New England Congenital Cardiology Association Bicuspid Aortopathy Registry (NECCA BAR): A regional preventive cardiovascular care collaboration
Flyer J, Goudie B, Greenstein E, Toro-Salazar O, Nikolli K, Sleeper L, Clarke C, Hidestrand P, Karnik R, O'Brien S, Zilberman M, Lacro R. New England Congenital Cardiology Association Bicuspid Aortopathy Registry (NECCA BAR): A regional preventive cardiovascular care collaboration. Progress In Pediatric Cardiology 2022, 66: 101543. DOI: 10.1016/j.ppedcard.2022.101543.Peer-Reviewed Original ResearchPatient care registriesBicuspid aortic valveMedical management guidelinesAortic rootCare registriesAortic valveBicuspid aortopathyPractice variationBackground Bicuspid aortic valveZ-scoreManagement guidelinesCommon congenital heart defectAortic growth rateProximal aortic dilationAdverse cardiovascular outcomesShort-term outcomesSingle-center dataRandomized clinical trialsClinical care guidelinesPreventive cardiovascular careAdverse drug eventsAorta z-scoreAortic valve disease progressionYears of ageCongenital heart defects