2023
Use of Immersive Virtual Reality Spaces to Engage Adolescent and Young Adult Patients With Cancer in Therapist-Guided Support Groups: Protocol for a Pre-Post Study
Marks A, Garbatini A, Hieftje K, Puthenpura V, Weser V, Fernandes C. Use of Immersive Virtual Reality Spaces to Engage Adolescent and Young Adult Patients With Cancer in Therapist-Guided Support Groups: Protocol for a Pre-Post Study. JMIR Research Protocols 2023, 12: e48761. PMID: 37943596, PMCID: PMC10667982, DOI: 10.2196/48761.Peer-Reviewed Original ResearchINTERNATIONAL REGISTERED REPORT IDENTIFIERYoung adult patientsSupport groupsAdult patientsYoung adultsMean attendance rateSupport group interventionNon-Hispanic blacksNon-Hispanic whitesOverall retention rateNon-Hispanic AsiansRare disease populationPeer support groupsFacilitated support groupBone marrow failureMedian ageCommon diagnosisPreliminary efficacyHematologic malignanciesDisease populationLife measuresPatientsFinal intervention sessionTransgender femalesPsychosocial supportLoss to follow‐up of minorities, adolescents, and young adults on clinical trials: A report from the Children's Oncology Group
Puthenpura V, Ji L, Xu X, Roth M, Freyer D, Frazier A, Marks A, Pashankar F. Loss to follow‐up of minorities, adolescents, and young adults on clinical trials: A report from the Children's Oncology Group. Cancer 2023, 129: 1547-1556. PMID: 36813754, PMCID: PMC10357561, DOI: 10.1002/cncr.34701.Peer-Reviewed Original ResearchConceptsClinical trial participantsNon-Hispanic blacksTrial participantsHazard ratioOncology GroupClinical trialsMultivariable Cox proportional hazards regression modelsCox proportional hazards regression modelChildren's Oncology Group trialsProportional hazards regression modelsYoung adultsAdjusted hazard ratioChildren's Oncology GroupLong-term complicationsLong-term outcomesLog-rank testHazards regression modelsPediatric clinical trialsCancer clinical trial participantsLow socioeconomic status areasLong-term survivalEthnic minority patientsQuality of lifeLow socioeconomic statusNon-Hispanic whitesRisk of early death in adolescents and young adults with cancer: a population-based study
Berkman A, Andersen C, Hildebrandt M, Livingston J, Green A, Puthenpura V, Peterson S, Milam J, Miller K, Freyer D, Roth M. Risk of early death in adolescents and young adults with cancer: a population-based study. Journal Of The National Cancer Institute 2023, 115: 447-455. PMID: 36682385, PMCID: PMC10086632, DOI: 10.1093/jnci/djac206.Peer-Reviewed Original ResearchConceptsCentral nervous system tumorsNervous system tumorsEarly deathHematologic malignanciesSolid tumorsCancer typesInsurance statusSystem tumorsYoung adultsEnd Results registrySocioeconomic statusPopulation-based studyLow socioeconomic statusSupportive careHigh riskSociodemographic factorsAYAsTumorsHealth systemMalignancyCancerDeathRiskDeath percentageDiagnosis
2022
NFB-05. A family-centered neurocutaneous syndrome clinic in the age of targeted therapies
Marks A, Antaya R, Balsamo L, Cardinale K, Cheron R, Frumberg D, Gentile V, Habib L, Puthenpura V, Zhang H. NFB-05. A family-centered neurocutaneous syndrome clinic in the age of targeted therapies. Neuro-Oncology 2022, 24: i129-i129. PMCID: PMC9165028, DOI: 10.1093/neuonc/noac079.469.Peer-Reviewed Original ResearchTuberous sclerosisPediatric patients 2 yearsYale-New Haven Children's HospitalInoperable plexiform neurofibromasPatients 2 yearsOwn side effectsYears of ageNeurofibromatosis type 1Multidisciplinary clinicNeurocutaneous syndromeChildren's HospitalPlexiform neurofibromaNeuro-oncologySide effectsSubspecialty consultationClinicType 1Young adultsSclerosisSyndromeHospitalTherapyAgeTreatmentClinical reasoning
2021
Disparities in the long-term survival of adolescent and young adult diffuse large B cell lymphoma survivors
Berkman A, Andersen C, Puthenpura V, Livingston J, Ahmed S, Cuglievan B, Hildebrandt M, Roth M. Disparities in the long-term survival of adolescent and young adult diffuse large B cell lymphoma survivors. Cancer Epidemiology 2021, 75: 102044. PMID: 34597882, PMCID: PMC8627460, DOI: 10.1016/j.canep.2021.102044.Peer-Reviewed Original ResearchConceptsLong-term survivalDLBCL survivorsLymphoma survivorsSurvival disparitiesDiffuse Large B-Cell Lymphoma SurvivorsNon-Hispanic black survivorsNon-Hispanic white survivorsWorse long-term survivalReduced long-term survivalEnd Results registryOverall survival patternsRace/ethnicityMedian followMale sexWhite survivorsOlder ageSurvivorsRacial disparitiesYoung adultsBlack survivorsSocioeconomic statusSurvivalSurvival patternsSexCurrent study