Connect MDS/AML: design of the myelodysplastic syndromes and acute myeloid leukemia disease registry, a prospective observational cohort study
Steensma DP, Abedi M, Bejar R, Cogle CR, Foucar K, Garcia-Manero G, George TI, Grinblatt D, Komrokji R, Ma X, Maciejewski J, Pollyea DA, Savona MR, Scott B, Sekeres MA, Thompson MA, Swern AS, Nifenecker M, Sugrue MM, Erba H. Connect MDS/AML: design of the myelodysplastic syndromes and acute myeloid leukemia disease registry, a prospective observational cohort study. BMC Cancer 2016, 16: 652. PMID: 27538433, PMCID: PMC4991094, DOI: 10.1186/s12885-016-2710-6.Peer-Reviewed Original ResearchConceptsAcute myeloid leukemiaObservational cohort studyDisease RegistryCohort studyClinical outcomesPatient-reported health-related qualityProspective observational cohort studyBaseline patient characteristicsHigh-risk MDSHealth-related qualityNon-interventional studyPatient-reported outcomesLower-risk MDSHealth economic outcomesMinimal diagnostic criteriaRoutine clinical settingNatural history studiesBackgroundMyelodysplastic syndromesPersistent cytopeniasOlder patientsPatient characteristicsTreatment patternsAlternate diagnosisCentral reviewMyelodysplastic syndromeAssociation between Time since Cancer Diagnosis and Health-Related Quality of Life: A Population-Level Analysis
Wang SY, Hsu SH, Gross CP, Sanft T, Davidoff AJ, Ma X, Yu JB. Association between Time since Cancer Diagnosis and Health-Related Quality of Life: A Population-Level Analysis. Value In Health 2016, 19: 631-638. PMID: 27565280, PMCID: PMC5002308, DOI: 10.1016/j.jval.2016.02.010.Peer-Reviewed Original ResearchConceptsComponent summary scoresSF-6D scoresMental component summary scoresSurvivors of prostateYear of diagnosisPoor-prognosis cancerCancer survivorsSummary scoresCancer diagnosisCervical cancerLower mental component summary scoresLower SF-6D scoresPhysical component summary scoreCancer typesSurvivors of breastHealth-related qualityLevel of HRQoLPatient demographic characteristicsBreast cancer survivorsDecade of diagnosisDemographic characteristicsMost cancer survivorsMedical Expenditure Panel SurveyQuality of lifePoor mental health