2018
iCanCope with Sickle Cell Pain: Design of a randomized controlled trial of a smartphone and web-based pain self-management program for youth with sickle cell disease
Palermo T, Zempsky W, Dampier C, Lalloo C, Hundert A, Murphy L, Bakshi N, Stinson J. iCanCope with Sickle Cell Pain: Design of a randomized controlled trial of a smartphone and web-based pain self-management program for youth with sickle cell disease. Contemporary Clinical Trials 2018, 74: 88-96. PMID: 30316999, PMCID: PMC6218943, DOI: 10.1016/j.cct.2018.10.006.Peer-Reviewed Original ResearchConceptsCognitive behavioral therapy interventionSelf-management skills trainingAttention control groupPain self-management programEmotional functioningPsychosocial interventionsSkills trainingParent caregiversSocial supportPain self-management interventionGoal settingTherapy interventionCaregiver responsesMost youthPotential mediatorsYouthHealth-related qualitySickle cell painHealth service useSelf-management programSelf-management interventionsSickle cell diseaseWeb-based programICanCopeAdolescents
2015
Development, Content Validity, and User Review of a Web-based Multidimensional Pain Diary for Adolescent and Young Adults With Sickle Cell Disease
Bakshi N, Stinson J, Ross D, Lukombo I, Mittal N, Joshi S, Belfer I, Krishnamurti L. Development, Content Validity, and User Review of a Web-based Multidimensional Pain Diary for Adolescent and Young Adults With Sickle Cell Disease. The Clinical Journal Of Pain 2015, 31: 580-590. PMID: 25565585, DOI: 10.1097/ajp.0000000000000195.Peer-Reviewed Original ResearchConceptsSickle cell diseasePain diaryHealth care utilizationElectronic pain diaryYoung adultsCare utilizationCell diseasePoor health-related qualityContent validityVaso-occlusive painDaily pain diarySeverity of painHealth-related qualityPain burdenModification of itemsPain experiencePainPatientsEnd-user reviewsElectronic diaryDiseaseAdultsAdolescentsPsychometric propertiesDiary