genetic Counseling 2018, 27: 935-946. PMID: 29297108, PMCID: PMC6028305, DOI: 10.1007/s10897-017-0193-5.Peer-Reviewed Original ResearchConceptsPsychosocial profileHealth care empowermentPsychological needsParents’ psychological needsHigh emotional costParents of childrenAnxiety symptomsEmotional costsUndiagnosed childrenOlder childrenGender differencesParentsUndiagnosed diseaseClinical sitesAnxietyChildrenUndiagnosed Diseases NetworkDegree toleranceHealth care engagementDepressionChronic illnessCare engagementClinical evaluationMedical findingsEmpowerment
2017
Chinese Norms for the Autism Spectrum Rating Scale
Zhou H, Zhang L, Zou X, Luo X, Xia K, Wu L, Wang Y, Xu X, Ge X, Jiang YH, Fombonne E, Yan W, Wang Y. Chinese Norms for the Autism Spectrum Rating Scale. Neuroscience Bulletin 2017, 33: 161-167. PMID: 28233147, PMCID: PMC5360852, DOI: 10.1007/s12264-017-0105-6.Peer-Reviewed Original Research
2016
Not the End of the Odyssey: Parental Perceptions of Whole Exome Sequencing (WES) in Pediatric Undiagnosed Disorders
Rosell AM, Pena LD, Schoch K, Spillmann R, Sullivan J, Hooper SR, Jiang Y, Mathey‐Andrews N, Goldstein DB, Shashi V. Not the End of the Odyssey: Parental Perceptions of Whole Exome Sequencing (WES) in Pediatric Undiagnosed Disorders. Journal Of Genetic Counseling 2016, 25: 1019-1031. PMID: 26868367, DOI: 10.1007/s10897-016-9933-1.Peer-Reviewed Original ResearchConceptsWhole-exome sequencingLikely diagnosisParental perceptionsRetrospective semi-structured interviewsMedical careWES findingsExome sequencingParents of childrenNegative genetic testing resultsGenetic testing resultsChild's medical careRare genetic disorderClinical diagnostic categoriesParental expectationsSense of isolationParental motivationDefinite diagnosisPrimary diagnosisRare disorderSemi-structured interviewsEducational professionalsSpecific treatmentUndiagnosed disordersPossible diagnosisRecurrence risk
2015
Validity and reliability analysis of the Chinese parent version of the Autism Spectrum Rating Scale (6–18 years)
Zhou H, Zhang L, Wu L, Zou X, Luo X, Xia K, Wang Y, Xu X, Ge X, Sun C, Deng H, Fombonne E, Jiang YH, Yan W, Wang Y. Validity and reliability analysis of the Chinese parent version of the Autism Spectrum Rating Scale (6–18 years). Psychiatry Research 2015, 230: 255-261. PMID: 26384573, DOI: 10.1016/j.psychres.2015.09.003.Peer-Reviewed Original ResearchConceptsParent versionRating ScaleCommunity-based subjectsClinic-based participantsChinese childrenAutism spectrum disorderTest-retest reliabilityReceiver Operating Characteristic (ROC) analysisOperating characteristics analysisTotal scoreSocial Responsiveness ScaleChinese versionSignificant differencesConcurrent validityValid toolSymptomsAutistic symptomsInternal consistencyConstruct validityCharacteristic analysisSpectrum disorderDiscriminant validity